Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Of Lactose Intolerance

little d

Recommended Posts

little d Enthusiast
little d
Posted

Hello all

I think that I am slowly coming to the relization that I just might be lactose intolerant. Today after I ate my ceral it was gluten-free maple buckwheat flaks I had 2% milk with it. About an hour after I ate I started to get a little burpy with mild heartburn, that was about 4pm then about 5pm my stomach started to feel heavy and arms and legs felt tired as well. I did have the need to go poo but not anything too bad. so I just waited until i got to work. Now I am having a lot more heartburn. this is pretty much how I have felt after eating my cereal. Yes I did get some gluten last night but my reaction was not too bad. So I don't know if this is Lactose interalance symptoms or just from having some gluten last night. But this was a little more immediate than delayed.

donna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

Lactose intolerant symptoms are the same for me as the celiac symptoms! i am lactose intolerant, but I can drink about an 8oz glass a day(or equivalent of other dairy products) without problems...more than that and it's to the loo for me!

Michi8 Contributor
Michi8
Posted
Hello all

I think that I am slowly coming to the relization that I just might be lactose intolerant. Today after I ate my ceral it was gluten-free maple buckwheat flaks I had 2% milk with it. About an hour after I ate I started to get a little burpy with mild heartburn, that was about 4pm then about 5pm my stomach started to feel heavy and arms and legs felt tired as well. I did have the need to go poo but not anything too bad. so I just waited until i got to work. Now I am having a lot more heartburn. this is pretty much how I have felt after eating my cereal. Yes I did get some gluten last night but my reaction was not too bad. So I don't know if this is Lactose interalance symptoms or just from having some gluten last night. But this was a little more immediate than delayed.

donna

Doesn't sound like lactose intolerance to me.

My lactose reaction is gut wrenching pain, cramping and bloating followed by the sudden need to run to the bathroom. More often than not, as soon as I "sit down," the need (and pain) stops, without any "progress". As soon as I leave the bathroom, the need strikes again. I liken the feeling in my gut to a brick slowly moving through my intenstines.

I've tested my reactions, and have found that I tolerate higher fat dairy products very well. Ice cream is fine, but ice milk (eg DQ) causes immediate problems. The lower fat the milk is, the more sudden the reaction. I also tolerate yogurt and cheeses quite well. Seems my tolerance has improved a bit since going gluten free too.

Michelle

SunnyDyRain Enthusiast
SunnyDyRain
Posted

It could be lactose, or it could be casien Intolerance. I have a casien intolerance becasue even when I only drink lactaid milk I still got gas and very crappy overall feeling.

I'd suggest going a day with no dairy, then getting some lactose milk, and drinking that without any other Dairy at all the next day.

If your sick it's Casien if your ok, try the regular milk the next day, if your still ok, it was a fluke, if your sick it's lactose.

little d Enthusiast
little d
Posted
  • Author

OK thanks I was just wondering, I only get that way after eating any cereal with Milk, I don't think that I had the same reaction with Soy Milk, I did kinda like the Soy milk. I guess that I'm gonna have to try elinination with Milk, well I don't know because I may only drink milk maybe 2 to 4 time a week if that.

Donna

little d Enthusiast
little d
Posted
  • Author
It could be lactose, or it could be casien Intolerance. I have a casien intolerance becasue even when I only drink lactaid milk I still got gas and very crappy overall feeling.

I'd suggest going a day with no dairy, then getting some lactose milk, and drinking that without any other Dairy at all the next day.

If your sick it's Casien if your ok, try the regular milk the next day, if your still ok, it was a fluke, if your sick it's lactose.

But I will have gone days maybe 2 or 3 that I won't have any milk or cheese, but my cheese is Lactose/Gluten free and I am fine with that, which I'll eat with gluten-free bread and gluten-free lunch meat. And what is the differance between casien and latose intolerance

Donna

Michi8 Contributor
Michi8
Posted
But I will have gone days maybe 2 or 3 that I won't have any milk or cheese, but my cheese is Lactose/Gluten free and I am fine with that, which I'll eat with gluten-free bread and gluten-free lunch meat. And what is the differance between casien and latose intolerance

Donna

With casein intolerance, your body cannot tolerate the milk protein. With lactose intolerance, your body is not producing any/enough lactase enzyme to break down milk sugar (lactose) so it passes through the system undigested. Healing of the intestinal walls can help the body with regaining the ability to produce this enzyme, so celiacs who are gluten free may regain the ability to digest lactose.

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


grey Explorer
grey
Posted

I've been trying to do some research on these, but I'm not finding an answer. Are there tests for casein intolerance or lactose intolerance? Should celiacs maybe get these?

thanks.

With casein intolerance, your body cannot tolerate the milk protein. With lactose intolerance, your body is not producing any/enough lactase enzyme to break down milk sugar (lactose) so it passes through the system undigested. Healing of the intestinal walls can help the body with regaining the ability to produce this enzyme, so celiacs who are gluten free may regain the ability to digest lactose.

Michelle

confused Community Regular
confused
Posted
I've been trying to do some research on these, but I'm not finding an answer. Are there tests for casein intolerance or lactose intolerance? Should celiacs maybe get these?

thanks.

there is a casein intolerance test threw enterolab, and your dr can test for lactose intolerance threw a breathe test or other ways(im not sure on the ways)

I tested postive threw enterolab test, but i have known for a long time that i cant have milk, for yrs sour cream, whole milk and ice cream killed my stomach. I get severe reactions, real bad anxiety and hot flashes and really bad cramping.

paula

little d Enthusiast
little d
Posted
  • Author

Ok can I assume that if I drink Soy milk and not get the same reaction from that as I do with regular milk that is it possible that I have a mild lactose intolerance going on. Not a single reaction that I can tell from the soy milk, at least not immediate.

donna

GeoffCJ Enthusiast
GeoffCJ
Posted
It could be lactose, or it could be casien Intolerance. I have a casien intolerance becasue even when I only drink lactaid milk I still got gas and very crappy overall feeling.

I'd suggest going a day with no dairy, then getting some lactose milk, and drinking that without any other Dairy at all the next day.

If your sick it's Casien if your ok, try the regular milk the next day, if your still ok, it was a fluke, if your sick it's lactose.

I tested negative for Casein with enterolab, but had convinced myself I was Lactose intolerant. Over the last few days, I didn't have hardly any dairy (not really intentional, but I was on a trip). I felt pretty damn good.

This morning a poured a bowl a cereal, and my lactaid milk. 10 minutes later I had to go to the bathroom. and it wasn't pretty.

I'm really, really upset. I'm not sure yet, but it certainly points to me needing to experiment more.

Geoff

little d Enthusiast
little d
Posted
  • Author
I tested negative for Casein with enterolab, but had convinced myself I was Lactose intolerant. Over the last few days, I didn't have hardly any dairy (not really intentional, but I was on a trip). I felt pretty damn good.

This morning a poured a bowl a cereal, and my lactaid milk. 10 minutes later I had to go to the bathroom. and it wasn't pretty.

I'm really, really upset. I'm not sure yet, but it certainly points to me needing to experiment more.

Geoff

Hi geoff

I did try a carton of soy milk and I did not like the results, I finished that carton and then I bought Lactaid milk 1% i didnt mean to buy the 1% but it was good enough and I have not had the same reaction as I have with the regular milk, what a relief, still battleling with the possiblilty of the DH on my hand.

donna

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.