Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Help My 3 Year Old Daughter

sspringer

Recommended Posts

sspringer Newbie
sspringer
Posted

I have a 3 year old daughter who was diagnosed about a year ago. About 6 months later I went through a divorce. I know it probably sounds terrible but I don't know how well educated I am. I talked with the nutritionist, doctor and in the beginning went to support group meetings, but like I said I don't know how much I absorbed. I have a handle on alot of the stuff, but I am unsure of some ingredients, like dyes and other hidden stuff. Also I was not aware until I was reading this that I need to be careful of beauty products, I knew of make up, envelopes and some stuff but I guess there is a lot more I need to know. She goes to preschool and I send her lunch every day. I am just so scared after reading all this that I am harming her health by my lack of knowledge. She has acted fine and once in a while will complain of a stomach ache although she is very hyper and has pretty testy behavior, very unlike my other children. I want to make sure I do the best I can for her as I am her only advocate. With my personal issues behind me now I am able to solely focus on her and educating myself further. Please if you have any suggestions let me know. I appreciate everyones help and I am so glad I found this forum.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mama2two Enthusiast
mama2two
Posted
I have a 3 year old daughter who was diagnosed about a year ago. About 6 months later I went through a divorce. I know it probably sounds terrible but I don't know how well educated I am. I talked with the nutritionist, doctor and in the beginning went to support group meetings, but like I said I don't know how much I absorbed. I have a handle on alot of the stuff, but I am unsure of some ingredients, like dyes and other hidden stuff. Also I was not aware until I was reading this that I need to be careful of beauty products, I knew of make up, envelopes and some stuff but I guess there is a lot more I need to know. She goes to preschool and I send her lunch every day. I am just so scared after reading all this that I am harming her health by my lack of knowledge. She has acted fine and once in a while will complain of a stomach ache although she is very hyper and has pretty testy behavior, very unlike my other children. I want to make sure I do the best I can for her as I am her only advocate. With my personal issues behind me now I am able to solely focus on her and educating myself further. Please if you have any suggestions let me know. I appreciate everyones help and I am so glad I found this forum.
mama2two Enthusiast
mama2two
Posted
I have a 3 year old daughter who was diagnosed about a year ago. About 6 months later I went through a divorce. I know it probably sounds terrible but I don't know how well educated I am. I talked with the nutritionist, doctor and in the beginning went to support group meetings, but like I said I don't know how much I absorbed. I have a handle on alot of the stuff, but I am unsure of some ingredients, like dyes and other hidden stuff. Also I was not aware until I was reading this that I need to be careful of beauty products, I knew of make up, envelopes and some stuff but I guess there is a lot more I need to know. She goes to preschool and I send her lunch every day. I am just so scared after reading all this that I am harming her health by my lack of knowledge. She has acted fine and once in a while will complain of a stomach ache although she is very hyper and has pretty testy behavior, very unlike my other children. I want to make sure I do the best I can for her as I am her only advocate. With my personal issues behind me now I am able to solely focus on her and educating myself further. Please if you have any suggestions let me know. I appreciate everyones help and I am so glad I found this forum.

Have you ever read "gluten-free living for dummies" by Danna Korn? I am reading it now and she did talk of gluten in make-up and beauty products and what she said is that unless they are on your mouth or near it so that it may be ingested it usually does not bother you. But she said that some people say that beauty products, shampoos etc. with gluten do bother them, in which case you should obviously avoid them. GOod Luck!!

chrissy Collaborator
chrissy
Posted

are you having your daughter's Ttg levels tested on a regular basis? this is a really good way to monitor how well you are following the diet. we test our girls about every 6 months. i would imagine that over time we will test them less often, but for now, it helps us to keep an eye on things.

sspringer Newbie
sspringer
Posted
  • Author

Thanks for your replies. I actually was told to follow up with her pediatrician and that the GI doctor didn't need to see her anymore. Do you go to your ped. to get the test or the GI doc? I have also heard alot about the celiac for dummies so I am going to order that today. Thanks again.

JennyC Enthusiast
JennyC
Posted

If you are buying from reliable companies then you don't have to worry about hidden gluten. Nestle, General Mills and Kraft to name a few will not hide their gluten. I suggest going to their websites are printing off a list of their brands. You usually do not need to worry about caramel coloring, but I will not feed my son anything with natural flavoring from an unknown brand without calling them first. Many people say that modified food starch is fine unless it says that it is made from wheat, but I follow the same policy as I use with natural flavoring. The best thing to do besides finding the safe brands is to just start calling companies. Each company usually produces many products so you can sometimes get lots of information from one company. If you send me a private message with your email I will send you an email attachment of some gluten free food lists to give you a head start.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.