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Downs Celiac Boy - Taste In Mouth

hubster2

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hubster2 Newbie
hubster2
Posted

My 18 year old Downs Syndrome celiac son, diagnosed 1 month ago, complained then and complains now of a bad taste in his mouth. Ideas?

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cdfiance Explorer
cdfiance
Posted

Hi, my fiancee (who has Celiac) has been bothered with a bad taste in her mouth quite a bit since she first got sick with Celiac symptoms. It seems like it has been caused by different things at different times.

The things that we found to possibly causing the problem for her were:

  • when she was throwing up a lot (mostly pre-diagnosis) for obvious reasons
  • when she was on an antibiotic that gave her a really gross taste in her mouth
  • recently she had oral thrush (yeast infection in her mouth) that gave her a yucky taste in her mouth and also caused white patches in her mouth/tongue
  • I think when she gets dehydrated she also gets a bad taste in her mouth, maybe just from having a really dry mouth

I don't know if any of these apply to your son but I just wanted to let you know what we think the culprits were in our case so you could see if there was possibly a similar cause with your son. I hope you guys can figure out what is causing it.

Good luck,

Ryan

gdobson Explorer
gdobson
Posted

Maybe it's just from the diet change since it has only been a month? I know when you make a big alternation to your diet you frequently have issues like halitosis and dry mouth and of course, the nasty taste in your mouth.

ravenwoodglass Mentor
ravenwoodglass
Posted

After I went gluten-free I found that barley malt would give me a metalic taste that would last quite some time. This may not be what is causing this but thought I would mention just in case. In the early stages I was consuming Rice Crispies and also did not check 'natural flavors' as much as I needed to. Wheat will be listed as an allergen now but barley (this is often labeled malt), oats and although I haven't seen it, rye can be in the flavors and not be disclosed on the label.

Teacher1958 Apprentice
Teacher1958
Posted
My 18 year old Downs Syndrome celiac son, diagnosed 1 month ago, complained then and complains now of a bad taste in his mouth. Ideas?

I think I must have had a bad taste in my mouth for decades and didn't realize what it was. After going off of gluten, my mouth tastes totally different. I can only describe it as a "neutral" taste.

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      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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