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Pre-diagnosis, Testing, Symptoms

pattys

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pattys Newbie
pattys
Posted

I've had GI problems since a small child. Have had a diagnosis of Irritable Bowel since no one knew what was wrong with me. In the past 4 years I've had a rash that shows up off and on. The dermatologist sent me to an allergist. She finally said she didn't know what it was. Saw my GI Dr. when I had a bad rash on my arm. He asked if I had been tested for Celiac Disease. I hadn't so he did a blood test. I came back positive for Celiac. He did a biopsy and said it was negitive for Celiac but did show some inflammation but no evidence of a bacterial infection. I am so confused. I hoped the biospy would be positive for Celiac. Should I go on a gluten free diet even though my biopsies were negitive? What does the inflamation in my stomach suggest? My Dr. is just telling me I'm fine. I don't feel fine!

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AndreaB Contributor
AndreaB
Posted

Many doctors say you don't have celiac if you don't have a positive biopsy.

One problem with this is they don't biopsy the whole intestine and damage can be in various spots throughout.

If you have positive bloodwork and are satisfied with that then go gluten free and never look back. You have a problem with gluten if your bloodwork was positive.

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