Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wednesday Is The Day.. How To Start


lob6796

Recommended Posts

lob6796 Contributor

Wednesday is the biopsy. I plan to begin my gluten free diet right away, but my doctor told me to pace myself or I would get really overwhelmed. I also know I react to dairy and soy, and would like to eliminate them as well, but I am thinking "one thing at a time". Gluten is priority to me. So for all those that have BTDT, how did you go about being gluten free - and what would you do different if you had the chance? Thanks so much!! You guys have the best advice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sparkles Contributor

I think that your doctor has never been on a really strict diet. For me, it was easier to just give up everything that was gluten. That way I didn't have an excuse for just "one more time". I started out eating just meat.... hamburger.... a baked potato with all the butter I wanted, and lettuce with lemon juice. I know that it sounds pretty rigid now but I started feeling better within a week... no more migraines were the really big difference right away. I had suffered since I was a teenager and I went gluten-free when I was 55. So you can imagine my pleasure when I discovered that I didn't have migraines anymore. Little by little other symptoms disappeared. I realized I could go to a public place and not have to scope out the bathroom first thing...... etc, etc! After about 6 months, I started reintroducing things as I became more confident that I could find gluten free foods. For me it was just easier to go "cold turkey" and never look back. Whatever you decide, please know that you will find support here for those times when it would just be easier to say the heck with the diet. Good luck!

Guest j_mommy

BEfore my biopsy I went throught EVERYTHING in my kitchen and put everything containing gluten on my table. I ate what I could in the days prior to teh biopsy and everything left was given to friends and family.

I also stocked up on some things prior to the biopsy:

Rice pasta...the spegetti kind

Flours: White and brown rice,soy,tapioca,flax meal, potato starch,almond(I cook and bake from scratch)

Chebe mixes

gluten-free all purpose flour mix

gluten-free pancake mix

Fruits

veggies

Chicken

lettuce

I would definetly atleas go dairy light if you think you're reacting to dairy. I can handle a glass of milk a day and be ok.

New toaster and get rid of any wooden spoons you have.

I use the same non-stick pans that i had prior to going gluten-free...just wash them really good. Mine did not have any scratches ect in them! New colander if the one you were using is plastic.

Good luck on Wed and I hope this helps.

Guest j_mommy

Also xanthan gum or guar gum. I use xanthan right now but have used both. Guar gum is alot cheaper.

if you are a cereal eater...Trix is gluten-free right now. Be sure to check the box though!

Also I like to snack on chips...I get tostitos bite size....make sure they are teh corn ones!!!!!

Karwei5 Apprentice

I think it would be best just to go completely gluten-free all at once.

We started with chicken rice, mixed veggies. We made a stir fries a lot. I just added more water to make more juices instead of using a soy sauce.

Egg salad w/ gluten free crackers and lettuce cheese meat roll ups are a staple too.

He didn't like corn tortillas very much.

good Luck.

I hope you are feeling better soon.

Karol

blueeyedmanda Community Regular

I would just start out completely gluten free as well, it will be easier in the long run this way. I tried to do it gradually and I found myself cheating a lot in the beginning. The 2nd time I tried the diet, I did it all at once and I have not looked back since. One day I planned to do it. I had planned out meals for a few days and so when I woke up that morning I was ready to go.

mn farm gal Apprentice

I feel cold turkey is the way to go. I went cold turkey and didn't eat anything unless I knew it was gluten free. It took a while to get the hang of things but I noticed small changes within a couple of days and things are still getting better 11 months later. Otherwise I can see where you say I will have just a bit of this today and then get on track and then the next day you can't find something to eat that is quick and you cheat again and you never start feeling better. Plus if you start cold turkey with the mindset of I will not eat it unless I know it is gluten free you live by that. Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



par18 Apprentice
I think that your doctor has never been on a really strict diet. For me, it was easier to just give up everything that was gluten. That way I didn't have an excuse for just "one more time". I started out eating just meat.... hamburger.... a baked potato with all the butter I wanted, and lettuce with lemon juice. I know that it sounds pretty rigid now but I started feeling better within a week... no more migraines were the really big difference right away. I had suffered since I was a teenager and I went gluten-free when I was 55. So you can imagine my pleasure when I discovered that I didn't have migraines anymore. Little by little other symptoms disappeared. I realized I could go to a public place and not have to scope out the bathroom first thing...... etc, etc! After about 6 months, I started reintroducing things as I became more confident that I could find gluten free foods. For me it was just easier to go "cold turkey" and never look back. Whatever you decide, please know that you will find support here for those times when it would just be easier to say the heck with the diet. Good luck!

Cold turkey is exactly the method I took. I had a ham and swiss on a kiaser roll for lunch and as soon as I finished the GI called and gave me the news. That was over 2 years ago and to my knowledge I have not had any gluten since. I say that because I have had none of my previous symptoms and would like to keep it that way. I have never been tempted to see what would happen if I ate just a little bit. After I recovered (about 3 months) I never looked back and really don't miss much of anything I used to eat. I try to concentrate on other aspects of my life and enjoy the fact that I feel fine. Hope this helps.

Tom

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.