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redjoy

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redjoy Newbie

Hi, for yrs I thought I was suffering w/IBS, tried treating it but not much changed. I just had a lung infection that started in March & went on 3 months. I have lost so much weight I look like skin & bones. I am also depressed, very tired & no energy. When I read about this diesease it seemed I had the same symptoms. I remember my Dr saying a long time ago he was going to test me for this but never got around to it. I go back to the lung Dr tommorrow he took another CS then I am going to ask my Dr to run blood work to see. I see you really have to watch what you eat, I ate cookies, ice cream bread etc & would run to the bathroom. A man that works w/my husband sd he has it & has to look at everything, sd it's even in shampoo which surprised me.


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drewsant Rookie

I've been told all my life basically it was IBS. I went to specialists and everything, and have had tons of tests done, and ruled out everything but Celiac or allergies.

Finally 2 years ago, I went back to my GP, and talked with the Advanced Registered Nurse Practitioner, and told him that I would eat 3 bites of a sandwich or toast or crackers, and I'd be running to the bathroom. He mentioned Celiac, and said to do the gluten-free diet. That totally overwhelmed me. I also went to an allergist and found out I'm allergic to wheat, soy, chicken, fish, and tree nuts. The 1st 4 foods were my primary diet. If I eat just fresh fruits and veggies, and basic red meat, I don't have any symptoms at all.

I think that until just a few years ago, Drs. still thought Celiac was a really rare disease, but now they're coming around to it.

Crystalkd Contributor

I'd been told that I had IBS, a spasming colon or that it was all in my head. I've been on the diet for three weeks. I'm still learning where the hidden gluten is but I'm doing a lot better.

blueeyedmanda Community Regular

I for a long thought I had IBS from being a constant worrier and my job really stressed me out. It seems as if the symptoms between celiac and IBS are very similar. I am so glad it is Celiac I have and not IBS, I can control celiac. I eat gluten free. I honestly felt as if I was taking my life back when I went gluten free.

rsm Newbie

According to the doctors I had IBS, 25 years. After being gluten free for 3 months things are changing, stomach doesn't hurt, digestion is starting to return. I tried atkins a few years ago and noticed a definite change for the better. Once my daughter discovered the celiac connection it all clicked. We are both doing better gluten free.

gfmolly Contributor

I hope you are feeling better soon! I, too have been told that I have IBS and was told to try gluten-free and it made a world of difference! Many on the boards have trouble with dairy as well due to damaged small intestines, so you may want to try that as well. A month and a half into the diet and I have normal bm's instead of d everyday. I feel much more healthy and have energy. It's worth looking into.

Best wishes!

Terri

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      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
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      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
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