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Dr. In South Western Nh?

marlene57

By marlene57
in Doctors

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marlene57 Newbie
marlene57
Posted

Hi everyone,

I need to find a Dr. who knows about celiac disease. My GP knows absolutely nothing. My Gastro says there's nothing to do except suffer with the symptoms.

I was dx about a year ago just by going gluten-free and getting great results within 48 hrs. But...I have not been checked for all vitamin dificiencies. I've had Pernicious Anemia for years and get monthly injections, was told about 3 years ago that I have Folate dificiency, and a few months ago, found out I have low vitamin D.

Got my bloodwork results and found that I was only checked for glucose, Folate, and vitamin D! Shouldn't they all be checked?

A couple of weeks ago I saw the GP for neurological symptoms...wake up some mornings with dilated pupils that don't undilate (?) for about 1/2 hour, off balance, short term memory problems, and typing or saying words that aren't the ones I was thinking. He says it's something I'm eating! :huh:

I've just been reading about Gluten Ataxia and have become very concerned. If anyone knows of a doctor in my area who knows about celiac disease, I would very much appreciate a recommendation! At this point, I'm even willing to travel to Concord or Manchester....I live near Peterborough.

Thanks for letting me tell someone about this, and any help you can offer.

Marlene

  • 1 month later...
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Guest Waldenflo
Guest Waldenflo
Posted
Hi everyone,

I need to find a Dr. who knows about celiac disease. My GP knows absolutely nothing. My Gastro says there's nothing to do except suffer with the symptoms.

I was dx about a year ago just by going gluten-free and getting great results within 48 hrs. But...I have not been checked for all vitamin dificiencies. I've had Pernicious Anemia for years and get monthly injections, was told about 3 years ago that I have Folate dificiency, and a few months ago, found out I have low vitamin D.

Got my bloodwork results and found that I was only checked for glucose, Folate, and vitamin D! Shouldn't they all be checked?

A couple of weeks ago I saw the GP for neurological symptoms...wake up some mornings with dilated pupils that don't undilate (?) for about 1/2 hour, off balance, short term memory problems, and typing or saying words that aren't the ones I was thinking. He says it's something I'm eating! :huh:

I've just been reading about Gluten Ataxia and have become very concerned. If anyone knows of a doctor in my area who knows about celiac disease, I would very much appreciate a recommendation! At this point, I'm even willing to travel to Concord or Manchester....I live near Peterborough.

Thanks for letting me tell someone about this, and any help you can offer.

Marlene

HiMarlene,

If you're willing to travel a bit, Beth Israel Deaconess Medical Center (BIDMC) in Boston has a Celiac Clinic with a multi-disciplinary team of physicians. Im considering going there as well, from the South Shgore of Boston near Cape Cod, as my doctor is not quite up to full-speed. My sister, not doiagnosed, has "Cerebellar Ataxia" per her neurologist, who did not connect it to Celiac, although Im urging her to get tested as well. There is quite a lot of information on this site about Neuro complications of Celiac. I Understand that those with celiac disease are at risk for micro-calcifications in the white matter of the brain, among other fall-out. Ive been on a gluten free diet for years, and am treated for depression and ADHD (rampant in my family) but with the diet, meds and a huge attitude adjustment, Im doing very well. It may be worth going to BIDMC Celiac Clinic Boston, at least uinitially, to get on track. Good luck!

Flo/waldenflo

deesmith Apprentice
deesmith
Posted
Hi everyone,

I need to find a Dr. who knows about celiac disease. My GP knows absolutely nothing. My Gastro says there's nothing to do except suffer with the symptoms.

I was dx about a year ago just by going gluten-free and getting great results within 48 hrs. But...I have not been checked for all vitamin dificiencies. I've had Pernicious Anemia for years and get monthly injections, was told about 3 years ago that I have Folate dificiency, and a few months ago, found out I have low vitamin D.

Got my bloodwork results and found that I was only checked for glucose, Folate, and vitamin D! Shouldn't they all be checked?

A couple of weeks ago I saw the GP for neurological symptoms...wake up some mornings with dilated pupils that don't undilate (?) for about 1/2 hour, off balance, short term memory problems, and typing or saying words that aren't the ones I was thinking. He says it's something I'm eating! :huh:

I've just been reading about Gluten Ataxia and have become very concerned. If anyone knows of a doctor in my area who knows about celiac disease, I would very much appreciate a recommendation! At this point, I'm even willing to travel to Concord or Manchester....I live near Peterborough.

Thanks for letting me tell someone about this, and any help you can offer.

Marlene

Hi, I'm sorry to here about your ongoing symptoms. However, this is interesting to me because I have been going through something similar--with the being off balance and the memory problems, etc. I am also trying to find a doctor, a new primary care doctor for now, that will address these symptoms so I can find out how to get better. I would be willing to travel, but I am having a problem with my stupid insurance company and they don't pay outside my network of doctors. I somehow got my old primary care physician to give me a prior approval to see Dr. Green at Columbia University. Now my insurance is denying that because I should have seen someone in my network. (I'm going to fight this, but that's another story...) Anyway, I found this doctor on this site, but I don't know anything about him.

David Golden, M.D. - GI

Hitchock Clinic

Nashua, NH 03060

Tel: (603) 883-0326

I'm not sure where you live, but maybe you can take 101 to Nashua just as quickly as I-93 to Concord or Manchester. Especially if you're down south.

I also looked him up online once because I was going to go there, and apparently he knows something about celiac.

Good luck!

MistressIsis Apprentice
MistressIsis
Posted

I don;t know any in NH but I was DX'd by a Gyno at Mt. Auburn in Cambridge, MA. He says he's been seeing more & more women with food allergies that go undiagnosed. In fact,I was misdiagnosed with Endo & put in chemical menopause for 2 years! This doc actually gave me a list of foods to avoid 1 by 1 & talk every 2 weeks after, well after 3 days of no wheat or very very little I was 80% better!

For me, that's enough of a DX, since I have no other health issues.

He actually specializes in Fibroid tumors etc, which I thought it might have been since all 3 of my sisters have had those!

this is his info & he is the nicest guy!!

Mitchell J. Levine, M.D.

1 New Street

Cambridge, MA 02138

617-441-5550

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