Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Gain After Diagnosis


MJS

Recommended Posts

MJS Rookie

I was diagnosed last summer, and after starting the diet I immediately began gaining weight. It was strange because for the last two years before I was diagnosed, I had been losing weight steadily.

All of a sudden, over a course of two months, I gained almost 20 pounds. It has been a year since the diagnosis, and I have only been able to lose 10 of the pounds.

Did this happen to anyone else? What did you do?

I have been eating healthy food and maintained a good excercise regimen. I wish my body would just go back to normal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cmom Contributor

I have been fighting the same problem for the past 2 years. I go to a personal trainer once a week, exercise, am positively gluten-free, and honestly feel like I do not eat excessively. At this time, I weigh the most I ever have in my life. I must be absorbing everything I look at! I still have the bloating and spent 30 minutes a couple weeks ago trying on clothes before I could find something that fit. I was in tears by that time. I am miserable!

bsb6 Newbie

I too was diagnosed last summer and now weigh 20 lbs more than I had. I lost 40 lbs

after hip surgery, that is when the Celiac kicked in, then gained back the 40 + another 20.

You say you want to go back to "normal", but it wasn't normal. That was why you

were losing weight. I too feel like my body grabs every single calorie it take in and

long for the "good old days". I eat better & excersize more than ever, walking about

4 miles 5-6 days a week, which got me out of my osteoperosis.

It is a lot to handle, but your not alone. The support group out here in the western suburbs

of Chicago has a number of people fighting the same battles. There aren't any easy answers.

I'm still so thankful that I didn't have to start this 5-10 years ago, when it had to have been

much more difficult.

Good Luck

maryhult Newbie

[

maryhult Newbie

I understandi your frustration. I was diagnosed about a year and a half ago, and since then I've gained about 40 lbs. I'm miserable and am looking for a diet that will help me to shed these extra pounds. I've been trying to use Weight Watchers, but I feel hungry all the time, and have been very unsuccessful. If anyone has any suggestions, please post them. I've got to find a way to get this extra weight off.

Carolyn17 Newbie

Me too ... I have never had a weight problem like I am having now. It is absolutely depressing! It's nice to know that I'm not the only one having this problem.

I was diagnosed about 4 months ago, and almost immediately after starting the diet I started gaining weight. I have gained about 30 lbs so far. It doesn't seem to matter what I eat or how much I work out ... I just keep gaining weight. It is very frustrating.

I started taking Alli when it came out a few weeks ago -- but haven't noticed any results yet. :( At this point I would do almost anything to get the extra weight off.

celiac-mommy Collaborator
Me too ... I have never had a weight problem like I am having now. It is absolutely depressing! It's nice to know that I'm not the only one having this problem.

I was diagnosed about 4 months ago, and almost immediately after starting the diet I started gaining weight. I have gained about 30 lbs so far. It doesn't seem to matter what I eat or how much I work out ... I just keep gaining weight. It is very frustrating.

I started taking Alli when it came out a few weeks ago -- but haven't noticed any results yet. :( At this point I would do almost anything to get the extra weight off.

What are you all doing to try to lose the weight? If I knew, I could try to help. I'm not a certified nutritionist-so keep that in mind, but I manage my daughter's gluten-free diet and I have set up diet and exercise plans for quite a few people-friends and co-workers. I have a friend and her sister who I have worked with steadily in the past 2 months and they're both doing great and losing weight steadily. Here's my history:

-"normal" physique through childhood and early adulthood

-got married, gained a LOT of weight

-got motivated, lost 20#

-got pregnant, gained 35#

-over the next 2 years, lost 100#!!! kept it off for 1 year

-got pregnant, gained 45#

-lost 50#

-maintained for the last year and am smaller than I was in high school!

If there's anything I can do, I'd be happy to help.

-Rachelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hornbeck0920 Apprentice
What are you all doing to try to lose the weight? If I knew, I could try to help. I'm not a certified nutritionist-so keep that in mind, but I manage my daughter's gluten-free diet and I have set up diet and exercise plans for quite a few people-friends and co-workers. I have a friend and her sister who I have worked with steadily in the past 2 months and they're both doing great and losing weight steadily. Here's my history:

-"normal" physique through childhood and early adulthood

-got married, gained a LOT of weight

-got motivated, lost 20#

-got pregnant, gained 35#

-over the next 2 years, lost 100#!!! kept it off for 1 year

-got pregnant, gained 45#

-lost 50#

-maintained for the last year and am smaller than I was in high school!

If there's anything I can do, I'd be happy to help.

-Rachelle

Could you help me? I've been gluten-free for a month and I don't know how much weight I've gained (or even if I'm a celiac - I'm gluten-free for my baby's sake) but my pants don't fit anymore. I can tell by looking in the mirror from the side that I'm bigger. My belly fat is firmer so maybe it's water weight, but why?

celiac-mommy Collaborator
Could you help me? I've been gluten-free for a month and I don't know how much weight I've gained (or even if I'm a celiac - I'm gluten-free for my baby's sake) but my pants don't fit anymore. I can tell by looking in the mirror from the side that I'm bigger. My belly fat is firmer so maybe it's water weight, but why?

I would be so happy to help! You let me know the easiest way to keep in touch with you and I'm there for you! There are a few things that I will need to know to get started- Current height and weight, activity level, amount of exercise and what type, and a basic weekly schedule-wake, sleep, work, etc... just to give me an idea on where/how to start you. Also are you just gluten-free or are there other restricitons? You can personal message me if you feel more comfortable.

-Rachelle

  • 2 weeks later...
cindy lou Newbie

Eating gluten free is certainly necessary for us all, but make sure you are also not missing any other allergies. I highly recommend metabolic typing- it has worked wonders for me and I realized I spent my entire life not only poisoning myself (favorite foods of mac and cheese, pasta, Vienna sausages, etc) but also eating completely wrong for my body. A short little free test is at:

Open Original Shared Link

Try it out and see what you are. I am an extremely strong protein type but my fiancee is a complete carb type! We have double/separate meals most of the time, but soups and flax bread-based pizza work great- you can add whatever suits your body more- veggies and grains or meats/proteins.

PosNrg Newbie

Hi

I also rapidly gained weight after going gluten-free. My Dr.'s response "Well, you have to learn to eat less!" At first I was mad, I thought he was being smart with me, but he went on to explain that for years (even though I was thin) I was actually over eating because my body was demanding it. (The need for nutrients not being properly absorbed) Of course I never felt I was an overeater but this had logic to it. I tried to reduce my portion quantities and snacking (all habits for years). I had always been a person to exercise but I also increased that. I can report that progress is slow but weight is coming off. Hope this helps

PosNrg

  • 2 weeks later...
NWLAX36Mom Rookie

I too have been fighting this problem. I am an athlete and have always been lean and muscular. I became gluten freen in February and can hardly fit into clothes that I have worn for years. I miss seeing any definition in my muscles. It is so frustrating!

Lately I have been trying to eat very few refined/processed foods. I'm trying to rely on fresh fruits, vegetables and lean proteins. Hopefully, that will make a difference because I definitely do get enough exercise.

7-cody Apprentice

I'm 6' and only weight 170...

I'd love to gain 30 lbs. Hopefully that'll happen now that I'm starting my gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.