Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Gain After Diagnosis


MJS

Recommended Posts

MJS Rookie

I was diagnosed last summer, and after starting the diet I immediately began gaining weight. It was strange because for the last two years before I was diagnosed, I had been losing weight steadily.

All of a sudden, over a course of two months, I gained almost 20 pounds. It has been a year since the diagnosis, and I have only been able to lose 10 of the pounds.

Did this happen to anyone else? What did you do?

I have been eating healthy food and maintained a good excercise regimen. I wish my body would just go back to normal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cmom Contributor

I have been fighting the same problem for the past 2 years. I go to a personal trainer once a week, exercise, am positively gluten-free, and honestly feel like I do not eat excessively. At this time, I weigh the most I ever have in my life. I must be absorbing everything I look at! I still have the bloating and spent 30 minutes a couple weeks ago trying on clothes before I could find something that fit. I was in tears by that time. I am miserable!

bsb6 Newbie

I too was diagnosed last summer and now weigh 20 lbs more than I had. I lost 40 lbs

after hip surgery, that is when the Celiac kicked in, then gained back the 40 + another 20.

You say you want to go back to "normal", but it wasn't normal. That was why you

were losing weight. I too feel like my body grabs every single calorie it take in and

long for the "good old days". I eat better & excersize more than ever, walking about

4 miles 5-6 days a week, which got me out of my osteoperosis.

It is a lot to handle, but your not alone. The support group out here in the western suburbs

of Chicago has a number of people fighting the same battles. There aren't any easy answers.

I'm still so thankful that I didn't have to start this 5-10 years ago, when it had to have been

much more difficult.

Good Luck

maryhult Newbie

[

maryhult Newbie

I understandi your frustration. I was diagnosed about a year and a half ago, and since then I've gained about 40 lbs. I'm miserable and am looking for a diet that will help me to shed these extra pounds. I've been trying to use Weight Watchers, but I feel hungry all the time, and have been very unsuccessful. If anyone has any suggestions, please post them. I've got to find a way to get this extra weight off.

Carolyn17 Newbie

Me too ... I have never had a weight problem like I am having now. It is absolutely depressing! It's nice to know that I'm not the only one having this problem.

I was diagnosed about 4 months ago, and almost immediately after starting the diet I started gaining weight. I have gained about 30 lbs so far. It doesn't seem to matter what I eat or how much I work out ... I just keep gaining weight. It is very frustrating.

I started taking Alli when it came out a few weeks ago -- but haven't noticed any results yet. :( At this point I would do almost anything to get the extra weight off.

celiac-mommy Collaborator
Me too ... I have never had a weight problem like I am having now. It is absolutely depressing! It's nice to know that I'm not the only one having this problem.

I was diagnosed about 4 months ago, and almost immediately after starting the diet I started gaining weight. I have gained about 30 lbs so far. It doesn't seem to matter what I eat or how much I work out ... I just keep gaining weight. It is very frustrating.

I started taking Alli when it came out a few weeks ago -- but haven't noticed any results yet. :( At this point I would do almost anything to get the extra weight off.

What are you all doing to try to lose the weight? If I knew, I could try to help. I'm not a certified nutritionist-so keep that in mind, but I manage my daughter's gluten-free diet and I have set up diet and exercise plans for quite a few people-friends and co-workers. I have a friend and her sister who I have worked with steadily in the past 2 months and they're both doing great and losing weight steadily. Here's my history:

-"normal" physique through childhood and early adulthood

-got married, gained a LOT of weight

-got motivated, lost 20#

-got pregnant, gained 35#

-over the next 2 years, lost 100#!!! kept it off for 1 year

-got pregnant, gained 45#

-lost 50#

-maintained for the last year and am smaller than I was in high school!

If there's anything I can do, I'd be happy to help.

-Rachelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hornbeck0920 Apprentice
What are you all doing to try to lose the weight? If I knew, I could try to help. I'm not a certified nutritionist-so keep that in mind, but I manage my daughter's gluten-free diet and I have set up diet and exercise plans for quite a few people-friends and co-workers. I have a friend and her sister who I have worked with steadily in the past 2 months and they're both doing great and losing weight steadily. Here's my history:

-"normal" physique through childhood and early adulthood

-got married, gained a LOT of weight

-got motivated, lost 20#

-got pregnant, gained 35#

-over the next 2 years, lost 100#!!! kept it off for 1 year

-got pregnant, gained 45#

-lost 50#

-maintained for the last year and am smaller than I was in high school!

If there's anything I can do, I'd be happy to help.

-Rachelle

Could you help me? I've been gluten-free for a month and I don't know how much weight I've gained (or even if I'm a celiac - I'm gluten-free for my baby's sake) but my pants don't fit anymore. I can tell by looking in the mirror from the side that I'm bigger. My belly fat is firmer so maybe it's water weight, but why?

celiac-mommy Collaborator
Could you help me? I've been gluten-free for a month and I don't know how much weight I've gained (or even if I'm a celiac - I'm gluten-free for my baby's sake) but my pants don't fit anymore. I can tell by looking in the mirror from the side that I'm bigger. My belly fat is firmer so maybe it's water weight, but why?

I would be so happy to help! You let me know the easiest way to keep in touch with you and I'm there for you! There are a few things that I will need to know to get started- Current height and weight, activity level, amount of exercise and what type, and a basic weekly schedule-wake, sleep, work, etc... just to give me an idea on where/how to start you. Also are you just gluten-free or are there other restricitons? You can personal message me if you feel more comfortable.

-Rachelle

  • 2 weeks later...
cindy lou Newbie

Eating gluten free is certainly necessary for us all, but make sure you are also not missing any other allergies. I highly recommend metabolic typing- it has worked wonders for me and I realized I spent my entire life not only poisoning myself (favorite foods of mac and cheese, pasta, Vienna sausages, etc) but also eating completely wrong for my body. A short little free test is at:

Open Original Shared Link

Try it out and see what you are. I am an extremely strong protein type but my fiancee is a complete carb type! We have double/separate meals most of the time, but soups and flax bread-based pizza work great- you can add whatever suits your body more- veggies and grains or meats/proteins.

PosNrg Newbie

Hi

I also rapidly gained weight after going gluten-free. My Dr.'s response "Well, you have to learn to eat less!" At first I was mad, I thought he was being smart with me, but he went on to explain that for years (even though I was thin) I was actually over eating because my body was demanding it. (The need for nutrients not being properly absorbed) Of course I never felt I was an overeater but this had logic to it. I tried to reduce my portion quantities and snacking (all habits for years). I had always been a person to exercise but I also increased that. I can report that progress is slow but weight is coming off. Hope this helps

PosNrg

  • 2 weeks later...
NWLAX36Mom Rookie

I too have been fighting this problem. I am an athlete and have always been lean and muscular. I became gluten freen in February and can hardly fit into clothes that I have worn for years. I miss seeing any definition in my muscles. It is so frustrating!

Lately I have been trying to eat very few refined/processed foods. I'm trying to rely on fresh fruits, vegetables and lean proteins. Hopefully, that will make a difference because I definitely do get enough exercise.

7-cody Apprentice

I'm 6' and only weight 170...

I'd love to gain 30 lbs. Hopefully that'll happen now that I'm starting my gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,469
    • Most Online (within 30 mins)
      7,748

    Jcarder
    Newest Member
    Jcarder
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.