Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I've Been Glutened


a1sacch

Recommended Posts

a1sacch Rookie

Just looking for some sympathy.

Im at work and the past three days have been horrible. Im running to the bathroom every half an hour. I have no idea what it is, ive introduced two new things into my diet this week. A new cheese and a new cereal. I stopped eating the cheese, but im still getting sick. The cereal is gluten-free, is says so on the box.

i suppose im just looking for some sympathy, its not something I can talk to my co-workers about, im still new.

Sometimes I think though, that if other people experienced the pain and discomfort we did, they wouldnt even leave bed, let alone go to work and just deal...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfmolly Contributor

What cereal is it?

rinne Apprentice

Sorry to hear that you are feeling so badly. :(

Is it possible to take a sick day when you feel like this?

How long have you been gluten free?

I found that after going gluten free I also had to go dairy free. :( I once loved cheese. :lol:

I have problems with processed products and have found that a gluten free label does not make it safe for me to eat.

a1sacch Rookie
What cereal is it?

Nature's path honeyed corn flakes

a1sacch Rookie
Sorry to hear that you are feeling so badly. :(

Is it possible to take a sick day when you feel like this?

How long have you been gluten free?

I found that after going gluten free I also had to go dairy free. :( I once loved cheese. :lol:

I have problems with processed products and have found that a gluten free label does not make it safe for me to eat.

thanks for the sympathy.

I suppose I could take a sick day, but Im an intern for the summer, and I'm only here for 8 weeks, so I kind of feel bad just leaving

I've been gluten free for a little over 3 years.

this is really atypical for me.

I don't eat much dairy-i was REALLY lactose intolerant as a child, but I mostly grew out of it. I only eat yogurt and the occasional cheese on a sandwhich, which doesnt bother me.

Maybe it was the new cheese? Edam is the kind. maybe the wax on the rind?

zkat Apprentice

I eat Nature's Path Honey'd cornflakes on a regular basis and have never had a problem with them. Now, if I eat them with regular milk, it is almost like a gluten reaction. Bad diarrea, smelly gas, bloating the whole nine yards, so I eat them with Pacific Foods vanilla flavored almond milk.

Just last week I attempted to add dairy back, in a small amount (the amount used to batter a fried catfish) and it was leathal! (Good thing DH was out of town) Cheese, just depends, small amounts I don't have a serious reaction, but large amounts and I am in serious pain.

Maybe it is the milk with the cereal?

Kat.

Rosewynde Rookie

Sorry your feeling so awful! Hang in there! I'd explain to the boss and take a day down time at least. The stress from working while feeling like that isn't helping I'm sure.

Don't forget to check even things you've eaten for a long while. Sometimes recipes and ingredients change without warning. That includes any regular medicines you take.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.