Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else Have This?


Twister2

Recommended Posts

Twister2 Contributor

Hi all, I am just wondering if anyone else has headaches with muscle weakness, difficulty concentrating and coordination problems. For the past few days I have had these symptoms and its beginning to scare me. I have not yet gone gluten free because I have not had my biopsy yet. My blood work was positive though. I am just wondering if this is part of Celiacs or something else!

Thanks! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Yep. Had those symptoms. Went to the hospital for the headaches they were so bad. Had severe muscle cramps in my legs too.

Laura

darlindeb25 Collaborator
;) yup--me too, had those symptoms--i have had headaches all my life though so it is sometimes hard to determine if it's a regular headache, a gluten problem, stress--i do have the difficulty concentrating :( deb
Carriefaith Enthusiast

Yes, I have had headaches, muscle weakness, and difficulty concentrating. It's not very fun.

Guest missyflanders

Yup. My coordination and muscle pain and weakness was so bad they looked at MS, Carpal Tunnel, peripheral neuropathy, RA, lupus etc.

They found nothing. I feel it is hormonal because going on the bc pill helped but the only other thing that helped were several bouts with predinisone. I am almost to the point to look in further again.

darlindeb25 Collaborator
;) i keep reading the post in here and i do have to say that when i look back i do believe the worst i felt started just after taking the birth control pills--my ex wanted a daughter so much and after our third baby i decided i would go through pregnancy one more time trying for a girl--i was always sick when pregnant, by the time i found i was pregnant i had decided i didnt want anymore babies, that 3 were enough, but :P i was already pregnant with our 4th son and i was so sick the whole pregnancy, i was anemic the whole time and borderline gestational diabetes B) so after him i decided to go on bc pills--i got so sick with them and became pregnant with our last child--i cant say now that i was disappointed about having her :D --i finally had my baby girl and she was so precious :D --i have always told her that she was a wonderful surprise, never an accident ;) ---now when i look back, the bc pills may have been my trigger too, if not, they sure pushed me along--deb :(
Donna F Enthusiast

I had all those symptoms. For years we thought I had ms but the mri wasn't showing lesions - we were stumped. I could barely walk down the stairs or carry my son. The headaches were horrible. I couldn't bear the sun or any kind of heat either.

I went through that for years - sometimes it would subside, but then it would come back again. It all disappeared on the gluten-free diet - just a day into it I felt better immediately, and i've been fine ever since (aside from some gluten mishaps that send me to the toilet - a symptom i NEVER had BEFORE!)

-donna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



llj012564 Newbie

Ive been gluten-free since Feb04 and had all of those complaints and more. They did improve when I started the diet but I still find myself very fatigued all the time. I have to work hard at comsuming enough calories daily with the limited things I can eat.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,585
    • Most Online (within 30 mins)
      7,748

    Josephine Minaudo
    Newest Member
    Josephine Minaudo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.