Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unsure?

person011

Recommended Posts

person011 Rookie
person011
Posted

I was tested for gluten tolerance in early May and tested positive by only four points. My mom insisted that since I tested positive only a little that I should not worry about it. I decided to get retested this week. I tested positive by the same amount. I guess my question is for those of you going gluten free, how far were you off of the normal range?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

How were you tested?

SunnyDyRain Enthusiast
SunnyDyRain
Posted

I was tested IgA +2 from negitive and IgG, at the very top of negitive. I was just going though the similar thing... see my post "Just a little bit Celiac?". That may help, it helped me quite a bit.

person011 Rookie
person011
Posted
  • Author

My IgA was 39 and normal is considered 35 and under

CarlaB Enthusiast
CarlaB
Posted

Did they do the rest of the celiac panel?

Are you having symptoms?

Guest j_mommy
Guest j_mommy
Posted

Here was my Dr's thought when I got tested.....

She thought had I gotten tested prior to having my son I would have tested as you did...a little elavated, b/c even prior to having my son I had some symptoms. Pregnancy was my "triggering" event..or so they think. Life stress, divorce,marriage ect can "trigger" the gene.

When I was tested in April I was high;y elevated!!!

ravenwoodglass Mentor
ravenwoodglass
Posted

If your test was at all postive, even one point it is positive. Even if it had been totally negative it still would not mean for sure you are not celiac. I have always been blood test negative even when close to death and as for the rest of my family they all had low positives, one member was only positive by one point but all have benifited greatly by being gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rosewynde Rookie
Rosewynde
Posted

Why'd you get tested? Are you having symptoms?

As far as I know if you blood work test is positive your Celiac, that's what I was told. My real proof was trying the diet and my flu symptoms slowly went away as soon as I stopped eating wheat, rye, barley, and oats. If your having medical problems and that is why you were tested then try the gluten free diet and see how you feel after a couple of months. If the symptoms go away then Gluten is a problem. From what I've read and been told Celiac Disease is not a matter of "just a little bit". There are serious complications that can come if your keep damaging your intestines by exposing them to the gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748
    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.