Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy Tomorrow


anerissara

Recommended Posts

anerissara Enthusiast

Ugh, I have a colonoscopy tomorrow and I'm really nervous about it! I don't know what I'm more worried about...the nasty prep I'm in for starting at 6 tonight or the procedure itself or the possibility of finding something really scary going on in my digestive tract. I'm sort of a mess!

The good news is that I really like my new gi doctor. I had to wait *months* to get in to see her, but she's really good. She listened to all my issues and she was very knowlegable about celiac's. She said that judging from my symptoms it was probable that I do have Celiac's and she's not recommending (at least at this point) that I go back on wheat to dx for sure. She said that she thinks the gluten-free diet is a really good one for anybody with gi issues, so if I'm doing OK on that she thinks I shouldn't change it. I'm hoping she can help get rid of the D that I still have even on the diet....but at this point as long as I don't have anything serious going on in there I really am at a point where I'm ready to accept the fact that I'll just always have digestive issues and leave it at that. I'm so sick of the whole thing!

Anyway, if it turns out OK tomorrow I will be so relieved. I just wish I could fast forward time and have it over with...I am so nervous!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Yeah, I had my colonoscopy (and an endoscopy at the same time) last year. I had D and blood, but my colon was very healthy. They thought maybe I had C.Diff, or diverticulitus or polyps or something, but it was clean. The blood cleared up, but the D continued up until just a week or so ago. I did have a stomach polyp though and some esophagial damage.

And, yeah, the prep isn't much fun, lol! The thing I was most nervous about was the car ride over to the surgicenter LOL. The actual procedure itself wasn't too bad. Even the IV wasn't as bad as I thought it would be. I was sedated enough throughout the procedure that I remember nothing from the time they wheeled me into the room until I woke up in the recovery area. Apparently I was well sedated cuz it took me at least 30 minutes once I was "awake" to really wake up, lol.

Cruiser Bob Newbie

Well, I get to start my prep. at noon and go in for a scope on both end tomorrow also. I however am not too comfortable with the GI doc, as they screwed up my initial interview and now medical record. They had no idea they were doing a colonoscopy until I called them this morning to verify and I've got a strange feeling the diagnosis will by Chron's no matter what my insides look like, because that appears to be their big marketing push at this time.

We'll see, I still need to get my insides looked at to see what's going on. It's been 7 years gluten-free, 6+ diary & egg free (98%), 4+ years with almost no nightshades. Something is going on between the two ends that affects my whole being.

So tonight there will be at least two of us not having much fun, then tomorrow, then the wait for results, then getting a proper interpretation, then doing my own verfication, etc., etc.

Bob

anerissara Enthusiast

I'm nervous about the ride there, too...it's only a few blocks luckily but they have me taking the stuff starting again at 6 a.m., so hopefully I'll make it. dlp252, I'm glad everything turned out OK for you! I've had bleeding, too...it's been traced to an internal hemrroid, but I'm nervous that they'll find something else, too. I'm wondering if they'll say Chron's, for the same reason Cruiser Bob mentioned...it seems to be a popular dx right now. It's comforting that I won't be the only one sleeping in the bathroom tonight...what time is yours scheduled for? Mine's at 10:00. I'm praying that at this time tomorrow we'll both have a clean bill of health...at least as far as they can tell at the time. I am not looking forward to waiting for results, either.

dlp252 Apprentice

Well, I'll certainly be thinking of both of you! I think I had to get up at 3:00 a.m. the day I did mine because my appointment was early, lol. That's why I was so nervous about the ride. I think I took a towel with me to sit on just in case. :lol:

I thought I would get Chron's too, but nope, they couldn't even do that for me. :P I DID get the dreaded IBS tag though. :P

anerissara Enthusiast

I'll be sooooooooooo happy if I get the IBS tag, at least that means it's nothing serious and then I can go about trying to find ways to make it better.

But I share your frustration that there isn't a quick or easy fix! I wonder how many other people have IBS *and* Celiac's?

Ugh, here we go....I'm on the first cup of white grape juice and what appears to be liquid dish soap. Same basic ingredients, anyway, according to the label. It doesn't taste as bad as I expected, but then again I'm only 1/2 way through the first cup and I haven't experienced the nasty results as of yet. Wish me luck!

dlp252 Apprentice

Good luck! As I recall, I started getting worried because mine didn't kick in right away, but they had me start the morning OF my procedure! Keep some reading material in the bathroom and don't do anything that you can't drop in a hurry. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



anerissara Enthusiast

Ugh, I can't wait. So far I don't feel anything except slightly sick from the salty taste and the fruit juice, which I never drink because it makes me sick. Sigh. I guess that I won't miss white grape juice after I get through tonight and tomorrow and never want to see it again, since I don't really like it anyway!

Teacher1958 Apprentice

I have a colonoscopy in less than three weeks and am really nervous already. My friends say they're a piece of cake, but I don't care for needles or anything invasive. I want to have things checked, though, because I've had symptoms since 1965- nope, that wasn't a typo- 1965. If everything in there is clear, I will be so happy, but once I get a gastroenterologist, he will probably recommend an endoscopy, too.

I had a bone scan today. I asked the technician when I'd receive the results, and she let me see the line graphs resulting from the scan. She emphasized that there's more to it than just the graphs, but at least they were well within the normal (green) range. Maybe my bones have not been affected.

Good luck tomorrow. Let us know how things went. Just think, 24 hours from now you'll be relaxing and it will be behind you.

anerissara Enthusiast

WhoooooHoooo! It's over!

And so far everything looks OK. There was an area of inflammation that the dr. thinks could be either just due to the procedure itself or maybe a bacterial thing (microscopic colitis maybe?) but other than that things looked OK. Whew!

And I have to say, the whole process was not nearly as bad as I thought it would be! The prep wasn't fun, but it wasn't that bad either. I was *totally* out for the whole thing and don't remember anything at all. The gas afterwards hasn't been bad either...I guess maybe because of my IBS that I've had for so long having D and gas is just no biggie.

Anyway thanks for all of your support and help, it was good to have some BTDT advice yesterday!

Cruiser Bob, how did it go for you?

dlp252 Apprentice

Glad it went okay for you and that things look good!!! Yay!

Teacher, good luck to you as well!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.