Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking Like This Is It


megdog1992ms

Recommended Posts

megdog1992ms Newbie

Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

You might find this article informative

Open Original Shared Link

And from another board:

"Dr. Fasano lists M.S. as an autoimmune disease affected by gluten/too much zonulin/leaky gut. Here's a good article: Open Original Shared Link "

I have read many articles on MS & celiac diet, I think it is now being looked at by a lot of people with MS. You might also try googling it to find other discussions.

my personal opinion is that MS is nothing more than a form of celiac disease that could benefit from a gluten free diet & I think also the elimination of a few other foods like dairy & legumes...

But then again I believe that the human body is perfect but that we just feed it a combination of the wrong foods which causes disease (unless there is a physical defect in addition to...) If you read some of the books out there like Dangerous Grains, Dr Peter Green's "Celiac Disease, A Hidden epidemic" you will get introduced to the evolution of the human species and the changes they have made in their diet. & see that when wheat was introduced to the diet we also began to die younger & have more disease...

TrillumHunter Enthusiast

You certainly could have celiac not MS. For years I faced an MS diagnosis when it was really celiac. I too, had the brain spots. I'm gluten-free for about three months now and feeling fantastic. I was very happy to have celiac and not MS. If you've been eating gluten you can have a simple blood test to find out.

Best wishes to you!

confusedks Enthusiast

If you want to find out if you have celiac...make SURE you don't take gluten out of your diet!

Kassandra

Belinda Meeker Apprentice
Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark

Hey Mark,

Sorry to hear u too maybe have this awful disease, but I'm sure it better then the MS.

My brother-in-law was DXD about 10+ years ago with MS but now his brother (my hubby) is having symptoms of celiac disease (we have a Celiac Spru son age 17) and I too have celiac disease so myabe bro-in-law too?

Not sure but we r going for gene test in September, maybe a suggestion for u too !

U said u ate 2-3 cakes a week? Maybe that was ur problem all along.....son got brain fogs from goodies for years just now found the culprete 15 years later.

Well best of luck to u finding the source and welcome :)

Belinda

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    2. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    3. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    4. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.