Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test For Celiac

Linda56

Recommended Posts

Linda56 Apprentice
Linda56
Posted

I have been wondering about something. About 4 years ago I ask my doctor to check me for Celiacs disease. It might have been 3 years ago. He had me get bloodwork and said it came back negative for celiacs. I was looking through old test results and found about that time I had bloodwork IGG, IGM, IGA. The test IGA came back positive. The doctor said it only had to do with mucus memebrane and nothing else was mentioned. I noticed looking up celiac information somewhere it said something about IGA. I ask a different doctor for test for IGG, IGM, IGA and he never called me back and said there were any positive results. I know those test check all different kinds of thing so it might not mean anything 3 years ago. I don't know what the actual test the doctor did for celiac. Anyone have any thoughts on this?

Linda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Belinda Meeker Apprentice
Belinda Meeker
Posted
I have been wondering about something. About 4 years ago I ask my doctor to check me for Celiacs disease. It might have been 3 years ago. He had me get bloodwork and said it came back negative for celiacs. I was looking through old test results and found about that time I had bloodwork IGG, IGM, IGA. The test IGA came back positive. The doctor said it only had to do with mucus memebrane and nothing else was mentioned. I noticed looking up celiac information somewhere it said something about IGA. I ask a different doctor for test for IGG, IGM, IGA and he never called me back and said there were any positive results. I know those test check all different kinds of thing so it might not mean anything 3 years ago. I don't know what the actual test the doctor did for celiac. Anyone have any thoughts on this?

Linda

Linda,

So u had a neg test too.

Well so did I and a neg biopsy...but I have DH and get severe Diha,and hives from injesting gluten or other wheat products (dr.DXD me with DH says yes it is celiac disease now )

Just trying to say test can be neg and u still have it cuz we do, the best way we found out was to to the Gluten challenge <_<

do u need test to prove it or could u just DX urself?

my hubby's job requires him to have it on paper so he has gene testing done, cuz he says no way is he going back to eating gluten for no one :0

Best of luck to ya !

Belinda

gaylamac Newbie
gaylamac
Posted
I have been wondering about something. About 4 years ago I ask my doctor to check me for Celiacs disease. It might have been 3 years ago. He had me get bloodwork and said it came back negative for celiacs. I was looking through old test results and found about that time I had bloodwork IGG, IGM, IGA. The test IGA came back positive. The doctor said it only had to do with mucus memebrane and nothing else was mentioned. I noticed looking up celiac information somewhere it said something about IGA. I ask a different doctor for test for IGG, IGM, IGA and he never called me back and said there were any positive results. I know those test check all different kinds of thing so it might not mean anything 3 years ago. I don't know what the actual test the doctor did for celiac. Anyone have any thoughts on this?

Linda

Karen B. Explorer
Karen B.
Posted
I have been wondering about something. About 4 years ago I ask my doctor to check me for Celiacs disease. It might have been 3 years ago. He had me get bloodwork and said it came back negative for celiacs. I was looking through old test results and found about that time I had bloodwork IGG, IGM, IGA. The test IGA came back positive. The doctor said it only had to do with mucus memebrane and nothing else was mentioned. I noticed looking up celiac information somewhere it said something about IGA. I ask a different doctor for test for IGG, IGM, IGA and he never called me back and said there were any positive results. I know those test check all different kinds of thing so it might not mean anything 3 years ago. I don't know what the actual test the doctor did for celiac. Anyone have any thoughts on this?

Linda

I think I'd go back to these doctors and ask for copies of my medical history and test results while you were under their care. It's your health, you have to own it.

That may mean calling the doc's office at least twice a week until you get an answer. That may mean doing your research on a website like this one to interpret the results so you'll know if a doc is brushing you off. But you can't check their interpretation of the test results until you have the numbers in front of you.

After you get copies of your test results and have done your research, you need to go to a doc and discuss your case and possibly a referral to a GI doc (if your PC doc isn't up on GI issues).

p.s. I'm not trying to say you aren't doing some of this but everyone needs copies of all medical history and tests. That helps you find out if a health problem is a trend or a fad and it can be critical in spotting how long something might have been a problem.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748
    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.