Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test For Celiac

Linda56

Recommended Posts

Linda56 Apprentice
Linda56
Posted

I have been wondering about something. About 4 years ago I ask my doctor to check me for Celiacs disease. It might have been 3 years ago. He had me get bloodwork and said it came back negative for celiacs. I was looking through old test results and found about that time I had bloodwork IGG, IGM, IGA. The test IGA came back positive. The doctor said it only had to do with mucus memebrane and nothing else was mentioned. I noticed looking up celiac information somewhere it said something about IGA. I ask a different doctor for test for IGG, IGM, IGA and he never called me back and said there were any positive results. I know those test check all different kinds of thing so it might not mean anything 3 years ago. I don't know what the actual test the doctor did for celiac. Anyone have any thoughts on this?

Linda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Belinda Meeker Apprentice
Belinda Meeker
Posted
I have been wondering about something. About 4 years ago I ask my doctor to check me for Celiacs disease. It might have been 3 years ago. He had me get bloodwork and said it came back negative for celiacs. I was looking through old test results and found about that time I had bloodwork IGG, IGM, IGA. The test IGA came back positive. The doctor said it only had to do with mucus memebrane and nothing else was mentioned. I noticed looking up celiac information somewhere it said something about IGA. I ask a different doctor for test for IGG, IGM, IGA and he never called me back and said there were any positive results. I know those test check all different kinds of thing so it might not mean anything 3 years ago. I don't know what the actual test the doctor did for celiac. Anyone have any thoughts on this?

Linda

Linda,

So u had a neg test too.

Well so did I and a neg biopsy...but I have DH and get severe Diha,and hives from injesting gluten or other wheat products (dr.DXD me with DH says yes it is celiac disease now )

Just trying to say test can be neg and u still have it cuz we do, the best way we found out was to to the Gluten challenge <_<

do u need test to prove it or could u just DX urself?

my hubby's job requires him to have it on paper so he has gene testing done, cuz he says no way is he going back to eating gluten for no one :0

Best of luck to ya !

Belinda

gaylamac Newbie
gaylamac
Posted
I have been wondering about something. About 4 years ago I ask my doctor to check me for Celiacs disease. It might have been 3 years ago. He had me get bloodwork and said it came back negative for celiacs. I was looking through old test results and found about that time I had bloodwork IGG, IGM, IGA. The test IGA came back positive. The doctor said it only had to do with mucus memebrane and nothing else was mentioned. I noticed looking up celiac information somewhere it said something about IGA. I ask a different doctor for test for IGG, IGM, IGA and he never called me back and said there were any positive results. I know those test check all different kinds of thing so it might not mean anything 3 years ago. I don't know what the actual test the doctor did for celiac. Anyone have any thoughts on this?

Linda

Karen B. Explorer
Karen B.
Posted
I have been wondering about something. About 4 years ago I ask my doctor to check me for Celiacs disease. It might have been 3 years ago. He had me get bloodwork and said it came back negative for celiacs. I was looking through old test results and found about that time I had bloodwork IGG, IGM, IGA. The test IGA came back positive. The doctor said it only had to do with mucus memebrane and nothing else was mentioned. I noticed looking up celiac information somewhere it said something about IGA. I ask a different doctor for test for IGG, IGM, IGA and he never called me back and said there were any positive results. I know those test check all different kinds of thing so it might not mean anything 3 years ago. I don't know what the actual test the doctor did for celiac. Anyone have any thoughts on this?

Linda

I think I'd go back to these doctors and ask for copies of my medical history and test results while you were under their care. It's your health, you have to own it.

That may mean calling the doc's office at least twice a week until you get an answer. That may mean doing your research on a website like this one to interpret the results so you'll know if a doc is brushing you off. But you can't check their interpretation of the test results until you have the numbers in front of you.

After you get copies of your test results and have done your research, you need to go to a doc and discuss your case and possibly a referral to a GI doc (if your PC doc isn't up on GI issues).

p.s. I'm not trying to say you aren't doing some of this but everyone needs copies of all medical history and tests. That helps you find out if a health problem is a trend or a fad and it can be critical in spotting how long something might have been a problem.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.