Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Use Some Advice..haven't Been On In A While


kimber

Recommended Posts

kimber Enthusiast

Hi everyone

I haven't posted on this board in some time, but come here often to read the posts, get recipes etc

My ds, zachary, will be 4 on Halloween, and was diagnosed with reflux 2 weeks after birth

At 6 mnth I switched from b/f to alimentum and it was a HUGE mistake...once we strarted solids things only got worse

Zach was dairy/soy free but out of desperation and after keeping a food journal, I decided to try him on a gluten-free diet and within a few days responded with less tantrums, more energy etc...I was thrilled

2 weeks later, I don't know what happened, but he completely went downhill

I then realized he might be reacting to corn and eliminated that as well....more problems until I read about fructose intolerance and tried him on an a everything free, low fructose diet

Zach has been to several allergists and has never tested + to anything...we have been to 7-8 GI's and he has had b/w for celiac's etc and all has been neg...GI's pretty much blew me off

Zach is small for his age, but thankfully he is gaining...he is roughly 31 pounds

For the past few days he is eating basic white rice products, chicken and some pears...I don't know what direction to turn?

If I try gluten, even oats...he reacts...dairy/soy...he reacts?

If he has banana...grapes...more reactions

Is anyone in the same boat?

Is it possible to have a gluten and fructose intolerance....

I am very anxious and stressed out that I have been trying to figure this out for almost 4 yrs

Any advice GREATLY appreciated!

Hope all is well with everyone else

Kim


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Kim,

You may not like what I have to say, but here goes.....

There is a reason your son has so many intolerances. The best way to try and figure this out is through alternative testing.

From what I have learned heavy metals, parasites, pesticides, insecticides, fungal, mold or lyme may all contribute to intolerances. Something else is definately going on with him, not just celiac/gluten intolerance.

I don't know where you live but if you can find someone who practices ART/ASYRA that would be your best bet. I've just started with that for my daughter at this point. I live in Washington state so if you are in Western Washington I can give you the name of who I see.....just pm me.

Different foods have different compounds that make them what they are. He could be reacting to a common compound that's in alot of different foods......or more than one compound.

kimber Enthusiast

Thanks so much...I am open to any suggestion

I live in Norther NJ

Good luck on your end, Kim

Kim,

You may not like what I have to say, but here goes.....

There is a reason your son has so many intolerances. The best way to try and figure this out is through alternative testing.

From what I have learned heavy metals, parasites, pesticides, insecticides, fungal, mold or lyme may all contribute to intolerances. Something else is definately going on with him, not just celiac/gluten intolerance.

I don't know where you live but if you can find someone who practices ART/ASYRA that would be your best bet. I've just started with that for my daughter at this point. I live in Washington state so if you are in Western Washington I can give you the name of who I see.....just pm me.

Different foods have different compounds that make them what they are. He could be reacting to a common compound that's in alot of different foods......or more than one compound.

EmmaQ Rookie

Once the gut is irritated food intolerances increase - my thought.

My advice would be to look into The Carbohydrate Specific Diet.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,573
    • Most Online (within 30 mins)
      7,748

    Dawn Nauman
    Newest Member
    Dawn Nauman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.