Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sacroiliac Joint Inflamation


confusedks

Recommended Posts

confusedks Enthusiast

I don't know if this is Celiac related at all because it is a joint problem. I was told by my dr. the other day that I have a problem with my SI joint when they had thought it was a disc bulge that was causing all the problems. It turns out I have to have ANOTHER cortisone epidural for it (I had 2 for the disc bulge which they thought was the problem.) Since the sciatic nerve runs through your pelvic area, it mimics disc pain. It is REALLY painful. I guess my question is does anyone have experience with this, and how did it get better or did it not get better?

Kassandra


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Worriedwife Apprentice

My husband occasionally has difficulty with the sciatic nerve. Since it runs through a very small hole in that area, if it gets the slightest bit inflamed it is VERY painful. The only thing that helps him is rest and ibuprofen. Sometimes ice packs on the hip area helps as well.

Hope you feel better!

mylady4 Rookie

There is a difference between the sacroiliac joint and the sciatic nerve. The joint is a smaller joint in the pevis/lower back that joins your pelvis to your spine. This joint provides your body with the sliding motion it needs for walking. The sciatic nerve is located in the lower lumbar region and usually involves the legs and the pinching of the nerve. I have had problems with both. If you look each of them up on the web it will explain it more. Sciatic nerve pain radiates down my leg and it feel like the leg is going to give out and the hip needs to crack. My sacroiliac joints are pretty much in pain all of the time. It feels like the butt hurts and is located in the low part of my back pelvis. Massage therapy has helped in the past, but I have not gone for a while and it is really bothering me.

I have heard that there is some connection between celiac and arthritis. I have never had a bulged disc so I cannot help you with that. I would try a message therapist but make sure that it is one who is familiar with back problems. See if your doctor can recommend someone.

Hope that helps

Nicole

confusedks Enthusiast

Thanks for the replies. I am in PT and have been for about 5 weeks. The way my Orthopedic Surgeon explained it is that the sciatic nerve runs through the pelvic area and lower back, so a lot of the times SI Joint problems imitate sciatica. I also have a disc bulge, but we don't know which one is really causing the problems. The doctors are so confused also because I'm only 17!!! It seems I'm too young for all of this. ;)

Kassandra

mylady4 Rookie

Your age might make a difference. I had all sorts of problems when I was 17. That is when the sciatic nerve bothered me the most because I think I was just finishing growing and the pelvis was ever expanding to prepare my body for future motherhood (my hips just kept getting wider). I was seeing a chiripractor at the time as well because I had some scoliosis (sp?).

Hope they figure out something soon. It sucks being in pain all the time.

Good Luck

Nicole

confusedks Enthusiast

Hm, that's interesting. I have Schuermann's Disease which is a curve of your spine...different than scoliosis. It is the curve when you look at someone's profile...it should be 20 degrees....mine is 67 both upper and lower. So apparently it has shifted my pelvis and it has shifted. Ugh, I don't know. This just sucks!

Kassandra

tarnalberry Community Regular

I have sacroilliac instability issues, and I'm seeing a chiropractor for it. If you can find one that specializes in structural based correction (posture, traction, and adjustment) I'd recommend it. My problem is a combination of twists along the spine and general tendency in my posture, along with a pelvis that isn't the same 'height' on both sides. (The effect of the last one is - at the spine - as though I had different leg lengths; I don't, the 'length' difference in manifested in the pelvis, but a heel lift is helping there.) Along with that, there's a tilt (not quite scoliosis, though) in the spine that I'm on my way to fixing.

The other important thing, for me, is to not stay too stationary. Chairs are evil! ;) (I have an exercise ball at work due to the sacroilliac issues.)

I'd search out other opinions as well, not that your ortho is bad, but at 17, your spine shouldn't have seen so much wear.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confusedks Enthusiast

My only concern is that I went to a chiropractor for a while and he never noticed my "hunchback and swayback." When you look at me it is fairly noticeable. So, I am afraid to go to another one. I am in PT and that is helping, but the pain was so bad I was in the hospital for 6 days and ugh! I am just so annoyed and the dr. is saying if the PT and epidural injection doesn't help...surgery will be the answer. That scares the crap out of me! It uses bolts and screws because it needs to be stationary. This is just so scary and the pain is so exhausting!

Kassandra

frec Contributor

I am sorry you are in pain. I was also diagnosed with a bulging L5-S1 disk that has morphed into an unstable SI joint this past year. Sometimes I think one malfunction sets off the next one. Anyway, I really want to avoid surgery. I have tried cortisone epidurals but they only help for a while, and if you get them too often the cortisone is bad for the bones. The good thing about epidurals is that SI joint problems are hard to diagnose. If the epidural helps (especially the local anesthetic), you'll know you've been diagnosed correctly.

Someday you might want to investigate prolotherapy. It is a kind of naturopathic epidural--no steroids, usually a glucose or saline solution--and it is supposed to tighten the joint by temporarily inflaming it a bit more and strengthening the ligament. It is rather new and sometimes insurance doesn't cover it. It helped my facet joints and next week I am trying it on my SI joint. Meanwhile I agree with tarnalberry. Chairs are evil. Keep moving, but gently. Swimming makes me feel much better. So does putting ice on the joint for short periods. Good luck.

georgie Enthusiast

I had this pain for years and despite chiros etc it never improved. I have a bulging disc.... I had Prolotherapy 3 years ago for that area and its been a 99% success ! Hardly any pain at all now unless I do something silly and lift a heavy object. The Dr explained that my ligaments were slack and movement was causing friction of nerve fibres hence the pain. Physio will not improve slack ligaments - only Prolotherapy. I had about 20 jabs a session , and 8 sessions - 1 x week . That was 3 years ago now. Good luck.

Nancym Enthusiast

You might want to see a rhuematologist as you could have Ankylosing Spondylitis, it often starts in the lower back and shows up in young folks often. I hope you don't, it isn't a fun disease to have. But if you do, then bookmark this web site: kickas.org and give a starch free diet a try, lots of AS patients are controlling their symptoms with it.

Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.