Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Can You Tell If A Rash Is The Celiac Rash?

gfmolly

Recommended Posts

gfmolly Contributor
gfmolly
Posted

Hi there,

My 3 and 6 year old have both been tested for celiac and came up negative. I had inconclusive blood test results, but respond 100% to a Gluten-free Casein-free diet. Here's my question: this morning my 3 year old was complaining that he was itchy on his bottom, I took a look and he has little red bumps all over his bottom. My family mostly eats gluten-free because I cook. However, yesterday we went to Chicago and I let them have a normal waffle on the car trip because it was easy food to eat in the car, they had pizza at Shedd, and then a grilled cheese at Rainforest Cafe. My 6 year old has had a mild bumpy rash on his arm for the last week, but eats a bit of gluten everyday and has excema.

3 yr old also has trouble with C, but that has been alot better this summer. However, as I said before, he eats mostly Gluten-free Casein-free because of my diet.

I have toyed with the idea of having the 3-year old biopsied, because he seems to react and it seems related to gluten. Please help with your thoughts on whether or not this could be the celiac rash. His pediatrician seems to think that we have ruled that out, and now I feel like I am being hypersensitive to the issue. He also has trouble with C, but that has been alot better this summer. However, as I said before, he eats mostly Gluten-free Casein-free because of my diet. Please help me solve this problem with any advice that you may have! Thanks,

Terri

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dadoffiveboys Rookie
dadoffiveboys
Posted
Hi there,

My 3 and 6 year old have both been tested for celiac and came up negative. I had inconclusive blood test results, but respond 100% to a Gluten-free Casein-free diet. Here's my question: this morning my 3 year old was complaining that he was itchy on his bottom, I took a look and he has little red bumps all over his bottom. My family mostly eats gluten-free because I cook. However, yesterday we went to Chicago and I let them have a normal waffle on the car trip because it was easy food to eat in the car, they had pizza at Shedd, and then a grilled cheese at Rainforest Cafe. My 6 year old has had a mild bumpy rash on his arm for the last week, but eats a bit of gluten everyday and has excema.

3 yr old also has trouble with C, but that has been alot better this summer. However, as I said before, he eats mostly Gluten-free Casein-free because of my diet.

I have toyed with the idea of having the 3-year old biopsied, because he seems to react and it seems related to gluten. Please help with your thoughts on whether or not this could be the celiac rash. His pediatrician seems to think that we have ruled that out, and now I feel like I am being hypersensitive to the issue. He also has trouble with C, but that has been alot better this summer. However, as I said before, he eats mostly Gluten-free Casein-free because of my diet. Please help me solve this problem with any advice that you may have! Thanks,

Terri

Sounds like my kids. They get C and buttocks rash when they eat gluten (and some other things as well). In your case you know they were exposed.. my recent one was accidental. My 7 year old and 3 year old both ate the Tostitos that were made in the factory with the flour chips :(. Both now have a rash covering their entire buttocks and are C'd. Neither ever had a positive blood work and my 3 yr old saw a specialist and had failure to thrive and had TTG tests, endoscopy.. all negative. Since I KNOW the rash on my children is from gluten then yes.. it's a celiac rash! BTW - my father has 60% kidney failure from this and had 30 years of reflux misdiagnosed so it is VERY important if you have a reaction to keep them gluten-free if at all possible (and not cheat!) :) GOOD LUCK!

ItchyMeredith Contributor
ItchyMeredith
Posted

I would take your child to the pediatrician and get him/her a skin biopsy at a dermatologist ASAP. If it is DH a skin biopsy is all you need to confirm celiac and he/she won't need have to have an endoscopy. I have DH and it is hard to say what is and what isn't DH. Most of it looks like blisters but some of it looks like hives too. A skin biopsy can tell you.

Good Luck!

gfmolly Contributor
gfmolly
Posted
  • Author
I would take your child to the pediatrician and get him/her a skin biopsy at a dermatologist ASAP. If it is DH a skin biopsy is all you need to confirm celiac and he/she won't need have to have an endoscopy. I have DH and it is hard to say what is and what isn't DH. Most of it looks like blisters but some of it looks like hives too. A skin biopsy can tell you.

Good Luck!

Thanks, I had no idea that they could biopsy the skin! It sure does seem suspect considering the circumstances and it is very itchy!

Terri

ItchyMeredith Contributor
ItchyMeredith
Posted

Mine was mostly painless. They numb the area with a shot and then take a tiny piece of skin next to the blister (not on the blister). Then a lab looks for IgA deposits.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,694
    • Most Online (within 30 mins)
      7,748
    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.