Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Again?


barbara123

Recommended Posts

barbara123 Apprentice

Hey everyone, hope all is well for yall!!

Ok have been under major stress (my daugher has been running from the law. she left her 3 kids and just took off told me she was going underground and going to change her name, she is a alcoholic and in a bad way now, she text messaged me yesterday and said she got raped in a park the night before last. It is so hard to think of your own kids living like that. Yesterday, I was reading the board and someone mentioned eating Progresso clam chowder and that it was gluten free. I had some so I called the manufacture myself to make sure. Thay told me it was gluten free so I tried it.

I only have a few staples that I eat mostly all the time so I dont think it was anything else I ate..Started feeling bad pretty much as soon as I ate it. Last night I broke out with DH.Its so painful I can hardly sit. Feel to bad to do anything, so now laying on my belly :(

I get real upset at my tummy, and cant eat anything!!! Drinking as much water as I can but even that makes me feel bad.

Sorry for the post kind of confusing even for me to read but feel to bad to redo it. Does anyone have any ideas to help me. Only been gluten-free for 21/2 months so I know I still make mistakes. my mind just wont work anymore..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

I'm sooo sorry you are going through all of that! Alcoholism is very hard to deal with and effects everyone around teh person with the disease. I've been there...my son's father!

Stress definetly could be amplifying your symptoms!!!! Are you sure everything else is gluten-free????

Again, I'm sorry and we are all here for you if you need to vent/talk/cry!

oceangirl Collaborator

So sorry for your woes- that is TOO hard! The stress could do it alone and then, if you're not used to the Progresso clam chowder", you could just be reacting because it's new. I find when I'm introducing new foods after so long on a strict diet that it takes awhile for me to get used to them. Assuming you've checked cosmetics, shampoos, hand creams and all that...

Peace to you and feel better soon!

lisa

barbara123 Apprentice

thank you so much everyone!!

i_mommy

Yes, it is so hard, she is only 25 years old. And in such a bad place. I am pretty sure that I am totally gluten-free, shampoo's , cream rinse, make up (not that i wear much) pots, pans spoons, can opener, cutting board, soaps, i just dont know what else to do. Guess it is just stress, I am not sleeping well, when she does text me its in the middle of the night, so i sleep with one ear on the phone. I am so afraid for her life. Not to mention the grandkids, they are so upset, the 6 year old boy started pooping his pants. he had not done that since 2. They live 2 hours away,its not that its that far I just feel so bad i have a hard time making it up there. :(

oceangirl

That is something I never thought of. I dont think I want to try it again. I break out with DH on my right buttock. Not something you want to live with. yes i have checked everything that I come into contact with. As far as I know of. Pretty new to this though, only 2 1/2 months.

Thanks for letting me rant!! BARB :huh:

barbara123 Apprentice

thank you so much everyone!!

i_mommy

Yes, it is so hard, she is only 25 years old. And in such a bad place. I am pretty sure that I am totally gluten-free, shampoo's , cream rinse, make up (not that i wear much) pots, pans spoons, can opener, cutting board, soaps, i just dont know what else to do. Guess it is just stress, I am not sleeping well, when she does text me its in the middle of the night, so i sleep with one ear on the phone. I am so afraid for her life. Not to mention the grandkids, they are so upset, the 6 year old boy started pooping his pants. he had not done that since 2. They live 2 hours away,its not that its that far I just feel so bad i have a hard time making it up there. :(

oceangirl

That is something I never thought of. I dont think I want to try it again. I break out with DH on my right buttock. Not something you want to live with. yes i have checked everything that I come into contact with. As far as I know of. Pretty new to this though, only 2 1/2 months.

Thanks for letting me rant!! BARB :huh:

mamaw Community Regular

Stress could be causing alot of problems... also are you sure shellfish is an okay thing for you to eat? Tons of people cannot do any type of shellfish...... plus creamed soups can cause reactions for some.

My brother is a recovered elky for 26 years now.... can you get her into a rehab center? even if you have to have her picked up by the police for loitering in a public place, someday she will thank you for it. Use tough love or she may ended up deceased... We did this after years of drug & booze abuse.. my mom would give him money for food cause his cabinets were bare because he used his $$$$ for booze & drugs, finally I had a police officer arrest him for some dumb little thing & committed him for three days ( law in our state) & then sent him off to rehab . He had no ins. so I went thru AA & they helped pay ...

good luck & I'll say a prayer for you..

mamaw

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...