Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Again?


barbara123

Recommended Posts

barbara123 Apprentice

Hey everyone, hope all is well for yall!!

Ok have been under major stress (my daugher has been running from the law. she left her 3 kids and just took off told me she was going underground and going to change her name, she is a alcoholic and in a bad way now, she text messaged me yesterday and said she got raped in a park the night before last. It is so hard to think of your own kids living like that. Yesterday, I was reading the board and someone mentioned eating Progresso clam chowder and that it was gluten free. I had some so I called the manufacture myself to make sure. Thay told me it was gluten free so I tried it.

I only have a few staples that I eat mostly all the time so I dont think it was anything else I ate..Started feeling bad pretty much as soon as I ate it. Last night I broke out with DH.Its so painful I can hardly sit. Feel to bad to do anything, so now laying on my belly :(

I get real upset at my tummy, and cant eat anything!!! Drinking as much water as I can but even that makes me feel bad.

Sorry for the post kind of confusing even for me to read but feel to bad to redo it. Does anyone have any ideas to help me. Only been gluten-free for 21/2 months so I know I still make mistakes. my mind just wont work anymore..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

I'm sooo sorry you are going through all of that! Alcoholism is very hard to deal with and effects everyone around teh person with the disease. I've been there...my son's father!

Stress definetly could be amplifying your symptoms!!!! Are you sure everything else is gluten-free????

Again, I'm sorry and we are all here for you if you need to vent/talk/cry!

oceangirl Collaborator

So sorry for your woes- that is TOO hard! The stress could do it alone and then, if you're not used to the Progresso clam chowder", you could just be reacting because it's new. I find when I'm introducing new foods after so long on a strict diet that it takes awhile for me to get used to them. Assuming you've checked cosmetics, shampoos, hand creams and all that...

Peace to you and feel better soon!

lisa

barbara123 Apprentice

thank you so much everyone!!

i_mommy

Yes, it is so hard, she is only 25 years old. And in such a bad place. I am pretty sure that I am totally gluten-free, shampoo's , cream rinse, make up (not that i wear much) pots, pans spoons, can opener, cutting board, soaps, i just dont know what else to do. Guess it is just stress, I am not sleeping well, when she does text me its in the middle of the night, so i sleep with one ear on the phone. I am so afraid for her life. Not to mention the grandkids, they are so upset, the 6 year old boy started pooping his pants. he had not done that since 2. They live 2 hours away,its not that its that far I just feel so bad i have a hard time making it up there. :(

oceangirl

That is something I never thought of. I dont think I want to try it again. I break out with DH on my right buttock. Not something you want to live with. yes i have checked everything that I come into contact with. As far as I know of. Pretty new to this though, only 2 1/2 months.

Thanks for letting me rant!! BARB :huh:

barbara123 Apprentice

thank you so much everyone!!

i_mommy

Yes, it is so hard, she is only 25 years old. And in such a bad place. I am pretty sure that I am totally gluten-free, shampoo's , cream rinse, make up (not that i wear much) pots, pans spoons, can opener, cutting board, soaps, i just dont know what else to do. Guess it is just stress, I am not sleeping well, when she does text me its in the middle of the night, so i sleep with one ear on the phone. I am so afraid for her life. Not to mention the grandkids, they are so upset, the 6 year old boy started pooping his pants. he had not done that since 2. They live 2 hours away,its not that its that far I just feel so bad i have a hard time making it up there. :(

oceangirl

That is something I never thought of. I dont think I want to try it again. I break out with DH on my right buttock. Not something you want to live with. yes i have checked everything that I come into contact with. As far as I know of. Pretty new to this though, only 2 1/2 months.

Thanks for letting me rant!! BARB :huh:

mamaw Community Regular

Stress could be causing alot of problems... also are you sure shellfish is an okay thing for you to eat? Tons of people cannot do any type of shellfish...... plus creamed soups can cause reactions for some.

My brother is a recovered elky for 26 years now.... can you get her into a rehab center? even if you have to have her picked up by the police for loitering in a public place, someday she will thank you for it. Use tough love or she may ended up deceased... We did this after years of drug & booze abuse.. my mom would give him money for food cause his cabinets were bare because he used his $$$$ for booze & drugs, finally I had a police officer arrest him for some dumb little thing & committed him for three days ( law in our state) & then sent him off to rehab . He had no ins. so I went thru AA & they helped pay ...

good luck & I'll say a prayer for you..

mamaw

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748

    volivier
    Newest Member
    volivier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
    • Wheatwacked
      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.