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Alaska Rookie

Does anyone else have trouble holding down a regular job? I am a Children's Librarian and just got offered a great job but after a few day's had to opt out because I'm just not a reliable employee anymore. I'm wondering if I'll ever be able to function in the world again. I was also just told I have candida as well, which doesn't help. Is this as good as it gets or can you really get better. I've never had many of the GI trouble, thank goodness. Mostly the neuro problems, brain fog, left side trouble. Has anyone had any success dealing with this?

Just wanted to let you people know I think you're the greatest. This certainly doesn't effect the heart and kindness.

The Greeks always say it's the heart that matters! That's definitely evident here. Efkaristo everyone.


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GFhopeful Rookie

Definitely something I'm worried about right now too as I am supposed to be going back to work full-time after the summer off. No stamina, off days, and continued issues make it hard for me to believe that I can be the reliable employee that I was a short while ago. Don't know what I'll do yet but am going to try it out and see from there. I have an upcoming appointment at Mayo Clinic to hopefully figure out if this is Celiac recovery for me or if I have something else going on too. Maybe that's why we aren't healing as quickly. I hope that this is temporary though and a part of getting better. Good luck to you.

gfgypsyqueen Enthusiast

After years of traditional drs just not figuring out my health problems or brushing me off with the standard "It's female problems!" etc. I now look heavily to alternative Drs. Go to traditional Drs for certain critical issues like cancers etc, but the alternative holistic drs are the ones who know how to make your body work together and work properly. Get them to recommend some high quality good for your particular body vitamins and minerals and you will see a world of difference. I have always had the best luck with the holistic drs recommended from healthfood stores or someone you know.

Hope you feel better soon, and yes, your body will settle down and you will be able to hold down a normal job and be a healthy person again. Sometimes it just takes a while to get your body to heal and start functioning again.

SillyBoo Newbie

I also found it difficult to work a regular full-time job. I was diagnosed last fall, while out on medical leave (I couldn't work at all at that point). I ended up quitting my job after a few very frustrating months back at work. My brain fog and fatigue, although better once off gluten, interfered too much for me to do a good job. So, I am now doing consulting work part-time. It is much better, but I still have difficulty with deadlines when I'm not feeling great. I am hoping this will get better over time.

I hope you are able to find something that works better for you (part-time? flexible hours?). How long have you been gluten-free? I am also curious about how others manage to work, and if it does get better after the first year or two.

blueeyedmanda Community Regular

I found I had a much worse time prediagnosis at work than after. Once I got onto the diet the GI problems I was having which was what was the problem at my job more or less cleared up. This was a help. The rest of the problems eventually worked out and I was fine. I found what helped me was getting my body on a routine. At the time I was working 2nd shift, so I made sure to eat lunch at a certain time and to stick to it. Not sure if this will help or not. Another thing that was a big bother for me was worrying...worrying if I would get sick or if everything would fall apart.

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    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
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    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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