Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

We Need Help!

sully

Recommended Posts

sully Newbie
sully
Posted

We are new to the gluten free diet. Our son is 2 years old and has serious balance and gait issues so we are trying it for a while. Can you tell us some ingredients we should be looking out for on ingredients lists that don't specifically say wheat or gluten but could contain gluten. We have emailed some companies to see if they are gluten free and they say to read the label, but we don't know what some the ingredients are most of the time. Things like, maltodextrin, dextrose, caramel color, natural flavors, turmeric, natural pork flavor. I could go on forever. Is there a list somewhere that tells you what these things are?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

Hi Sully, there's a list on the homepage of this website, it's in the list of links and it says it's a link for a list of ok and not ok ingredients. You might want to print it out and keep it in your purse. There's also a person here named NoGluGirl who has a list of stuff that's ok at Walmart, but ingredients change, so always read labels, even if you bought the same thing a week ago!

JennyC Enthusiast
JennyC
Posted

Your BEST bet is to stick with companies that will not hide their gluten in vague ingredients. I will post a link to those companies. You should call these companies yourself. It gives you good practice and then you know for sure. Besides, some of the companies might not have the best policies about labeling gluten (Like Campbell's?). Anyway, the list is pretty actuate--not absolutely perfect. My favorite mainstream companies are Kraft and General Mills. Other companies have good lists like Ora-Ida, Hormel, Frito-Lay, and so on. If there are other products that you love and you suspect that they may be gluten free, then you should call the company.

Now to really answer your question. The major ingredients that I watch for are natural flavoring, flavoring, spices, and broth. Modified food starch is more about personal preference. If modified food starch is made out of wheat it has to be disclaimed, as wheat is one of the top 8 allergens. In theory, MFS could be made out of barley, rye or oats, but it is basically unheard of.

Here's my policy. I try to stick with companies that either label their products gluten free or will clearly list their ingredients. I also use some gluten free lists provided by companies. I mostly buy name brands, or Walmart brands. If I pick up a product that does not fall into the above categories and it contains an ingredient like natural flavorings, flavorings or broth I put it back and choose an alternative product.

Open Original Shared Link

Don't worry, it gets much easier to buy food as time goes on. :)

Guest j_mommy
Guest j_mommy
Posted

Here is the list I take shopping with me!

https://www.celiac.com/st_prod.html?p_prodi...-30107237049.ca

adufek Newbie
adufek
Posted
We are new to the gluten free diet. Our son is 2 years old and has serious balance and gait issues so we are trying it for a while. Can you tell us some ingredients we should be looking out for on ingredients lists that don't specifically say wheat or gluten but could contain gluten. We have emailed some companies to see if they are gluten free and they say to read the label, but we don't know what some the ingredients are most of the time. Things like, maltodextrin, dextrose, caramel color, natural flavors, turmeric, natural pork flavor. I could go on forever. Is there a list somewhere that tells you what these things are?

The Canadian Celiac Society (www.celiac.ca) has a poket dictionary that fits easily in your purse for when your shopping and lists all the ingredients you can and cannot have on the gluten free diet, very handy, I love mine. I'm not sure where you live but if you live in Canada you can order through the site (Products - Booklets). Hope this helps.

happygirl Collaborator
happygirl
Posted

See this link, from a very recent thread: Open Original Shared Link

Aligray Apprentice
Aligray
Posted

Sully,

I used the safe list and forbidden list from this site. It is printed out and i refer to it regularly.

I know it can be EXTREMELY OVERWHELMING at first but stick with it! I ate so little when i was first diagnosed. I NEVER shopped at walmart b/c i was terrified to read the labels.

BUT BUT BUT.......

As time goes on, and as you familiarize yourself with the lists then it becomes second nature. I can read a label in 5.5 seconds now :lol: Serious!

Good luck to you guys! It gets better! Hang in there!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,671
    • Most Online (within 30 mins)
      7,748
    Paul1567
    Newest Member
    Paul1567
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.