Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

We Need Help!


sully

Recommended Posts

sully Newbie

We are new to the gluten free diet. Our son is 2 years old and has serious balance and gait issues so we are trying it for a while. Can you tell us some ingredients we should be looking out for on ingredients lists that don't specifically say wheat or gluten but could contain gluten. We have emailed some companies to see if they are gluten free and they say to read the label, but we don't know what some the ingredients are most of the time. Things like, maltodextrin, dextrose, caramel color, natural flavors, turmeric, natural pork flavor. I could go on forever. Is there a list somewhere that tells you what these things are?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Hi Sully, there's a list on the homepage of this website, it's in the list of links and it says it's a link for a list of ok and not ok ingredients. You might want to print it out and keep it in your purse. There's also a person here named NoGluGirl who has a list of stuff that's ok at Walmart, but ingredients change, so always read labels, even if you bought the same thing a week ago!

JennyC Enthusiast

Your BEST bet is to stick with companies that will not hide their gluten in vague ingredients. I will post a link to those companies. You should call these companies yourself. It gives you good practice and then you know for sure. Besides, some of the companies might not have the best policies about labeling gluten (Like Campbell's?). Anyway, the list is pretty actuate--not absolutely perfect. My favorite mainstream companies are Kraft and General Mills. Other companies have good lists like Ora-Ida, Hormel, Frito-Lay, and so on. If there are other products that you love and you suspect that they may be gluten free, then you should call the company.

Now to really answer your question. The major ingredients that I watch for are natural flavoring, flavoring, spices, and broth. Modified food starch is more about personal preference. If modified food starch is made out of wheat it has to be disclaimed, as wheat is one of the top 8 allergens. In theory, MFS could be made out of barley, rye or oats, but it is basically unheard of.

Here's my policy. I try to stick with companies that either label their products gluten free or will clearly list their ingredients. I also use some gluten free lists provided by companies. I mostly buy name brands, or Walmart brands. If I pick up a product that does not fall into the above categories and it contains an ingredient like natural flavorings, flavorings or broth I put it back and choose an alternative product.

Open Original Shared Link

Don't worry, it gets much easier to buy food as time goes on. :)

Guest j_mommy

Here is the list I take shopping with me!

https://www.celiac.com/st_prod.html?p_prodi...-30107237049.ca

adufek Newbie
We are new to the gluten free diet. Our son is 2 years old and has serious balance and gait issues so we are trying it for a while. Can you tell us some ingredients we should be looking out for on ingredients lists that don't specifically say wheat or gluten but could contain gluten. We have emailed some companies to see if they are gluten free and they say to read the label, but we don't know what some the ingredients are most of the time. Things like, maltodextrin, dextrose, caramel color, natural flavors, turmeric, natural pork flavor. I could go on forever. Is there a list somewhere that tells you what these things are?

The Canadian Celiac Society (www.celiac.ca) has a poket dictionary that fits easily in your purse for when your shopping and lists all the ingredients you can and cannot have on the gluten free diet, very handy, I love mine. I'm not sure where you live but if you live in Canada you can order through the site (Products - Booklets). Hope this helps.

happygirl Collaborator

See this link, from a very recent thread: Open Original Shared Link

Aligray Apprentice

Sully,

I used the safe list and forbidden list from this site. It is printed out and i refer to it regularly.

I know it can be EXTREMELY OVERWHELMING at first but stick with it! I ate so little when i was first diagnosed. I NEVER shopped at walmart b/c i was terrified to read the labels.

BUT BUT BUT.......

As time goes on, and as you familiarize yourself with the lists then it becomes second nature. I can read a label in 5.5 seconds now :lol: Serious!

Good luck to you guys! It gets better! Hang in there!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.