Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Concerned About The Rash


crittermom

Recommended Posts

crittermom Enthusiast

I have been reading quite a bit about rashes that appear in Celiacs over the last week. Many of them sound like the rash Katharine has on her butt. It comes and goes sometimes worse than others. Tonight there were little red bumps all over her little butt and sometimes is it accompanied but a red patch above her butt crack on her lower back upper butt. I thought it was heat rash as she wears a pullup at night but now I am starting to reconsider. Does this sound like a rash related to Celiacs? Is there anything I should or can do for it? Is it harmful to her or just annoying? Sometimes it itches sometimes she doesn't even know it's there. Is this rash the same as DH or just a break out due to being glutened? (Most of you already know about the Mrs. Butterworth's mix up.....gosh I am still so mad at myself for that!!!!! :angry: ) Anyway any advice, as always will be EXTREMELY appreciated! TIA

Melissa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Hadleygirl02 Rookie

I don't really have an answer, but your daughter's rash sounds like my daughter's rash. She is 5 and still wears pull-ups at night, as well. The rash first appeared about a year and a half ago. We had just been on vacation in the Carribbean, and I first assumed it was some sort of thing she had picked up on the beach--sand fleas, irritation from a wet bathing suit, irritation from sand, etc. I took her to the ped. after it didn't go away within a week or so, and he prescribed an antibacterial cream. Didn't work. Then we tried antibiotics and lotrimine (sp) cream. Also, did not work.

At this point, the rash really did not bother her so I dropped the matter. It would come and go...always present to some extent, but sometimes would be worse than others.

I really began to think it was just irritation from her pull-ups at night. Switched brands a couple times.

Then we went back to the doctor about 6 months ago and tried an anti-yeast cream.

Looking back I am IRRITATED with her ped (who I otherwise really do like and trust!) because he never took a swab or skin biopsy.

This is where the "Bad mom" feeling comes into play. since the rash's itchiness is MINOR, I let it go. I think Hadley got used to it, and I got used to seeing the red, pimply spots...

I just chalked it up to something she would have to deal with until she outgrew wearing pull-ups at night.

Fast forward to last week....when we had her appt. with the pediatric gastro for some celiac symptoms....they informed me that the rash can go along with Celiac Disease. BUT I will say..she does not have the classic symptoms of DH in that her rash really does not itch much at all. It does a little bit, but not the way DH is *supposed to.* From everything I have read, DH is unbearably itchy and painful, and Hadley's just ISN'T. On a scale of 1-10, 10 being itchiest, I would give it maybe a 2 or 3.

They took a skin swab at her appt. and said we would have results in 10 days.

Her blood panel for Celiac should be back today or tomorrow.

ptkds Community Regular

My dd had a rash in her diaper area before going gluten-free. But now that she is gluten-free, it is gone. If she gets glutened, she sometimes gets the rash again, but it goes away in a day or 2.

ptkds

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.