Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elevated Ana


de caps

Recommended Posts

de caps Contributor

I just had my routine celiac blood work done.My celiac test were all normal. My GI doctor ordered an ANA and it was extremely elevated. 1: 1280 ( less than 1:40 is considered negative.) She wants me to see a Rheumatologist to rule out other autoimmune disease like Lupus since having one autoimmune disease puts you at risk for another. I don't have any of the symptoms for Lupus. I do have lots of bone and muscle pain. Some mornings it is very difficult to get out of bed and with three young children it is hard. Has anyone else had an elevated ANA? I can't get an appointment with the rheumatologist until October. I would appreciate any advise or thoughts on this. My husband is very worried about what this could mean.

Thanks for your help.

Donna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NewB Newbie

...Gobs of people lack certain enzyemes that diget certain foods..it's genetic!!! ANA is buildup of of plasma born proteins--peptides--like fibrins or CRPs...changing your diet alone may not be enough (God I sound like a commercial...but honestly, I have been trying to get feedback about this new enzymatic treatment --newly posted) and it has really worked for me me. I had the shooting pains in the arms and hands....Enzemedica...look at their ingredients, go to Wikipiedia, reference all the open source stuff and then decide.......

trents Grand Master

What does ANA stand for?

Steve

skbird Contributor

I showed an elevated ANA (Anti-Nuclear-Antibodies) of 1:320 a couple of years back and was sent off to a rheumatologist. No further testing showed anything. Apparently it's not uncommon for a healthy person to have an elevated ANA.

I did find out this summer I have Interstitial Cystitis which some think is autoimmune - there doesn't seem to be any consensus. I'm wondering if having IC would elevate ANA? Or if my elevated ANA means pretty much nothing specific.

For those who don't know, ANA is measured as your sample is diluted, so the "normal" reading of 1:40 is only three dilutions from 1:320 (1:40, then 1:80, then 1:160, then 1:320), and 1:1280 is two more dilutions from 1:320 (1:320, 1:640, and then 1:1280). So the jump from 1:40 to 1:1280 isn't quite as scary. :)

There are some links of positive ANA to fibromyalgia, however. Your mention of bone and muscle pain could be consistent with that. However, really hard to know.

Good luck!

de caps Contributor

I was told that I had fibromyalgia by a rheumatologist 2yrs ago. At that time my ANA was only slightly positive (1:80). He didn't think much about my ANA then.

Thanks for your help.

Donna

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 posted a topic in Related Issues & Disorders
      0

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    3. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    4. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags

    5. - KelleyJo commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,373
    • Most Online (within 30 mins)
      7,748

    Alexis Parker
    Newest Member
    Alexis Parker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.