Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Additives And Preservatives


Kaycee

Recommended Posts

Kaycee Collaborator

I get quite frustrated at times.

A lot of people claim that once they go gluten free their problems all clear up just like that. I think that is wonderful, but regretfully that did not happen to me.

With me it is different. I spent quite a few months struggling with the diet, eating as gluten free as I could, but there were things that kept getting me.

In an effort to understand or to better know what the problems were, I went on an elimination diet and I went nearly compeltely additive free, and I thought by doing this I would be able to pin point any possible problems. It worked quite well. My stomach and things settled, but then when I increased the dosage of prepared foods, I turned into a bit of a mess and thought it was all gluten realted, so I would cut back on the additive laden food, only to improve again.

I have never had an aversion to additives in the past, my motto seemed to be if it is food, it is fine. I was just getting a wee bit paranoid that the additives might all be made with gluten. I tell you I was quite paranoid, and people would look at me sideways with disbelief.

In hindsight, I don't have any other particular food problems. The elimination diet proved I can eat peanuts, dairy and legumes and drink coffee without any problems. But every now and then I will eat something that I re-act to. I don't think it is a gluten reaction, but now more a reaction that gives me migrains and or keeps me awake and restless at night. I can usually relate this back to eating prepared food, like coke, sauces, prepared rice dishes, icecreams etc. These are all processed food items and I do wonder whether I have an intolerance to some additives and preservatives. These are all seemingly gluten free products.

Does this happen to anyone else? Is there any particular additive that could be the main culprit?

Maybe it is all in my head.

Cathy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NewB Newbie

You are 110 per cent certain that you are not casein intolerant??? I personally avoid all packaged foods...a wee bit of soy sauce can set me off.....the gut is really "old" and it doesn't react well to all these "modified this and thats" and i have stared on digestive enzyemes

gfmolly Contributor

I'm with newB. Dairy is jsut too much of an issue for me. However, I seem to be having trouble with packaged food as well. I don't think it is gluten for me, but maybe your tummy is just taking it's time to heal, and you have developed other intolerances for the time-being. When I ate only fresh foods, I do really well. Add in packaged stuff, i don't know what to link it to!

Kaycee Collaborator

Dairy is not the problem for me, as I eat a bit of cheese and milk and hyoghurts and my stomach seems to have healed. I hardly have issues with it.

Yesterday was a bad day, I had a major headache/migraine.

I still think it is additives for me, but which ones cause the worse problems, msg or what, because like tcat, I do find when I eat fresh foods and meals prepared from scratch, I am more often than not fine, but when I add packaged food, I find it hard to find the cluprit and find myself slowly going downhill.

Cathy

Rachel--24 Collaborator

Some things you might want to look into...

MSG

Aspertame

Sulfites

Food colorings/dyes (i.e. red 40)

MSG and Sulfites are present in nearly all processed foods....although not clearly labeled.

You would have to do some research to get a full understanding of how to identify these chemicals in processed foods.

Generally, when people are reacting to these things...its not just one chemical that they're having problems with.

I avoid all of this stuff...High Fructose Corn Syrup is another one I would stay away from.

Yellow Rose Explorer
I get quite frustrated at times.

A lot of people claim that once they go gluten free their problems all clear up just like that. I think that is wonderful, but regretfully that did not happen to me.

With me it is different. I spent quite a few months struggling with the diet, eating as gluten free as I could, but there were things that kept getting me.

In an effort to understand or to better know what the problems were, I went on an elimination diet and I went nearly compeltely additive free, and I thought by doing this I would be able to pin point any possible problems. It worked quite well. My stomach and things settled, but then when I increased the dosage of prepared foods, I turned into a bit of a mess and thought it was all gluten realted, so I would cut back on the additive laden food, only to improve again.

I have never had an aversion to additives in the past, my motto seemed to be if it is food, it is fine. I was just getting a wee bit paranoid that the additives might all be made with gluten. I tell you I was quite paranoid, and people would look at me sideways with disbelief.

In hindsight, I don't have any other particular food problems. The elimination diet proved I can eat peanuts, dairy and legumes and drink coffee without any problems. But every now and then I will eat something that I re-act to. I don't think it is a gluten reaction, but now more a reaction that gives me migrains and or keeps me awake and restless at night. I can usually relate this back to eating prepared food, like coke, sauces, prepared rice dishes, icecreams etc. These are all processed food items and I do wonder whether I have an intolerance to some additives and preservatives. These are all seemingly gluten free products.

Does this happen to anyone else? Is there any particular additive that could be the main culprit?

Maybe it is all in my head.

Cathy

Could be MSG check out this site Open Original Shared Link symptoms of MSG toxicity

Also check out around page 7 of the post Oh my gosh I might be on to something. There is lots of info on MSG there.

Yellow Rose

irish daveyboy Community Regular

Hi 'Kaycee',

.

Reading through your post, yes people do have reactions to additives and there is no Gluten involved.

.

Here is an extract of a post I made some time ago.

.

People who are sticking to a gluten-free diet and still suffering some or all of the symptoms, should look at food additives in processed and canned products.

.

We all know that modified starch could mean anything if it is not specified.

.

There is a suggesting that some additives and E numbers can cause similar type symptoms to

Celiac Disease (for those that may be susceptible) for example:

Phenylephine: Side effects are nausea, stomach upset, loss of appetite, headache, chest pain.

Zinc: Toxic doses cause vomiting, diarrhea, stomach irritation, depressed immune function, anaemia.

Quinine Sulphate: headaches and nausea.

Taurine: excessive consumption can cause diarrhea.

E110: Sunset Yellow, side effects hives, rhinitis, nasal congestion, allergies, abdominal pain, nausea, vomiting indigestion, distaste for food.

E132: Indigotine, may cause nausea, vomiting, skin rash, breathing problems and other allergic reactions.

E219: Tert-ButyHydroQuinone, may cause nausea, vomiting, delirium. (a dose of 5g is considered fatal)

E412: Guar gum, can cause nausea, flatulence, cramps.

E440: Pectin, large quantities may cause temporary flatulence and intestinal discomfort.

E622: Monopotassium glutamate, can cause nausea, vomiting, diarrhea, abdominal cramps.

E924: Potassium bromate, large quantities can cause nausea, vomiting, diarrhea, pain.

.

.

You may want to read through this.

.

Open Original Shared Link

.

.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
busybee629 Newbie

Here is another website on MSG. I have found this to be quite helpful. I find if I make everything from scratch I feel much better. Most of the gluten free products have xanthen gum in them, which has free glutamates( which is in MSG) in it. According to the information I read in this websites book ,there is a long list of names of glutamate containing foods. Things like gelatin capules. It is in everything.

I have switched to agar agar that I get from an asian market for my gluten free baking and it works so much better for me.

Here is the website Open Original Shared Link They are even great about answering questions about msg and offer a email address to contact them.

Hope this information is helpful. I have added the list below that shows foods that contain msg.

Debbie

Hidden Names for MSG

Foods always contain MSG when these words are on the label:

MSG, Gelatin, Calcium Caseinate

Monosodium glutamate, Hydrolyzed Vegetable Protein (HVP) Textured Protein

Monopotassium glutamate Hydrolyzed Plant Protein (HPP) Yeast Extract

Glutamate Autolyzed Plant Protein, Yeast food or nutrient

Glutamic Acid, Sodium Caseinate, Autolyzed Yeast

Foods made with the following products often contain MSG.

Malted Barley (flavor) Flavors, Flavoring Modified food starch

Barley malt, Reaction Flavors Rice syrup or brown rice syrup

Malt Extract or Flavoring Natural Chicken, Beef, or Pork, Flavoring "Seasonings" (Most assume this means salt, pepper, or spices and herbs, which sometimes it is.) Lipolyzed butter fat

Maltodextrin Soy Sauce or Extract "Low" or "No Fat" items

Caramel Flavoring (coloring) Soy Protein Corn syrup and corn syrup solids (some companies use another process to make their product, saying it is MSG free)

Stock Soy Protein Isolate or Concentrate Citric Acid (when processed from corn)

Broth, Cornstarch, Milk Powder

Bouillon, Flowing Agents, Dry Milk Solids

Carrageenan, Wheat, rice, or oat protein Protein Fortified Milk

Whey Protein or Whey Anything enriched or vitamin enriched Annatto

Whey Protein Isolate or Concentrate Protein fortified "anything" Spice

Pectin, Enzyme modified "anythng" Gums

Protease Ultra-pasteurized "anything" Dough Conditioners

Protease enzymes Fermented "anything" Yeast Nutrients

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.