Stool Testing

[Hadleygirl02]

My daughter had a blood test last week--we are still waiting on the celiac panel to come back.

I also did a 3-day stool collection and those results are in-NORMAL.

I am getting concerned.

Not that I WANT her to have Celiac Disease, but at this point, I just want an ANSWER. In a weird way, I felt some sense of relief when she saw the gastro and they said they strongly suspected celiac..just because it is an explanation! And there is a solution!

Is the stool testing a good indicator of having celiac or not?

I think, as parents, we can take any answer that might be thrown at us, but its the WAITING and NOT KNOWING that gets to us.

The gastro said if all the celiac tests come back negative, we would move on to an ultrasound and possibly an intestinal biopsy, etc.

My big fear is that we will never get an answer as to why she has so many GI issues.

Anyone had a stool test come back negative for celiac, but still a positive blood test?

[Juliet]

We did a 3 day stool test, too, but it wasn't to test for Celiac Disease. It was to test for parasites and blood. Were you doing the stool test from Enterolab or was it a stool test prescribed by your doctor? The stool test from your doctor most likely was the same we did. It was a real fun one, too (don't know the emoticon to express sarcasm or else I'd insert it here)!

[Hadleygirl02]

We did a 3 day stool test, too, but it wasn't to test for Celiac Disease. It was to test for parasites and blood. Were you doing the stool test from Enterolab or was it a stool test prescribed by your doctor? The stool test from your doctor most likely was the same we did. It was a real fun one, too (don't know the emoticon to express sarcasm or else I'd insert it here)!

Oh. Maybe that was what we did too. Yes, it was through the pediatric gastro.

I *thought* they were also checking for fat levels--which can indicate celiac disease?

But, anyway, no it was not through Enterolab, just our doctor.

HA! It was super fun! I wonder if it was the same as yours? I was given three different containers for each day (3 days total.) Two of the containers for each day were filled with some sort of liquid, and the other one was empty, and had to be frozen. YUCK.

[Juliet]

Very similar, though I didn't have to freeze only refrigerate, and I also had to smear portions onto different swabs all three days, and each day I had to do it from one sample in three places - beginning middle and end.

You know, between this, the vomitting, insanely explosive diarrhea, there is very little that makes me gag anymore. Even my husband who would gag just at the mention of someone vomitting before can stomach nearly anything now. I guess it's the "positive" side of going through this?

Oh, and the fat absorption doesn't actually refer only to or even include Celiac Disease. It can be from Celiac Disease or a number of other things. My son came back as normal, too, and he was EXTREMELY ill, and his ttg levels ended up being very high.