Negative Blood Test For My 5 Year Old

[Hadleygirl02]

My daughter's blood test results came back and they were negative for celiac. One of her numbers (for Ttg? Or Tig? Tga? I have no idea!) was a 3. Does that sound about normal?

My frustration is growing. I have said previously, one of my big fears is we will never find an answer for her. sad.gif The next step....she is going to start taking a prescription antacid to see if that doesn't help her abdominal pain.) If her appetite is still decreased and she is still complaining of pain in a couple weeks, then they will do an u/s and possibly a endoscopy.

I just hate not having any answers. My poor girl has suffered for most of her life with constipation, encopresis, often diarrhea in between constipation. Extremely smelly, fatty stools. Off and on hip/leg pain. Over the last couple months, she has complained pretty mcuh daily of abdominal pain. Her appetite is considerably decreased.

All blood tests normal. Stool tests normal.

She has a rash on her butt that has pretty much been there for a year and a half, has not responded to antibiotics, creams, etc.

I THOUGHT the gastroenteroligist did a swab of her rash to see if it was DH (the rash that goes along with celiac) but I misunderstood. THey just swabbed her for a strep infection. If I want a skin biopsy, I have to take her to a dermatologist.

I am soooo FRUSTRATED. WHY does my daughter have a rash that won't go away? Is she destined to be on Miralax for the rest of her life? Will she always have trouble pooping? Will her belly hurt chronically? Why is her appetite so decreased?

What is my next step?

[Darn210]

Hadleygirl,

So sorry that you are still looking for answers.

I saw that you did a stool test. Was that through Enterolab? Did it check for gluten intolerance? Did anybody do any gene testing to see if she is genetically at risk?

There is nothing to stop you from trying a gluten-free diet. There are plenty of people on this board who did not have a positive diagnosis and had great improvements to their health by eating gluten-free. It doesn't hurt to try. If you are going to pursue additional testing with your GI, you might want to wait until after that has been done, or at least inform him that you are going to do a trial run of gluten-free.

Good Luck - I hope your dd gets some relief soon.