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Controlling Bodily Functions


LilyCeliac

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Canadian Karen Community Regular
I know that this has probably been suggested to you before, and I'm sure you've already done lots of research and stuff, but it occurred to me that perhaps supplementing with a good dose of psyllium every day might 'tighten' things up in there so you don't deal with all that fluid? Like maybe it might soak it up?

Yep, tried that too.

Nothing stays in long enough to bind. I have what they call "rapid transit". Things go through me immediately.

They did that test where you drink that chalky stuff and they take an x-ray, then you go out and sit and they call you at 20 minute intervals to track it through your system. They said I would be there a couple of hours. I went in for the first 20 minute interval and the guy was shocked when they took the x-ray - it had already gone all the way through....... <_<


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NoGluGirl Contributor

Dear Karen,

I did an abdominal CT where I had to take the bathroom. It was so awful! What is worse, they put you in there with five other people who swallowed barium to do the same procedure, and put only one bathroom in there! Now, this is just stupid in my opinion. Honestly, they deserve to clean-up poop if they are dumb enough to do that! You have to wonder what they were thinking!

Sincerely,

NoGluGirl

jerseyangel Proficient

Lately, I've been taking a Caltrate 600 with D along with every meal. Apparently, the calcium binds with fluid in the intestine and prevents D.

It's working very well for me so far--2-3 weeks. If I skip a tablet, I notice the difference.

NoGluGirl Contributor

Dear Patti,

I took Caltrate before. It made me queasy. Do you have any idea why it would do that? My mother could not tolerate it either. What could be in it that does not agree with us?

Sincerely,

Jin

jerseyangel Proficient
Dear Patti,

I took Caltrate before. It made me queasy. Do you have any idea why it would do that? My mother could not tolerate it either. What could be in it that does not agree with us?

Sincerely,

Jin

Hi Jin :D

For the first few days, it's not uncommon to have gas and/or heartburn as your body gets used to the extra calcium. I'm thinking that possibly your nausea was caused by indigestion (heartburn), or maybe you are sensitive to one of the fillers. Also, some of the formulas have magnesium and other minerals. The one I use has calcium and vitamin D only. I can't tolerate magnesium suppliments, so I try to get a decent amount in my diet.

I know that my stomach felt a little odd the first week or so, but after that, I had no side effects at all. Also, starting with 1/2 a pill with meals might help.

I called the company that makes Caltrate, Wyeth, and was told that all of their Caltrate products are certified gluten-free.

Good to "see" you, sweetie ;)

sickchick Community Regular

I just bought the biggest bottle of Caltrate I could find! HAHAHAHHA :lol:;)

NoGluGirl Contributor

Dear Patti,

It is nice to see you, too! ;) I have been wondering how you are. Thank you for the Caltrate information. Maybe I needed to take it with more food or something. Like you said, fillers could be the culprit. There are a lot of possibilities.

The nausea is something I have a lot anyway, but the cause could be anything from Lyme to additional food intolerances. Isn't being Celiac fun? :lol: I might try taking half of a tablet. That may work. I might just not be able to adjust to so much so quickly.

Dear sickchick,

Let us know how it goes with the Caltrate! It is good to take calcium. Since many of us cannot have dairy, that complicates things for us. We do not get the calcium we need. I worry about not absorbing it, because I take Prilosec, and I know they can interfere with absorption of supplements.

Sincerely,

Jin


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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