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Controlling Bodily Functions


LilyCeliac

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Canadian Karen Community Regular
I know that this has probably been suggested to you before, and I'm sure you've already done lots of research and stuff, but it occurred to me that perhaps supplementing with a good dose of psyllium every day might 'tighten' things up in there so you don't deal with all that fluid? Like maybe it might soak it up?

Yep, tried that too.

Nothing stays in long enough to bind. I have what they call "rapid transit". Things go through me immediately.

They did that test where you drink that chalky stuff and they take an x-ray, then you go out and sit and they call you at 20 minute intervals to track it through your system. They said I would be there a couple of hours. I went in for the first 20 minute interval and the guy was shocked when they took the x-ray - it had already gone all the way through....... <_<


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NoGluGirl Contributor

Dear Karen,

I did an abdominal CT where I had to take the bathroom. It was so awful! What is worse, they put you in there with five other people who swallowed barium to do the same procedure, and put only one bathroom in there! Now, this is just stupid in my opinion. Honestly, they deserve to clean-up poop if they are dumb enough to do that! You have to wonder what they were thinking!

Sincerely,

NoGluGirl

jerseyangel Proficient

Lately, I've been taking a Caltrate 600 with D along with every meal. Apparently, the calcium binds with fluid in the intestine and prevents D.

It's working very well for me so far--2-3 weeks. If I skip a tablet, I notice the difference.

NoGluGirl Contributor

Dear Patti,

I took Caltrate before. It made me queasy. Do you have any idea why it would do that? My mother could not tolerate it either. What could be in it that does not agree with us?

Sincerely,

Jin

jerseyangel Proficient
Dear Patti,

I took Caltrate before. It made me queasy. Do you have any idea why it would do that? My mother could not tolerate it either. What could be in it that does not agree with us?

Sincerely,

Jin

Hi Jin :D

For the first few days, it's not uncommon to have gas and/or heartburn as your body gets used to the extra calcium. I'm thinking that possibly your nausea was caused by indigestion (heartburn), or maybe you are sensitive to one of the fillers. Also, some of the formulas have magnesium and other minerals. The one I use has calcium and vitamin D only. I can't tolerate magnesium suppliments, so I try to get a decent amount in my diet.

I know that my stomach felt a little odd the first week or so, but after that, I had no side effects at all. Also, starting with 1/2 a pill with meals might help.

I called the company that makes Caltrate, Wyeth, and was told that all of their Caltrate products are certified gluten-free.

Good to "see" you, sweetie ;)

sickchick Community Regular

I just bought the biggest bottle of Caltrate I could find! HAHAHAHHA :lol:;)

NoGluGirl Contributor

Dear Patti,

It is nice to see you, too! ;) I have been wondering how you are. Thank you for the Caltrate information. Maybe I needed to take it with more food or something. Like you said, fillers could be the culprit. There are a lot of possibilities.

The nausea is something I have a lot anyway, but the cause could be anything from Lyme to additional food intolerances. Isn't being Celiac fun? :lol: I might try taking half of a tablet. That may work. I might just not be able to adjust to so much so quickly.

Dear sickchick,

Let us know how it goes with the Caltrate! It is good to take calcium. Since many of us cannot have dairy, that complicates things for us. We do not get the calcium we need. I worry about not absorbing it, because I take Prilosec, and I know they can interfere with absorption of supplements.

Sincerely,

Jin


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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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