Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Controlling Bodily Functions

LilyCeliac

By LilyCeliac
in Coping with Celiac Disease

Recommended Posts

Canadian Karen Community Regular
Canadian Karen
Posted
I know that this has probably been suggested to you before, and I'm sure you've already done lots of research and stuff, but it occurred to me that perhaps supplementing with a good dose of psyllium every day might 'tighten' things up in there so you don't deal with all that fluid? Like maybe it might soak it up?

Yep, tried that too.

Nothing stays in long enough to bind. I have what they call "rapid transit". Things go through me immediately.

They did that test where you drink that chalky stuff and they take an x-ray, then you go out and sit and they call you at 20 minute intervals to track it through your system. They said I would be there a couple of hours. I went in for the first 20 minute interval and the guy was shocked when they took the x-ray - it had already gone all the way through....... <_<

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGluGirl Contributor
NoGluGirl
Posted

Dear Karen,

I did an abdominal CT where I had to take the bathroom. It was so awful! What is worse, they put you in there with five other people who swallowed barium to do the same procedure, and put only one bathroom in there! Now, this is just stupid in my opinion. Honestly, they deserve to clean-up poop if they are dumb enough to do that! You have to wonder what they were thinking!

Sincerely,

NoGluGirl

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Lately, I've been taking a Caltrate 600 with D along with every meal. Apparently, the calcium binds with fluid in the intestine and prevents D.

It's working very well for me so far--2-3 weeks. If I skip a tablet, I notice the difference.

Link to comment
Share on other sites
NoGluGirl Contributor
NoGluGirl
Posted

Dear Patti,

I took Caltrate before. It made me queasy. Do you have any idea why it would do that? My mother could not tolerate it either. What could be in it that does not agree with us?

Sincerely,

Jin

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted
Dear Patti,

I took Caltrate before. It made me queasy. Do you have any idea why it would do that? My mother could not tolerate it either. What could be in it that does not agree with us?

Sincerely,

Jin

Hi Jin :D

For the first few days, it's not uncommon to have gas and/or heartburn as your body gets used to the extra calcium. I'm thinking that possibly your nausea was caused by indigestion (heartburn), or maybe you are sensitive to one of the fillers. Also, some of the formulas have magnesium and other minerals. The one I use has calcium and vitamin D only. I can't tolerate magnesium suppliments, so I try to get a decent amount in my diet.

I know that my stomach felt a little odd the first week or so, but after that, I had no side effects at all. Also, starting with 1/2 a pill with meals might help.

I called the company that makes Caltrate, Wyeth, and was told that all of their Caltrate products are certified gluten-free.

Good to "see" you, sweetie ;)

Link to comment
Share on other sites
sickchick Community Regular
sickchick
Posted

I just bought the biggest bottle of Caltrate I could find! HAHAHAHHA :lol:;)

Link to comment
Share on other sites
NoGluGirl Contributor
NoGluGirl
Posted

Dear Patti,

It is nice to see you, too! ;) I have been wondering how you are. Thank you for the Caltrate information. Maybe I needed to take it with more food or something. Like you said, fillers could be the culprit. There are a lot of possibilities.

The nausea is something I have a lot anyway, but the cause could be anything from Lyme to additional food intolerances. Isn't being Celiac fun? :lol: I might try taking half of a tablet. That may work. I might just not be able to adjust to so much so quickly.

Dear sickchick,

Let us know how it goes with the Caltrate! It is good to take calcium. Since many of us cannot have dairy, that complicates things for us. We do not get the calcium we need. I worry about not absorbing it, because I take Prilosec, and I know they can interfere with absorption of supplements.

Sincerely,

Jin

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,075
    • Most Online (within 30 mins)
      7,748
    Connie Conner
    Newest Member
    Connie Conner
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      abnormal weight loss

      By knitty kitty · Posted

      Hello, @glucel, Unintended weight loss is symptomatic of Thiamine deficiency.  Our bodies use more Thiamine when we are ill and stressed.  Switching to a gluten free diet can also result in a lower intake of Thiamine.   Interesting Reading: Coronary Artery Bypass Graft (CABG) surgery depletes plasma thiamine levels https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2874825/ Gluten-free diet intervention reduces thiamine intake in two weeks... https://pubmed.ncbi.nlm.nih.gov/34583628/ This study found normal people, without Celiac Disease and malabsorption concerns, had a drop in Thiamine after starting a gluten free diet.  They went back to eating a gluten containing diet.  We don't get that option.  Gluten free processed foods are not enriched with vitamins like gluten containing counterparts.  Supplementing helps boost your absorption of essential vitamins and minerals.
    • knitty kitty
      Maybe celiac, maybe just ncgs?

      By knitty kitty · Posted

      Hello, @Neat1, Yes, neck and shoulder pain can be symptoms of Gerd, which is fairly common in Celiac Disease. Ask for a DNA test, too.  Celiac Disease is genetic.  If you've got celiac disease genes, further testing is warranted.  Some people have Celiac genes, but don't have active Celiac Disease.  If you've got symptoms, your genes are probably activated.   Diabetes, anemia and Thiamine deficiency can cause false negatives on antibody tests.  Some people with Celiac Disease are seronegative.   Thiamine deficiency can cause constipation and gastrointestinal symptoms.  Magnesium supplementation can help with that, too.  Nutritional deficiencies like these are common in untreated Celiac Disease. Keep us posted on your progress!
    • knitty kitty
      Sarah Grace

      By knitty kitty · Posted

      Not really.  Blood tests for vitamin deficiencies are not accurate.  You can have "normal" blood levels and have vitamin deficiency symptoms before blood levels change.  The brain sends messages to the body to release into the bloodstream any extra vitamins stored within cells of tissues and organs so that important organs like the brain and heart can keep getting a supply.  Even what you've eaten in the previous twenty-four to forty-eight hours can affect blood tests.  Taking vitamin supplements eight to twelve weeks before testing, will give falsely elevated results.   Because tests for Thiamine can be so inaccurate, as well as time consuming and expensive, the World Health Organization recommends taking Thiamine and looking for health improvements.  Thiamine is nontoxic, even in high doses.  Thiamine is water soluble and any excess is easily excreted in urine.  WHO recommends giving 500 mg/day of Thiamine Hydrochloride for several days and looking for health improvements.  Some people with Thiamine deficiency need higher doses (1000 - 2000 mg/day).   Benfotiamine, a lipid soluble form of Thiamine, can get inside cells without using the thiamine transporters on the cell surface,  which shut down during thiamine deficiency.  Thiamine Hydrochloride has to get in by transporters, or by passive diffusion, which requires higher doses.  Benfotiamine has been shown to promote intestinal healing.  300 - 1200 mg/day of  Benfotiamine are required. Allithiamine (Tetrahydrofurfuryl Disulfide TTFD) can cross the blood brain barrier without a carrier cell, so Allithiamine is really helpful with neurological symptoms, brain fog, balance issues, problems swallowing, gastroparesis.  50 - 1000 mg/day of Allithiamine.  Find the best dose for you.   I understand the skepticism about Thiamine.  If I hadn't lived through it myself....read my blog...I was skeptical myself, but I could feel myself dying and was grasping at straws.  Within a few minutes of taking my first dose of Thiamine, I felt better and was astounded at how simple the solution was.   Is nutrition even taught in schools today?  I learned basic nutrition in Home Economics, but that's been cut.  Dieting programs distract from nutrition and mostly count calories.   P.S. Riboflavin Vitamin B2 deficiency has been linked to migraines.
    • trents
      Maybe celiac, maybe just ncgs?

      By trents · Posted

      As far as your neck and shoulder pain goes, yes, this could be a symptom of celiac disease as one of the more than 200 symptoms associated with celiac disease is joint pain.
    • trents
      Maybe celiac, maybe just ncgs?

      By trents · Posted

      10g of gluten or the amount in about 4-6 slices of bread daily for several weeks should be a sufficient "gluten challenge". Your primary care provider should be able to order those tests.
×
×
  • Create New...