Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Fell Off The Wagon...


TheresaM

Recommended Posts

TheresaM Newbie

I was gluten free for over a year and a half and then fell off the wagon two months ago when my son was born. I was SO HUNGRY while breastfeeding and at first I didn't have the adverse effects...well they are back - extreme joint pain, abdominal pain, numbness in my hands and feet - I've even had eight cavities spring up since my last checkup six months ago. I know I'm going to have to go through Gluten Detox again. I'm beating myself up now for letting it go on for two months...

Can someone help me out in getting back into the swing of things...any advice? I hate having to start over...but I guess I do huh?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

Congratulations on the birth of your baby. Such an exciting time for you and your family!

My opinion is that the diet itself will be the reward, once you start feeling better. You might start with fresh whole foods, with the idea of nourishing your body-- plain fresh meat, chicken and fish, tasty veggies and fruits (cooked if that helps your digestion while your system heals), non-processed foods and little fast food or junk. It's hard but will be worth it!

You might promise yourself something good for following the diet- a massage, coffee with friends, a manicure, dinner and a walk with your spouse/partner. I hope your spouse/partner/family/friends are helpful and can treat you well while you take care of your body and your baby!

NoGluGirl Contributor
I was gluten free for over a year and a half and then fell off the wagon two months ago when my son was born. I was SO HUNGRY while breastfeeding and at first I didn't have the adverse effects...well they are back - extreme joint pain, abdominal pain, numbness in my hands and feet - I've even had eight cavities spring up since my last checkup six months ago. I know I'm going to have to go through Gluten Detox again. I'm beating myself up now for letting it go on for two months...

Can someone help me out in getting back into the swing of things...any advice? I hate having to start over...but I guess I do huh?

Dear TheresaM,

I have been gluten-free since August of 2006. I never cheat due to becoming violently ill upon ingesting even the most minute amount of gluten. My brother, however, is just starting his gluten-free journey. Gluten detox is tough. I think your pregnancy altered your hormones and that caused you to desire the gluten.

Saving your teeth sounds like good motivation to be gluten-free again. ;) If you continue to eat gluten, you will not have any teeth left to chew gluten-containing or any other type of food! My father had to go through the misery of getting his teeth pulled and root canaled, then having to remove a majority of his diseased teeth for false ones. This is not something you want to go through! If it is that hard on your teeth, imagine what it does to your poor, defenseless villi in your intestines. You can just hear them screaming for help as gluten passes through, flattening them. :(

Sincerely,

NoGluGirl

JNBunnie1 Community Regular
If it is that hard on your teeth, imagine what it does to your poor, defenseless villi in your intestines. You can just hear them screaming for help as gluten passes through, flattening them. :(

Sincerely,

NoGluGirl

HAHAHAHAHAHAHAHAHAHAHA!!!!!!!!!!!!!!!

Someone (not me, can't even draw a proportionate stick figure) should start a comic strip about the dangers of Celiac disease. They could have Schwarzenegger be gluten! "I'LL BE BACK!" HAHAHAHAH!!!!

NoGluGirl Contributor

Dear JNBunnie1,

ROTFLMAO! :lol: I could do the comic! I am an artist! How about Osama Bin Laden as gluten? There are a lot of good possibilities for that! Gluten is the enemy!

Sincerely,

NoGluGirl

Saz Explorer

Try not to beat yourself up about it, I found that when I was trying to stop eating gluten the more I would be beat myself up about it, the less easy it was. I stoped gradually eating it, start out small by maybe having fruit for breakfast instead toast ( or find a nice gluten-free one). I have to eat a lot gluten before I will get ill so this may not be suitable for you, but just thought I'd share my experince. I also like what other posters mentioned about treating yourself to something special if you avoid gluten.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,673
    • Most Online (within 30 mins)
      7,748

    LouH71
    Newest Member
    LouH71
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.