Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im So Frustrated...


ab123

Recommended Posts

ab123 Rookie

Ok, so I recently moved to a new college, and have only been diagnosed with Celiac for a few months. It has been a slow process (doctors were not informative...) of learning how to deal with this disease. I met with the manager of the dining hall and he was not any help. He said that he was going to start collecting labels off of the meat, dressings, seasonings, etc. but has not gotten back in touch with me. I have been at school for like a month and a half and have basically only been able to eat veggies, salad, and rice. I cant eat the meat, because I dont know what seasoning is in it. I am loosing weight (which I am already too skinny) since I have been off to college, which is not good.

Does any one have any suggestions on how to fix this situation? The dining hall is rude and not helpfull at all. There are no other Celiacs on campus, so they dont know anything about it and dont seem to care. I dont know what to do next... Do I get a refund on the meal plan and eat in the dorm room? If I do that, I only have a microwave and fridge, so how would I eat properly?

Any ideas would be GREATLY appreciated!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

What about getting a single burner hot plate so you could cook things. Also Amy's makes a lot of gluten free microwabable entrees. I would go in and demand help with this from the school or else they should have to give your money back. Could you give them written info on your diet and what you can't have?? Good luck. College is tough. I remember how hard it was just to do a vegetarian diet at school let alone the celiac one.

Mango04 Enthusiast

They should have eggs and raw plain meat in the dining hall. Ask if they can give you plain uncooked chicken breasts (and other meats). My college dining hall did this for any student that asked..you just had to pay with your meal card. Then get a George Foreman for your room and cook the meat yourself. They should also be able to boil eggs for you, so you can at least have some safe protein.

Is there a nutritionist at your school? There should be someone who has an ingredient list of all the foods in the cafeterias. There are so many dietary restrictions these days...someone has to actually know what's in the food. They should be able to provide you with a list of what you can eat.

I tried to get a refund on my meal plan back when I was in collge but it was a big hassle and they just wouldn't refund the money. As you become more familiar with celiac you'll realize you can eat more foods than you thought. There are also quite a few things you can cook in a microwave. If it still doesn't work out, you should be allowed to move to an apartment with a kitchen, if not now, next semester.

I hope it works out for you :)

scotty Explorer

i know it is quite unorthodox and major hassle--but perhaps you should heal and determine what you can and cannot eat then return to school, bringing more of a weighty confidence (and maybe a sack lunch) with you; not sure your situation, wether would be possible--medical leave type refund...?; has been my plan now for 10 years. lot of walking on them damn campuses for someones likes usses

~alex~ Explorer

Does your school have an office dealing with disability and equity services? That might be a good place to turn. Not that I consider Celiac a disability but you know what I mean. You deserve to be able to eat safely and I would think your school would have a responsibility to help you do that. If you have an ombudsperson service at your school they can help make sure that you are being treated fairly and given what you need. I`m sure you don`t want to make a big stink about the whole thing but if your residence is not properly accommodating you than you might need to get someone with some clout on your side.

Also, depending on the size of you school there might be a dietician on the staff of housing and food services. I know there was one at my school. If so he or she may be able liaise for you.

Good Luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748

    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.