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Gluten Free For A Month And A Half, Casein Free For 2 Weeks...

Panopticism

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Panopticism Rookie
Panopticism
Posted

Is it normal to still have the same bloating and cramping on a daily basis even after eliminating both gluten and casein? My diet consists of fruits, vegetables, chicken, occasionally turkey and fish and plenty of corn. Sometimes I eat nuts and seeds. How much of this is normal? My diarrhea went away almost immediately after eliminating gluten, but bloating and gas still. What's the deal here?

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stargazer Rookie
stargazer
Posted

Maybe you are having a reaction to corn. I also have a problem with dairy and when I accidentally eat some, I get really bloated and have lots of gas that lasts for probably a week and a half to two weeks sometimes. The bloating and gas then goes away. Maybe the casein hasn't completely cleared out yet.

mommyagain Explorer
mommyagain
Posted

What form is your "plenty of corn" in? Some people have problems digesting whole corn kernals, but no problems with corn that's been mashed up. For instance, I can eat corn chips and corn tortillas til they come out my ears... but if I'm eating corn on the cob, I need to limit myself to 1 ear or I have problems. I think that it may have to do with how damaged our intestines are due to the gluten. Anything that is "difficult" to break down causes problems.

I realize that you're probably trying to use corn as your carbs, but you may want to eliminate the corn for a few days, try substituting rice or potatoes.

Panopticism Rookie
Panopticism
Posted
  • Author

I eat a lot of Gluten Free tortilla chips, under the brand name "Go-Mex." I also eat pop corn, popped without oil and not buttered. I bread chicken and tilapia/haddock/halibut with corn flour once or twice a week. I do not eat a lot of corn on the cob or canned corn, because it tends to not feel so good.

I do eat a fair bit of rice and potatoes, too. I guess I forgot about them. Rice seems to be one of the few things I can eat any time without having some section of my digestive tract pissed off at me.

nora-n Rookie
nora-n
Posted

I have read a lot of postings about people having problems with fruit, the fruit sugar.

You might want to look it up on the internet. Bloating is one of the symptoms.

Also, many celiacs have problems with fiber (roughage) in the beginning of a gluten-free diet.

This is because the villi are damaged.

mftnchn Explorer
mftnchn
Posted

It is possible that it is just taking awhile to fully resolve. Remember it takes adults 1-2 years to heal after going gluten-free.

It is also possible that you have other food intolerances which is common for celiacs. For some these seem to eventually resolve. For others, they don't. It is very individual.

Your confusion is normal, we all have to feel our way along. Lots of people can relate.

confusedks Enthusiast
confusedks
Posted

I think you need to give casein free more time. Also, are you sure your gluten-free? New toaster, new pots and pans, dedicated toaster? If you do, ignore the suggestions, but just a thought.

Kassandra

Also, soy may be a problem.

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Panopticism Rookie
Panopticism
Posted
  • Author

I could do with a new set of pots and pans and I don't use the toaster at all. Thanks for the tip.

mftnchn Explorer
mftnchn
Posted

The issue with pots and pans is what kind do you have? It they have porous or scratched surfaces that gluten could stick to, you might be having a problem.

Also what about your personal care products?

Are others in your house eating gluten, if so what precautions are you taking?

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    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      Toothpaste question.

      By Scott Adams · Posted

      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
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    • Scott Adams
      Manitol and mri

      By Scott Adams · Posted

      The substance you're likely thinking of is "mannitol," which is a sugar alcohol, and it is indeed used as a sweetener in some "sugar-free" products. However, for an MRI, the drink is almost certainly "Mannite," which is a brand name for a laxative preparation used to cleanse the bowel before the scan. Its primary purpose is not to sweeten but to create a clear image by distending the bowel and stimulating a bowel movement. While the names sound similar, the function and formulation are very different from a small-quantity sweetener. That said, your concern is valid and should be addressed with your healthcare team. The most important step you can take is to call the MRI department or your referring doctor directly. Explain your specific reaction to sweeteners in detail—mentioning the throat and ear sensations is crucial as it could indicate a more significant sensitivity. They can confirm the exact drink they use, check its full ingredient list for you, and determine if an alternative prep is available or if pre-medication is recommended to ensure your safety and comfort during the procedure.
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