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Just Had Biopsy


gabyy

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gabyy Rookie

Hi everyone,

I posted a little while ago, but I'll review real quickly. I have had low ferritin levels for years (as low as 2, never higher than 30 even while taking iron). I initially had a blood test done for celiac and it was negative. My doctor decided that I needed the biopsy done though to be absolutely sure it was not celiac. So I was referred to a gi doc. The gi doctor was great - he definately thought it could be celiac, was also concerned it could be silent chron's disease or silent ulcerative colitis. He did a egd/colonoscopy on me on Thursday. He took several biopsies from the upper and lower intestines. He told me that the his initial thought just from looking at them is that I am negative for any type of stomach/intestinal disease. But he said he needs to wait a month for the final biopsy results. If they are definately negative, he is going to refer me to a hematologist for a bone marrow aspiration. Although I must say I am impressed with my doctors, as they have advocated me getting tests done and getting to the root of the cause for the ferritin problems and I know most people have not had that experience, I am VERY nervous about a bone marrow aspiration. At this point I am hoping the biopsies are positive! Anyone out there been told that the original glance at the biopsy was negative/normal, then have the final report show celiac? Thanks!


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    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
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