Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Arrgghhh!

Daughter-of-TheLight

Recommended Posts

Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

AAARRRGGHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Okay, now that I've got that out of my system....

On Saturday I went to my first real party as a Celiac that I didn't run. To make a long story short, it was at my aunts house and I might Have gotten GLUTENED!!! I was really careful, even calling on the ketchup, but when it was burger time, i found that i had taken a burger from the gluten side of the grill. I had been holding all the frustration inside (they had oreos and there was not one gluten-free side at the party... except for these really hard and not salty potato chips. XP) So I headed off to my aunts room for a good cry. (hey, I'm only a teen...) and my mom coaxed me back out with difficulty. So I'm FRUSTERATED!!!!!!!!!!!!!!!!!!!!

ARRRRRGGGGGGGGHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ptkds Community Regular
ptkds
Posted

I know exactly how you feel. At our church, we have pot lucks all the time. The one thing I looked forward to the most was some home-made rolls that someone always makes. I nearly cried the first time I saw them after I was diagnosed. I don't know how long you have been gluten-free. But if it hasn't been long, it will get a little easier. I am at the point that I am mostly ok around ppl eating gluten, but it still tears me up when my 6 yr old comes home from school or girl scouts and cries because the other kids got some yummy goody and didn't get to have any. That just REALLY breaks my heart.

Rivergirl Apprentice
Rivergirl
Posted

Parties are tough - you don't want to offend, you want to trust, but then........ if you aren't extra careful you get glutened real easily. I have been glutened too many times a parties, that I now bring my own stuff (plenty to share) whenever I go to a party. The other thing I always say to myself when I see a piece of pizza I would just die for, or a piece of white wedding cake -- is: "If I eat this it will KILL me." Sounds kind of harsh huh? But it is true. For years and years I couldn't make it through a diet without cheating but now that I know I have Celiacs and if I cheat, it will indeed lead to the valley of doom - willpower comes very easy when you have Celiacs.

The other tip I can give you, is don't be shy in telling your closest friends of your condition and how critical it is to be very careful in food preparation. Now when my closest friends throw a party, they always proudly share what they have prepared that is gluten free. So your friends are learning along with you...

Best of luck...

Rivergirl

Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted
  • Author

I've only been gluten-free for about a month so it's still really hard, though not as hard as it might be for some. I'm homeschooled and I've never had trouble sticking to what I want to. It's just really frustrating because people, no matter how hard they try, can never really understand. At least, not unless they live with or are very close to you. A lot of the time they don't realize that say, frying a burger on a grill that has fried, ah, ribs with non-gluten free sauce can start the process. So it's really, really hard. I'm still trying to get used to the whole thing.

loraleena Contributor
loraleena
Posted

That really stinks. What I do at parties where food is grilled, is I wrap whatever I am eating in foil and seal it completely. This keeps any spatter from marinades, etc. from touching my food. I also bring my own snack food as well, or make a dish to contribute.

Guest Joshua
Guest Joshua
Posted

hi every one.

i have bought this book over the internet and it helps alot. it has most food that u can have to eat in diferent sections. :D

Guest j_mommy
Guest j_mommy
Posted

It's really a bummer to get glutened at a families house...a place that people know and should be careful. Sadly that happens alot to me...My firends are very good about it when I go their houses for dinner but at my families homes it's total cias and I have to bring my own food b/c I don't trust anything there....they just expect me to pick the top off the pizza and it that! :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted
  • Author

You wonder. My friends are actually really good about it when I go to thier houses for dinner and stuff. But in my extended family it's really hard. Some of them are understanding, but others.... All I'm going to say is when I go to my other aunts house to sleep over with my cuz, Im bringing my own food. Aunt K. will be like, "Whatever. Want pancakes?" *sigh*

Guest Joshua
Guest Joshua
Posted

my first football game of this season i won tickets. i brought a docters note and food and to police man let us in it still was hard to to resist the food but i did. it was realy hard i mean realy hard.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana posted a topic in Related Issues & Disorders
      0

      Healthy diet leading to terrible bloating

      Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc. After a week or so I felt awful bubbling and bloating in the area which I would say is the...
    2. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what...
    3. cristiana
      - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
    4. trents
      - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods". Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy...
    5. Dizzyma
      - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her on a full gluten free diet. my concerns are that she wasn’t actually physically s...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,929
    • Most Online (within 30 mins)
      7,748
    KayTag
    Newest Member
    KayTag
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Healthy diet leading to terrible bloating

      By cristiana · Posted

      Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc.  After a week or so I felt awful bubbling and bloating in the area which I would say is the ascending and transverse colon.  Earlier in the day it might start with stabbing pain, maybe just two or three 'stabs', or a bit of an ache in my pelvis area, and then by the evening replaced with this awful bloated feeling.   I can still fit into all my clothes, there isn't any visible bloating but a feeling of bloating builds from early afternoon onwards.  The pain and bloating has always gone by the morning.  BMs normal.   I went back to my normal diet over Christmas, for a couple of days things improved, but the bubbling and bloating then came back with a vengeance.  I'm having an ultrasound in a couple of weeks to check my pelvic area and if that is clear I suspect may have to have a colonoscopy, but is there anything anyone can recommend to calm this bloating down.  I have been given an additional diagnosis of IBS in the past but it has never been this severe.   I have to confess that I might have had some gluten over Christmas, I ate a lot of Belgium chocolates which were meant to be gluten free but the small print reveals that they were made in a shared facility, so I have probably brought this all on myself!
    • TheDHhurts
      Prana Organics no longer GFCO-certified

      By TheDHhurts · Posted

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.