Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doc's Advice?


mama2

Recommended Posts

mama2 Apprentice

Today I went to see my doctor b/c I had gluten reaction from CC or maybe the saled dressing I had at bob evans... still not sure, they said the dressing was safe. anyway, I was also having some sort of allergic reaction too. ALong with a DH rash. So my doc gave me a cordizone (sp?) shot to help with the reaction and sending me to get food allergey test done. he also finally gave me celiac spure diag , which I have seen many docs for many years and nothing... so huge weight lifted off my shoulders.. don't feel so crazy anymore!

Well, now for my question I have a 10mth old that I still nurse some and the doc asked me if I was planning to stop soon (gonna take him to a year if my supply lasted)... he does'nt really like the idea of me nursing with the shot but, wants me to decide. Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I would contact the La Leche League and see what they say--they know WAY more than the docs about anything to do with nursing, including what gets into breast milk and what doesn't.

The website is www.lli.org, I think. If that doesn't work, google "La Leche League."

Good luck, and bravo to you for nursing! I could never understand why anyone would want to wean their baby to chemicals out of a can put into a plastic bottle with a rubber nipple, anyway...

mama2 Apprentice

Thanks so much. I had already looked at kellymom.com and there was nothing.

mama2 Apprentice

I think I found the answer to my question.

Open Original Shared Link

I am going to go ahead and nurse him tonight and check with La Leche in the morning.

My doctor never seems toknow what is safe and whats not... I know he thinks its great that i nurse.

loraleena Contributor

I am a lactation counselor, but unfortunealty the book we have on meds and nursing is 3 yrs. old, so I don't feel comfortable giving the advice in there. Calling a local lactation consultant is a good idea. If you can't nurse while on this med, you could at least pump and dump your milk until the med is out of your body. You may have to do the formula for a few days, but at least your milk supply won't decrease.

mama2 Apprentice
I am a lactation counselor, but unfortunealty the book we have on meds and nursing is 3 yrs. old, so I don't feel comfortable giving the advice in there. Calling a local lactation consultant is a good idea. If you can't nurse while on this med, you could at least pump and dump your milk until the med is out of your body. You may have to do the formula for a few days, but at least your milk supply won't decrease.

Thanks, Under my docs new advice I am giving him mainly formula right now and nursing only some. He said it should be ok... my son seems to be happy with that arrangement. I am trusting the doc is right?. This whole nursing thing on what is safe and whats not is hard and never usually a clear cut answer... esp since I have been adjusting to a gluten-free lifestyle.

gfgypsyqueen Enthusiast

Just an FYI, call Bob Evans and talkto someone knowledgable about the food. I recently found out that my local Bob Evans home fries arrive seasoned, the chicken arrives frozen with dairy items (my kid is allergic to dairy). I left that day eating an awful burger patty and small side of fruit, and still hungry. I won't be back any time soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mama2 Apprentice
Just an FYI, call Bob Evans and talkto someone knowledgable about the food. I recently found out that my local Bob Evans home fries arrive seasoned, the chicken arrives frozen with dairy items (my kid is allergic to dairy). I left that day eating an awful burger patty and small side of fruit, and still hungry. I won't be back any time soon.

Thanks I will def do that...won't be going back soon , too.

loraleena Contributor

I would definitely consult with a lactation consultant in a hospital. A lot of docs no little to nothing about breastfeeding. Keep doing what you are doing, but get advice from a real expert. When did the doc say you could start breastfeeding all the time again? You should pump and dump your milk in between nursings so that your milk supply won't decrease.

Nikki'smom Apprentice
I would contact the La Leche League and see what they say--they know WAY more than the docs about anything to do with nursing, including what gets into breast milk and what doesn't.

The website is www.lli.org, I think. If that doesn't work, google "La Leche League."

Good luck, and bravo to you for nursing! I could never understand why anyone would want to wean their baby to chemicals out of a can put into a plastic bottle with a rubber nipple, anyway...

I hope you feel better and get the answers you need. Good for you with nursing and sticking with it.

I do have to comment on Fiddle -Faddle's post. though. I am saddened that some would would make a mom feel bad for NOT BF. there are many reason NOT to BF. I do believe BF is great if it is right for you and your child and do it if you can. I personally did not BF because it wasn't for me and i knew that so to me if I wouldn't be able to handle it then my child was better off being formula feed. I did support any and all of my friends who BF and helped them get past any hurdles when times got rough because that is what friends do. I personally don't think it is fair to talk down formula feeding like you did in your statement. what happens is a new mom was reading that post and was having a hard time BF and was in tears because she couldn't and read what you said and it made it worse? It is a very personal choice and I think ALL mothers should support other mothers in their disicion to do what is best for their families and their children.

I am sure you had no clue you would offend any one with this post and I am very sorry if I took it the wrong way but I just want mothers to support other mothers in how they choose to feed their babies.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

    4. - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,746
    • Most Online (within 30 mins)
      7,748

    CarlyRenee
    Newest Member
    CarlyRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
    • knitty kitty
      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.