Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ladies, Celiac & Menstrual Cycles?


dbuhl79

Recommended Posts

dbuhl79 Contributor

I've seen other people mention that there menstrual cycle changed when they were struck with Celiac Disease or as part of their symptoms.

Along wth the onset of these odd digestive symptoms, mine has also changed.

I'm curious, what have doctors told you about this connection? Is it simply that your body is so thrown off by this disease that it effects EVERYTHING? My doctors didn't seem to care or have much concern that my cycle has altered along with this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nadtorious Rookie

My period disappeared for almost 4 years while I was really sick, and came back as soon as I went gluten free (within a week!). My doctor actually used this to diagnose me first (before blood tests, endoscopy, and diet challenge). Now that I've been gluten free for close to 2 years, my period has finally kind of normalized-I can somewhat predict it and my cramps aren't as bad as they were pre-celiac days.

Nadia :)

Racheleona Apprentice

Hi dbuhl79,

Being that I haven't had my period for almost 2 years now (which happened after I lost 30 pounds in 2 months, and had at first started losing weight intentionally due to only eating 500 cals/day, and then continued to lose without trying). After doing labs my doctor said that my hormones are now out of wack and are very low. This could be due to my dramatic weight loss, or due to malnutrition. I have been gluten-free for 2 months now, and still no period though.

Rachel

LynnR Explorer

My periods has always been very irregular. I also have Endometrosis. So when they completely stopped, I wasn't too concerned at first. I just thought it was due to Hormonal Imbalance.

When I went to see a new doctor this week, one of his questions was if I was getting my period. At the same time he was checking me for Anemia. He told me that when someone is really Anemic their periods will stop also because you don't have enough iron in your system to produce them.

Guest ~wAvE WeT sAnD~

Hi, Ladies!!

Before I went on the gluten-free diet, my periods were irregular, even in high school. After a month on the diet, I was consistent (this was before I started taking birth control pills).

--Stay healthy!!

ps. Lynn, how long have you been gluten-free?

LynnR Explorer

Jill,

I haven't been gluten-free for too long. Only about 2 weeks.

stef-the-kicking-cuty Enthusiast

Hi there,

before i went glutenfree i had really painful periods. Sometimes i couldn't do anything but lay in bed. And they were irregular too, but only sometimes. I'm glutenfree since July this year now and as soon as i started the next period in August was so nice. Oh, it was like heaven. No pain at all. I almost didn't even recognize it already started. The only thing that bugs me a little, is, that it's a little bit late each month. But at least it's late regualar now pretty much. Always around day 33 or 34.

Lots of greetings, Stef


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

Oh and i forgot to tell. All periods since then were without pain at all.

Lots of greetings, Stef

Guest ~wAvE WeT sAnD~

Lynn--

Ok. ;) Maybe in a couple of weeks, or whenever you normally start, you may notice a difference. I'm not an expert, I just speak from personal experience.

Keep everyone updated on your progress--this disease can be tough at times, but I know you'll make it!!! This board is extremely supportive :D

Sincerely,

dbuhl79 Contributor

Thanks ladies! Ever since my symptoms have arose, I've noticed a change in cycle. Its a relief to discover others have too. Particularly since my doctors could care less! :)

Guest Lindam

:( Ever since I was diagnosed, my periods have been very weird. They were always 2-3 days tops, and some discomfort, but nothing Tylenol wouldn't handle. Now they can last up to 10 days, the cramping starts at least a week before it starts, all the PMS symptoms are there also for a week prior. My gyne is concerned that everything is changing. It has something to do with celiac disease being an autoimmune disease and our periods throw everything off. I would suggest talking to your gyne about it.

Good Luck!

Linda

darlindeb25 Collaborator
<_< now when i think back--i am wondering if celiacs had anything to do with my cycles---i was quite regular, but had very heavy periods--i was afraid to leave home the 1st 3 days----but, as is true of many celiac women, i went through menopause early--i am 49 now and havent had a cycle now for 3 years and that's ok :P --my were bad enough--i deserve a break :D deb
Rikki Tikki Explorer

As I look back I can't help but wonder if the celiac was causing a lot of gynecological problems. I was always very irregular, couldn't get pregnant and took fertility drugs for over two years in order to get pregnant with my first two children. My periods were also very irregular and heavy and I had awful cramps since I was a teenager. It does make me wonder.........

By the way does anybody know how to spell check before I post??

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mmoc replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Blood tests low iGA 4 years later digestive issues

    2. - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Gluten free nuts

    3. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748

    LizzieE
    Newest Member
    LizzieE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
    • Aretaeus Cappadocia
      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.