Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me Out Here.....


Canadian Karen

Recommended Posts

Guest Doll

This idiot on the other forum needs a lecture in biology. Explain this to her:

Most diseases (including Celiac) are NOT "genetic". Yes, you need to have the genes for them, but there are also TRIGGER(S) in the environment that are needed for the disease to develop. Many people have the genes for diseases they never develop.

Now, I do not think ALL autism cases are linked with autoimmunity, the leaky gut, etc. There are probably multiple causes. But I DO believe that a percentage are. And those cases very likely would improve on a gluten/casein free diet. Perhaps this women is pissed off because she tried the Gluten-free Casein-free diet and had no results. The diet unfortunately likely won't work for autism cases that are NOT linked to autoimmunity/the leaky gut. Maybe she is bitter? I do not want to get into a debate over the causes of autism, because there is not enough information to say one way or another. I think some will be helped by the diet (a good portion), some will not. And this seems to be the case.

Regardless, here is a way to break the biology of disease pathology down for this "enlightened" women:

*Genetic Diseases*

-Cystic Fibrosis

-Sickle Cell Anemia

-Down's Syndrome

-Turner Syndrome, etc.

Most diseases need BOTH genetics and a trigger to develop. Thus, if we could isolate/manipulate the triggers, we could impact the disease process and/or outcome.

1.) Autoimmune diseases are thought to be triggered by something in the environment like a virus, etc. So, the onset of Type 1 (insulin dependent or juvenile diabetes) diabetes may look like this:

Genes for Type 1 diabetes---> Lack of vitamin D exposure (a immune modulator) and lack of Omega 3 fatty acid encourage an environment for the disease to develop--->exposure to the triggering virus....the disease appears. The jury is out as to if exposure to gluten/casein/other food protein is additional factor.

2.) Asmtha requires the genes for the disease, and is often triggered by allergens and pollutants in the enviroment.

3.) Type 2 diabetes (the common form NOT related to Celiac) is a great model of gene and environment interaction. Yes, there are genes associated with the disease. But the disease *usually* does not express itself unless:

-A person has become obese/overweight

-Eats an unhealthy diet (excess fatty meats, bad fats, junk and processed foods, soda, simple carbs, excess carbs, etc.)

-Does not exercise

These are the top known triggers for Type 2 diabetes. Type 2 diabetes is not an autoimmune disease, but it is still triggered by the environment. Granted, there are about 10% of cases that are linked to hormonal disorders, certain medications like steroids, genetic defects that do not require a trigger, etc. But the vast majority of Type 2 diabetes cases are preventable if a person eats right, exercises, and maintains a normal weight. So *right there* is a case where genes can be fairly easily modified to prevent a disease. Or, HELP a disease that has already appeared. All of the above can help keep a Type 2 diabetic *off of medication and keep their blood sugar levels in good control*. So this is an example of genes being over-ridden by the environment, specifically diet.

I have not seen any evidence to suggest a Gluten-free Casein-free diet is "harmful", unless the child is not getting enough nutrients or is only being fed premade Gluten-free Casein-free "junk" foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

That would be perfect! I did post about the trigger aspect, but not nearly as good as your explanation!

Unfortunately, they won't accept my posts anymore, my screen just freezes. Sheesh! Just because I had the gall to challenge their close-minded attitude, the kick me off! Oh well, my bad! :lol:

Glutenfreefamily Enthusiast
That would be perfect! I did post about the trigger aspect, but not nearly as good as your explanation!

Unfortunately, they won't accept my posts anymore, my screen just freezes. Sheesh! Just because I had the gall to challenge their close-minded attitude, the kick me off! Oh well, my bad! :lol:

Karen dont worry about it, you put the seed in their mind about the diet. Hopefully the parents might open their minds a little and think about trying it.

I feel bad for the kids, moms and dads that are too lazy to try and help them out is how I see it. They want to try meds first with multiple side effects instead of trying a more natural route <_<

Judyin Philly Enthusiast

:( so sorry Karen

At least you tired.

Judy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    5. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,362
    • Most Online (within 30 mins)
      7,748

    DPC
    Newest Member
    DPC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.