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Sent Enterolab Specimen

mama2two

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mama2two Enthusiast
mama2two
Posted

well, today we sent my daughters specimens (stool & dna) to enterolab for testing. In my heart I already know that she needs to be gluten free, but my husband and I feel like we need a test to tell us that. We have been compliant with only an occasion slip up, no sunday she went to sunday class with her little brother and she had 3 girlscout cookies and today she is forting up a storm, pardon my ill language! I am curious to see what her tests show. I am also wondering if anyone else has had good or bad experiences with enterolab, I know some have had good because I have read about some and this forum is how I learned about enterolab. Also today we tryed glutino crackers, the ritz type and my kids really liked them, I plan to make little imitation lunchables for her, I'm so glad they liked them. If you haven't tried them you may want to consider it.

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EBsMom Apprentice
EBsMom
Posted
I am curious to see what her tests show. I am also wondering if anyone else has had good or bad experiences with enterolab....

Our experience was good. My dd had big time GI symptoms - reflux, gas, D, bloating - and she was becoming pale, with a low energy level. We'd already taken her gluten-free, just to see what would happen - and she improved so quickly that we decided to just keep her gluten-free. We did the Enterolab test "just to see" and it only showed us what we already knew. BTW, my dd didn't have the celiac disease genes, but she certainly had the celiac disease symptoms....before going gluten-free, anyway.

We also did the test on my ds. He had mainly neuro symptoms, that resolved with amazing speed on the gluten-free diet. He was having trouble accepting the fact that he needed to be gluten-free, until we got the Enterolab results back, showing that he was also producing antigliadin antibodies and had an elevated A-tTg. Now that he's been gluten-free for a couple of months, and he's doing schoolwork again, he can clearly see how much better he is off of the gluten. His constant brain fog is gone!

So for us, Enterolab and its tests have been a very good thing. YMMV. Hope it works out well for you, too!

Rho

Virgie Apprentice
Virgie
Posted

Hi! My 13 year old daughter was dx last month with Celiac and I have been wondering if the rest of the family should get tested. Did you purchase the test right from the Enterolab site or somewhere else? Did you buy the complete (most expensive test)? How do you do it? Is it a stool sample? Sorry for all the questions but just wondering if I should go this route or go to the doctor and have bloodwork done. Everything is always so expensive. I am thinking the Enterolab would actually be cheaper than going to the doctor.

We have gone gluten free for my daughter but the other day I think she did gluten through cross contamination and she too was passing foul smell gas right away. So yes going gluten-free does make a big differennce.

Hope everything works out for you.

Virginia

mama2two Enthusiast
mama2two
Posted
  • Author
Hi! My 13 year old daughter was dx last month with Celiac and I have been wondering if the rest of the family should get tested. Did you purchase the test right from the Enterolab site or somewhere else? Did you buy the complete (most expensive test)? How do you do it? Is it a stool sample? Sorry for all the questions but just wondering if I should go this route or go to the doctor and have bloodwork done. Everything is always so expensive. I am thinking the Enterolab would actually be cheaper than going to the doctor.

We have gone gluten free for my daughter but the other day I think she did gluten through cross contamination and she too was passing foul smell gas right away. So yes going gluten-free does make a big differennce.

Hope everything works out for you.

Virginia

Hey Virgina, I don't know when you posted this, since I have not been here in a while, but I am happy to answer your questions. I did go to enterolab's website, I looked at it for a while and read as much as I could I wanted to make sure it was a reputable lab, because others here have talked about their experiences I felt better about it. Also it's frustrating with the docs because many don't know much about celiac and we paid either $700 or $900 for my daughters celiac panel and it was inconclusive, which was frustrating. with enterolab, I paid $365 I think, and it was a panel that tests for gluten sensitivity, celiac I think, milk sensitivity and a genetic test. It was easy, I ordered on line with a major credit card, they sent the package in the mail and all the instructions on how to collect the specimens, make sure you read them first because they want you to send it on a monday, tues or wed, to make sure it doesn't have to travel on the weekend, b/c UPS doesn't run on the weeked. We sent a stool specimen in the container provided and swabbed inside of her cheeks of her mouth with the long q-tips they provided. it is supposed to take 3 weeks for results, I think they contact you by email and maybe by mail too. we have not gotton results yet, but we are anxiously waiting. We will probably all get tested. Good luck to you

Virgie Apprentice
Virgie
Posted

Thanks for the info. I wish everything didn't cost so blooming much as I would like to do this for the rest of the family. Daughter we already have a dx of Celiac but I do wonder about dairy for her as she still has times of not feeling well. It sounds like a great test. Will have to look into it some more.

Thanks again!!!

Virginia

Hey Virgina, I don't know when you posted this, since I have not been here in a while, but I am happy to answer your questions. I did go to enterolab's website, I looked at it for a while and read as much as I could I wanted to make sure it was a reputable lab, because others here have talked about their experiences I felt better about it. Also it's frustrating with the docs because many don't know much about celiac and we paid either $700 or $900 for my daughters celiac panel and it was inconclusive, which was frustrating. with enterolab, I paid $365 I think, and it was a panel that tests for gluten sensitivity, celiac I think, milk sensitivity and a genetic test. It was easy, I ordered on line with a major credit card, they sent the package in the mail and all the instructions on how to collect the specimens, make sure you read them first because they want you to send it on a monday, tues or wed, to make sure it doesn't have to travel on the weekend, b/c UPS doesn't run on the weeked. We sent a stool specimen in the container provided and swabbed inside of her cheeks of her mouth with the long q-tips they provided. it is supposed to take 3 weeks for results, I think they contact you by email and maybe by mail too. we have not gotton results yet, but we are anxiously waiting. We will probably all get tested. Good luck to you
shan Contributor
shan
Posted

does anyone know if they do such a thing for overseas? asin, i am in israel now and i dont live in the u.s., is there any other place that does it, say in england or israel that anyone knows of first hand? and is it worth flying to the u.s.a for it?

shows desperation that i am willing to fly to the other end of the world (not really, but a 12 hour flight with 2 kids sure makes it seem like the other end!)

thanks

AndreaB Contributor
AndreaB
Posted
does anyone know if they do such a thing for overseas? asin, i am in israel now and i dont live in the u.s., is there any other place that does it, say in england or israel that anyone knows of first hand? and is it worth flying to the u.s.a for it?

shows desperation that i am willing to fly to the other end of the world (not really, but a 12 hour flight with 2 kids sure makes it seem like the other end!)

thanks

I believe they will send test kits overseas but it may be cost prohibitive to overnight it back to them.

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mama2two Enthusiast
mama2two
Posted
  • Author
does anyone know if they do such a thing for overseas? asin, i am in israel now and i dont live in the u.s., is there any other place that does it, say in england or israel that anyone knows of first hand? and is it worth flying to the u.s.a for it?

shows desperation that i am willing to fly to the other end of the world (not really, but a 12 hour flight with 2 kids sure makes it seem like the other end!)

thanks

I really don't know about getting the kit overseas, but I'm sure you probably can. You can go to the website enterolab.com and contact them to see if they will.

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