Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Please


mouth

Recommended Posts

mouth Enthusiast

HI CAN ANYBODY HELP PLEASE??

I AM LOOKING TO MAKE A SAFE MEDICATIONS LIST FOR MYSELF AND MY DAUGHTERS DOCTOR AND FOR "ICE". .. MANY OF THE PARMACOLOGICAL COMPANIES WILL NOT GIVE ME THE INFORMATION. THEY SAY THE DOCTOR HAS TO CALL TO GET IT.. I THINK THAT IS A LOAD OF BALONEY.. WE NEED THIS INFORMATION.

I AM SORRY, I DON'T KNOW ABOUT ANYBODY ELSE, BUT I CAN NOT AFFORD TO JOIN WHAT IS IT?? THAT SITE THAT CHARGES YOU AND GIVES YOU THE MOST UP TO DATE INFORMATION THAT WE NEED.

I DO NOT THINK THAT THEY SHOULD NOT EVEN CHARGE FOR IT.. BUT ANYWAY..

CAN ANYBODY HELP WITH THIS?? IF SO LET ME KNOW, AND I'LL GIVE THE EMAIL ADDRESS I USE JUST FOR CELIAC STUFF.

THANK YOU EVERYBODY!!!!!!!!!!!!! LYNN


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Open Original Shared Link

mouth-

This listing indicates that it is a October 2007 update. Hope this is helpful.

mouth Enthusiast
Open Original Shared Link

mouth-

This listing indicates that it is a October 2007 update. Hope this is helpful.

THANK YOU VERY MUCH.. I had had this listing, but the last time I was there, it had not been updated.

tyvm

lynn

Guest j_mommy

The lactaid co...they also are the ones that make tylenol......will send you a complete list of their gluten-free products...with coupons if you call!!!!

mouth Enthusiast
Open Original Shared Link</a>

mouth-

This listing indicates that it is a October 2007 update. Hope this is helpful.

HI, first off thank you for the link.. But see now here is the thing.. Childrens Grape flavored liquid Tylenol- I was told that IT IS NOT gluten-free... BUT THEY HAVE IT ON THE LIST AS gluten-free..

Also, they have alprazoam (xanex) on the list, and I know that it is not gluten-free.. company told me so, because i ck'd 4 myself..

THAT IS ONE THAT SCARES ME THE MOST..

I just sent an email to the address at the bottom of the site.. Will let you know what answer I get.. tttys..

lynn

barbara123 Apprentice
HI, first off thank you for the link.. But see now here is the thing.. Childrens Grape flavored liquid Tylenol- I was told that IT IS NOT gluten-free... BUT THEY HAVE IT ON THE LIST AS gluten-free..

Also, they have alprazoam (xanex) on the list, and I know that it is not gluten-free.. company told me so, because i ck'd 4 myself..

THAT IS ONE THAT SCARES ME THE MOST..

most of the time if you type in the product and then gluten it will bring up information. But if you still dont believe it then call the company Hope this helps :D

mouth Enthusiast
most of the time if you type in the product and then gluten it will bring up information. But if you still dont believe it then call the company Hope this helps :D

type it where please ?? in google??

tyvm..

lynn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

You also have to remember that ingredients always change! That is why I didn't want to spend the money on those lists you pay for(granted they are updated) but I would rather call or email.

Who told you that tylenol product was not gluten-free???? I don't think that one was on the gluten-free list I got a week ago!

Good Luck!

barbara123 Apprentice
type it where please ?? in google??

tyvm..

lynn

I type in the google search bar Gatorade gluten and hit search :D

mouth Enthusiast
I type in the google search bar Gatorade gluten and hit search :D

TYTYTY :D

bklyn Enthusiast

The drugs on the gluten free drug list are name brands, correct? What about generics? My insurance company pays for generics, but I've found it to be a problem when researching generic drugs.

Any suggestions?

Thanks!

Kathy

mouth Enthusiast
Open Original Shared Link

mouth-

This listing indicates that it is a October 2007 update. Hope this is helpful.

Thanks much momma goose

mouth Enthusiast
The drugs on the gluten free drug list are name brands, correct? What about generics? My insurance company pays for generics, but I've found it to be a problem when researching generic drugs.

Any suggestions?

Thanks!

Kathy

Hi Kathy nice 2 meet you.

It is hard with generic companies-- you do the same call them up. But the problem like with Greenstone is that they told me that some of the stuff comes from the outside, and can't guarantee its gluten-free. Like with Zithromax the brand is gluten-free, but the generic one, they cant guarantee- they say the writing on the pill may contain gluten.. ugh i hate dealing with the pharmacological companies..

vvvvvvvvv glgl if you get anywhere, please let me know also.

tyty

lynn

JennyC Enthusiast
HI, first off thank you for the link.. But see now here is the thing.. Childrens Grape flavored liquid Tylenol- I was told that IT IS NOT gluten-free... BUT THEY HAVE IT ON THE LIST AS gluten-free..

Also, they have alprazoam (xanex) on the list, and I know that it is not gluten-free.. company told me so, because i ck'd 4 myself..

THAT IS ONE THAT SCARES ME THE MOST..

I just sent an email to the address at the bottom of the site.. Will let you know what answer I get.. tttys..

lynn

I just went on a company calling spree. Here are my results:

Robitussin/Dimetapp: (800)762-4675 Do not track outside ingredients, so they have no idea if any of their products are gluten free.

Triaminic: (800)KIDS-987 All products are gluten free. (When I called them last March they gave me a short list of gluten free products, so I will be calling them back to double check.)

Banadryl: (800)223-0182 All children's products are gluten free. They track ingredients, but I don't think they test products.

Pediacare: (877)895-3665 Do not track outside ingredients.

Tylenol/Motrin: (888)466-8746 Gluten free lists are of RANDOM products that were tested. Not all products are tested, but none of their (children's) products have gluten added. They also track outside ingredients. Just because one flavor of Tylenol cold is on the gluten free list, does not mean the other varieties are not gluten free.

Tis the season...

mouth Enthusiast
I just went on a company calling spree. Here are my results:

Robitussin/Dimetapp: (800)762-4675 Do not track outside ingredients, so they have no idea if any of their products are gluten free.

Triaminic: (800)KIDS-987 All products are gluten free. (When I called them last March they gave me a short list of gluten free products, so I will be calling them back to double check.)

Banadryl: (800)223-0182 All children's products are gluten free. They track ingredients, but I don't think they test products.

Pediacare: (877)895-3665 Do not track outside ingredients.

Tylenol/Motrin: (888)466-8746 Gluten free lists are of RANDOM products that were tested. Not all products are tested, but none of their (children's) products have gluten added. They also track outside ingredients. Just because one flavor of Tylenol cold is on the gluten free list, does not mean the other varieties are not gluten free.

Tis the season...

Dear Jenny

this is very odd because i have called triaminic 2 times now. The Purple bottle- NIGHT TIME COUGH AND COLD- IS NOT GLUTEN FREE.

I WENT WAS TOLD THAT THE TYLENOL GRAPES SUSPENSION - ACTUALLY ALL HAVE BEEN REFORMULTATED- THAT THEY HAVEN'T BEEN TESTED YET.. ON THE GLUTEN FREE.COM SITE- THE DRUG LIST PAGE- IT IS LISTED- AND I SENT A LETTER AND WHAT I WROTE ABOVE IS WHAT THE DR. WAS TOLD..

I SWEAR, IT DEPENDS WITH SOME COMPANIES WHO YOU SPEAK WITH - I WAS TOLD ROBITUSSEN WAS SAFE.. SEE? THIS REALLY STINKS WHEN 2 PPL CAN CALL AND GET 2 DIFFERENT ANSWERS.. GLGL AND HAPPY HALLOWEEN

LYNN

JennyC Enthusiast
Dear Jenny

this is very odd because i have called triaminic 2 times now. The Purple bottle- NIGHT TIME COUGH AND COLD- IS NOT GLUTEN FREE.

I WENT WAS TOLD THAT THE TYLENOL GRAPES SUSPENSION - ACTUALLY ALL HAVE BEEN REFORMULTATED- THAT THEY HAVEN'T BEEN TESTED YET.. ON THE GLUTEN FREE.COM SITE- THE DRUG LIST PAGE- IT IS LISTED- AND I SENT A LETTER AND WHAT I WROTE ABOVE IS WHAT THE DR. WAS TOLD..

I SWEAR, IT DEPENDS WITH SOME COMPANIES WHO YOU SPEAK WITH - I WAS TOLD ROBITUSSEN WAS SAFE.. SEE? THIS REALLY STINKS WHEN 2 PPL CAN CALL AND GET 2 DIFFERENT ANSWERS.. GLGL AND HAPPY HALLOWEEN

LYNN

Yes, it is frustrating! If I'm unsure I call companies multiple times to talk to multiple people. Like I said, I plan on calling Triaminic again--I don't believe them! On the gluten-free list from Tylenol there was a blurb about how some grape and very very berry strawberry flavors have been reformulated and have not yet been tested. Even with these reformulations, they do not expect to find gluten in them. All their ingredients are gluten free. What they're really testing against is any possible cross contamination. Out of all the brands I trust Tylenol the most. I will likely stick to their products. On top of not using gluten ingredients, they test random products for cross contamination.

I think I'll call Walmart and get a list of their medications as well. They sell their brand of Robitussin like products. Tylenol does not have products containing expectorants, and sometimes those medications are very helpful.

mouth Enthusiast
Yes, it is frustrating! If I'm unsure I call companies multiple times to talk to multiple people. Like I said, I plan on calling Triaminic again--I don't believe them! On the gluten-free list from Tylenol there was a blurb about how some grape and very very berry strawberry flavors have been reformulated and have not yet been tested. Even with these reformulations, they do not expect to find gluten in them. All their ingredients are gluten free. What they're really testing against is any possible cross contamination. Out of all the brands I trust Tylenol the most. I will likely stick to their products. On top of not using gluten ingredients, they test random products for cross contamination.

I think I'll call Walmart and get a list of their medications as well. They sell their brand of Robitussin like products. Tylenol does not have products containing expectorants, and sometimes those medications are very helpful.

SEND ME EMAIL.. MY EMAIL IS mightymouth1234@aol.com.

i will send you the letter that i just got !!!!!!!!

IN THE SUBJECT PUT UMM... U'R NAME AND CELIAC.COM AND I WILL KNOW WHO IT IS AND THAT ITS NOT SPAM.

LYNN

lynn

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.