Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Possible And Can Anyone Tell Me What It Means?


holiday16

Recommended Posts

holiday16 Enthusiast

I seem to have a problem when I have anything made with milk, but if I have cheese it doesn't seem to bother me. Is there more of something in milk than cheese? I know I've seen it mentioned that hard cheese has less casein so could that be it? It's so confusing because dairy can take so many forms! I had a bit of milk in my coffee today and now my head hurts, but if I have cheese I seem to be o.k.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Silly Yak Pete Rookie

I have been having horrible headaches lately I wonder if that can be from my lactose intolerence but i have been using the lactose free cheese and very little lactaid milk lately.

Guest Doll
I seem to have a problem when I have anything made with milk, but if I have cheese it doesn't seem to bother me. Is there more of something in milk than cheese? I know I've seen it mentioned that hard cheese has less casein so could that be it? It's so confusing because dairy can take so many forms! I had a bit of milk in my coffee today and now my head hurts, but if I have cheese I seem to be o.k.

It sounds like you don't (necessarily) have a problem with casein, you have a problem with *lactose*. In other words, you have lactose intolerance. Both cheese and milk have casein, but cheese has very little to no lactose.

Lactose is milk sugar. You can buy lactose free milk or use Lactaid tablets.

If your lactose intolerance is caused by Celiac, you may be able to tolerate dairy again once your intestines have healed.

If someone tests positive for casein intolerance (IgG or IgA antibodies) or an IgE milk allergy, they are reacting to the milk PROTEIN. The only treatment is to strictly avoid all dairy 100%.

You'd have to keep a record of your reactions. A headache is not common with lactose intolerance (usually you have GI symptoms). You'd have to make sure you didn't get a headache from the caffeine in the coffee, etc. or some other cause. If in doubt, cut out all dairy 100 % or see your doctor for futher testing. A simple blood test can tell you if you have antibodies to milk. Lactose intolerance is dx using the Hydrogen Breat Test.

Hope you feel better soon!

holiday16 Enthusiast

Thank you! I seem to be able to trace it down to lactose. I found this site which tells how much lactose is in different products and it correlates with the degrees of symptoms I've been having.

Open Original Shared Link

My worst reaction was after having some hot chocolate made from a mix and after seeing that website and finding out it's about 50% lactose that makes sense now! I did some looking around and found headaches can be a symptom. When I had that hot chocolate my whole head felt "swollen". A bit like having a bad sinus infection. That was followed by unbelievable intestinal pain.

I'm just relieved it's lactose related and not casein. My daughter can't have casein and that is so much harder in comparison it's ridiculous. Guess having to deal with that puts this in perspective for me. I just don't understand why it would show up now after being on the gluten free diet for almost a year. I would have thought this would have been a problem in the beginning, not now?

tom Contributor
Open Original Shared Link

Whoa! Great site!!

I've occasionally thought of looking for such info.

I've been off dairy for 3+ yrs and haven't been paticularly concerned about whether it's just casein or also lactose.

Figured I might look into it someday.

This is a good start. Thx for the link! :)

aikiducky Apprentice
I just don't understand why it would show up now after being on the gluten free diet for almost a year. I would have thought this would have been a problem in the beginning, not now?
It might just be because you are getting older. Children's bodies produce lactase, the enzyme needed to digest lactose, but as you grow up, many people stop producing it at all. Some people in dairy consuming countries continue producing the enzyme longer but it can get less as you age. And different people produce different amounts so you have a very personal limit of how much dairy you can have in one day. So it could be unrelated to celiac and just happened to happen now.

Pauliina

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,054
    • Most Online (within 30 mins)
      7,748

    SteveWW
    Newest Member
    SteveWW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.