Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Possible And Can Anyone Tell Me What It Means?


holiday16

Recommended Posts

holiday16 Enthusiast

I seem to have a problem when I have anything made with milk, but if I have cheese it doesn't seem to bother me. Is there more of something in milk than cheese? I know I've seen it mentioned that hard cheese has less casein so could that be it? It's so confusing because dairy can take so many forms! I had a bit of milk in my coffee today and now my head hurts, but if I have cheese I seem to be o.k.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Silly Yak Pete Rookie

I have been having horrible headaches lately I wonder if that can be from my lactose intolerence but i have been using the lactose free cheese and very little lactaid milk lately.

Guest Doll
I seem to have a problem when I have anything made with milk, but if I have cheese it doesn't seem to bother me. Is there more of something in milk than cheese? I know I've seen it mentioned that hard cheese has less casein so could that be it? It's so confusing because dairy can take so many forms! I had a bit of milk in my coffee today and now my head hurts, but if I have cheese I seem to be o.k.

It sounds like you don't (necessarily) have a problem with casein, you have a problem with *lactose*. In other words, you have lactose intolerance. Both cheese and milk have casein, but cheese has very little to no lactose.

Lactose is milk sugar. You can buy lactose free milk or use Lactaid tablets.

If your lactose intolerance is caused by Celiac, you may be able to tolerate dairy again once your intestines have healed.

If someone tests positive for casein intolerance (IgG or IgA antibodies) or an IgE milk allergy, they are reacting to the milk PROTEIN. The only treatment is to strictly avoid all dairy 100%.

You'd have to keep a record of your reactions. A headache is not common with lactose intolerance (usually you have GI symptoms). You'd have to make sure you didn't get a headache from the caffeine in the coffee, etc. or some other cause. If in doubt, cut out all dairy 100 % or see your doctor for futher testing. A simple blood test can tell you if you have antibodies to milk. Lactose intolerance is dx using the Hydrogen Breat Test.

Hope you feel better soon!

holiday16 Enthusiast

Thank you! I seem to be able to trace it down to lactose. I found this site which tells how much lactose is in different products and it correlates with the degrees of symptoms I've been having.

Open Original Shared Link

My worst reaction was after having some hot chocolate made from a mix and after seeing that website and finding out it's about 50% lactose that makes sense now! I did some looking around and found headaches can be a symptom. When I had that hot chocolate my whole head felt "swollen". A bit like having a bad sinus infection. That was followed by unbelievable intestinal pain.

I'm just relieved it's lactose related and not casein. My daughter can't have casein and that is so much harder in comparison it's ridiculous. Guess having to deal with that puts this in perspective for me. I just don't understand why it would show up now after being on the gluten free diet for almost a year. I would have thought this would have been a problem in the beginning, not now?

tom Contributor
Open Original Shared Link

Whoa! Great site!!

I've occasionally thought of looking for such info.

I've been off dairy for 3+ yrs and haven't been paticularly concerned about whether it's just casein or also lactose.

Figured I might look into it someday.

This is a good start. Thx for the link! :)

aikiducky Apprentice
I just don't understand why it would show up now after being on the gluten free diet for almost a year. I would have thought this would have been a problem in the beginning, not now?
It might just be because you are getting older. Children's bodies produce lactase, the enzyme needed to digest lactose, but as you grow up, many people stop producing it at all. Some people in dairy consuming countries continue producing the enzyme longer but it can get less as you age. And different people produce different amounts so you have a very personal limit of how much dairy you can have in one day. So it could be unrelated to celiac and just happened to happen now.

Pauliina

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,809
    • Most Online (within 30 mins)
      7,748

    Ello
    Newest Member
    Ello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.