Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terms


Tim-n-VA

Recommended Posts

Tim-n-VA Contributor

I've noticed some inconsistency in these terms, especially intolerance. For example, some people use intolerance as a separate thing from celiac and allergies and some people use intolerance as an umbrella term that covers any reaction to gluten for any reason.

This article (Open Original Shared Link) on WebMD defines intolerance as a digestive system response where allergies and celiac are immune system responses.

How widely accepted/used is that distinction?

I know some people think it doesn't matter because the best treatment is the same: Don't eat gluten.

However, as was pointed out in another thread, if you have allergies (or allergies in addition to an intolerance or celiac) antihistimines can help alleviate symptoms. Also, since there is a correlation between other auto-immune diseases, knowing exactly why that gluten makes you sick can be important in the sense of knowing what else to look for.

What does "gluten intolerance" mean to you?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

There IS a great deal of inconsistency in the use of terms.

To my mind, something is an allergy if your immune system responds to it. It doesn't make any difference if it is immediate or delayed onset, IgE mediated or not. But many doctors will only put the label allergy on something that is immediate onset and IgE mediated -- the sort of thing that antihistimines will work on.

I consider myself to have several intolerances. But they were confirmed by a test finding antibodies. By what strange use of language are antibodies NOT part of an immune response?

I also have no problem telling folks in restaurants that I am allergic. I am having adverse, immune system responses to things. They seem to take better care of me that way. If you say "intolerant" it is as if you just have problems digesting something or don't like it for some reason. (Remember the recent thread about gastroenterologists at a meeting treating intolerances as often "psychological adversion" to particular foods?)

This provides an opportunity to ask if anyone else has the same experience as I have. I'm not sure that the different systems (immediate versus delayed, IgE versus IgG/IgA, etc.) are completely distinct. I had skin prick testing years ago; it said I had no "allergies." However, I get histimine-type responses to things and antihistimines WORK in those instances. The things that I had IgA antibodies to also give me histimine reactions and I find taking antihistimines useful. (Doesn't deal with the gastro issues or brain fog, but clears up the runny nose & sinus headache.) Can a person develop IgE mediated, immediate onset allergies over time, can they be created by other sorts of immune responses over time? Or perhaps the skin prick testing was inaccurate? (I've even read somewhere that skin prick testing can CAUSE allergies because it puts the potential allergens into your blood stream ...)

JennyC Enthusiast

I hope this helps...

Allergy-a foreign substance that your body mounts a reaction to, like pollen. It can be an anaphylactic reaction or not. This process is largely dependent upon antibody secretion and mast cells.

Intolerance-the inability to digest food. For example, people with lactose intolerance do not produce the enzyme (lactase) to digest lactose. Subsequent effects of this can cause stomach upset.

Celiac disease-an insanely complicated autoimmune reaction that takes place when susceptible individuals consume gluten. It does not involve mast cells, and different antibodies are involved. It is mainly the result of T-cells and cytokine release.

For anyone who is interested here is a great article that explains celiac disease in an extremely in depth way:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,090
    • Most Online (within 30 mins)
      7,748

    Jamie B
    Newest Member
    Jamie B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.