Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terms


Tim-n-VA

Recommended Posts

Tim-n-VA Contributor

I've noticed some inconsistency in these terms, especially intolerance. For example, some people use intolerance as a separate thing from celiac and allergies and some people use intolerance as an umbrella term that covers any reaction to gluten for any reason.

This article (Open Original Shared Link) on WebMD defines intolerance as a digestive system response where allergies and celiac are immune system responses.

How widely accepted/used is that distinction?

I know some people think it doesn't matter because the best treatment is the same: Don't eat gluten.

However, as was pointed out in another thread, if you have allergies (or allergies in addition to an intolerance or celiac) antihistimines can help alleviate symptoms. Also, since there is a correlation between other auto-immune diseases, knowing exactly why that gluten makes you sick can be important in the sense of knowing what else to look for.

What does "gluten intolerance" mean to you?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

There IS a great deal of inconsistency in the use of terms.

To my mind, something is an allergy if your immune system responds to it. It doesn't make any difference if it is immediate or delayed onset, IgE mediated or not. But many doctors will only put the label allergy on something that is immediate onset and IgE mediated -- the sort of thing that antihistimines will work on.

I consider myself to have several intolerances. But they were confirmed by a test finding antibodies. By what strange use of language are antibodies NOT part of an immune response?

I also have no problem telling folks in restaurants that I am allergic. I am having adverse, immune system responses to things. They seem to take better care of me that way. If you say "intolerant" it is as if you just have problems digesting something or don't like it for some reason. (Remember the recent thread about gastroenterologists at a meeting treating intolerances as often "psychological adversion" to particular foods?)

This provides an opportunity to ask if anyone else has the same experience as I have. I'm not sure that the different systems (immediate versus delayed, IgE versus IgG/IgA, etc.) are completely distinct. I had skin prick testing years ago; it said I had no "allergies." However, I get histimine-type responses to things and antihistimines WORK in those instances. The things that I had IgA antibodies to also give me histimine reactions and I find taking antihistimines useful. (Doesn't deal with the gastro issues or brain fog, but clears up the runny nose & sinus headache.) Can a person develop IgE mediated, immediate onset allergies over time, can they be created by other sorts of immune responses over time? Or perhaps the skin prick testing was inaccurate? (I've even read somewhere that skin prick testing can CAUSE allergies because it puts the potential allergens into your blood stream ...)

JennyC Enthusiast

I hope this helps...

Allergy-a foreign substance that your body mounts a reaction to, like pollen. It can be an anaphylactic reaction or not. This process is largely dependent upon antibody secretion and mast cells.

Intolerance-the inability to digest food. For example, people with lactose intolerance do not produce the enzyme (lactase) to digest lactose. Subsequent effects of this can cause stomach upset.

Celiac disease-an insanely complicated autoimmune reaction that takes place when susceptible individuals consume gluten. It does not involve mast cells, and different antibodies are involved. It is mainly the result of T-cells and cytokine release.

For anyone who is interested here is a great article that explains celiac disease in an extremely in depth way:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.