Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terms


Tim-n-VA

Recommended Posts

Tim-n-VA Contributor

I've noticed some inconsistency in these terms, especially intolerance. For example, some people use intolerance as a separate thing from celiac and allergies and some people use intolerance as an umbrella term that covers any reaction to gluten for any reason.

This article (Open Original Shared Link) on WebMD defines intolerance as a digestive system response where allergies and celiac are immune system responses.

How widely accepted/used is that distinction?

I know some people think it doesn't matter because the best treatment is the same: Don't eat gluten.

However, as was pointed out in another thread, if you have allergies (or allergies in addition to an intolerance or celiac) antihistimines can help alleviate symptoms. Also, since there is a correlation between other auto-immune diseases, knowing exactly why that gluten makes you sick can be important in the sense of knowing what else to look for.

What does "gluten intolerance" mean to you?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

There IS a great deal of inconsistency in the use of terms.

To my mind, something is an allergy if your immune system responds to it. It doesn't make any difference if it is immediate or delayed onset, IgE mediated or not. But many doctors will only put the label allergy on something that is immediate onset and IgE mediated -- the sort of thing that antihistimines will work on.

I consider myself to have several intolerances. But they were confirmed by a test finding antibodies. By what strange use of language are antibodies NOT part of an immune response?

I also have no problem telling folks in restaurants that I am allergic. I am having adverse, immune system responses to things. They seem to take better care of me that way. If you say "intolerant" it is as if you just have problems digesting something or don't like it for some reason. (Remember the recent thread about gastroenterologists at a meeting treating intolerances as often "psychological adversion" to particular foods?)

This provides an opportunity to ask if anyone else has the same experience as I have. I'm not sure that the different systems (immediate versus delayed, IgE versus IgG/IgA, etc.) are completely distinct. I had skin prick testing years ago; it said I had no "allergies." However, I get histimine-type responses to things and antihistimines WORK in those instances. The things that I had IgA antibodies to also give me histimine reactions and I find taking antihistimines useful. (Doesn't deal with the gastro issues or brain fog, but clears up the runny nose & sinus headache.) Can a person develop IgE mediated, immediate onset allergies over time, can they be created by other sorts of immune responses over time? Or perhaps the skin prick testing was inaccurate? (I've even read somewhere that skin prick testing can CAUSE allergies because it puts the potential allergens into your blood stream ...)

JennyC Enthusiast

I hope this helps...

Allergy-a foreign substance that your body mounts a reaction to, like pollen. It can be an anaphylactic reaction or not. This process is largely dependent upon antibody secretion and mast cells.

Intolerance-the inability to digest food. For example, people with lactose intolerance do not produce the enzyme (lactase) to digest lactose. Subsequent effects of this can cause stomach upset.

Celiac disease-an insanely complicated autoimmune reaction that takes place when susceptible individuals consume gluten. It does not involve mast cells, and different antibodies are involved. It is mainly the result of T-cells and cytokine release.

For anyone who is interested here is a great article that explains celiac disease in an extremely in depth way:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    2. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog

    5. - Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Gluten free nuts


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,274
    • Most Online (within 30 mins)
      7,748

    Alea sargent
    Newest Member
    Alea sargent
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.