Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long For Test Results For


ptkds

Recommended Posts

ptkds Community Regular

I went to see my PCP on friday cuz I have been suffering from joint achiness in the morning, severe fatigue, etc. He is testing my for Lupus, RA, and Fibro. I am really scared it is Lupus because I have lots of symptoms. Anyway, they did the bloodwork on Friday, so when will they be back? I just didn't know if they would be back pretty quick, or if I am in for a long wait.

Thanks!

ptkds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

To my knowledge, there isn't a blood test for fibromyalgia...it is dx'ed after ruling out other things (like lupus, ra, ms, etc) and a physical exam, tender points, etc.

It depends on who does the bloodwork...do they use an outside lab (like LabCorp, Quest, etc.) or if they do it themselves.

Are they calling you with results (and if so, do they only call if positive, or do they call if its negative, also) or will you be informed at your next appointment?

Might be worth it to call and clarify the above points.

Best of luck and I hope you find some answers.

Rachel--24 Collaborator

You might want to consider a Lyme test as well. All of those conditions are frequently confused with Lyme and misdiagnoses are common.

The standard labs are unreliable...Igenex has a higher sensitivity and more reliable results.

You can read more about this lab and Lyme testing in my posts on the recent Fibromyalgia thread in this forum.

Good luck!!

ptkds Community Regular
You might want to consider a Lyme test as well. All of those conditions are frequently confused with Lyme and misdiagnoses are common.

The standard labs are unreliable...Igenex has a higher sensitivity and more reliable results.

You can read more about this lab and Lyme testing in my posts on the recent Fibromyalgia thread in this forum.

Good luck!!

Don't I have to be bitten by a tick to get Lyme? Or is there some other way to get it. I KNOW I have NEVER had a tick on me. So I have never really considered Lyme becaus of that.

Thanks!

Fiddle-Faddle Community Regular

When I was tested for Lupus and RA, it took nearly 2 weeks to get the results, but I don't know if that was just red tape or if the test really took that long.

I would consider Lyme as well. Most who test positive for Lyme do not recall a tick anywhere near them, and it does masquerade as nearly everything you can think of, including RA, lupus, and MS. Also, doctors are notoriously uneducated about Lyme--you would need to find a "Lyme-literate" doctor. You can do a Lyme search on this board and also check out Lymenet for more info, but Rachel here is probably the most well-researched source you will find!

Rachel--24 Collaborator
Don't I have to be bitten by a tick to get Lyme? Or is there some other way to get it. I KNOW I have NEVER had a tick on me. So I have never really considered Lyme becaus of that.

Thanks!

I actually never saw a tick on me either. I didnt even know what they looked like! :huh:

I do have Lyme and one co-infection (that we know of at this time).

In getting tested for all of the possible contributers...these things came up but dont seem to be the primary cause of my symptoms. I dont have the RA, Lupus, or Fibro type symptoms....although I was tested for those things early on. I was NOT tested for Lyme even though I requested it at that time. I was denied the testing.

I later switched insurance...left my HMO and went to better Dr.'s. In the first 10 minutes spent with my new Dr. he asked if I'd been tested for Lyme....I told him I had not and he had the nurses draw blood to be sent to Igenex that same day. :)

Alot of people with Lyme were never aware of having been exposed. Its something like 30% of infected people that actually had a rash and were aware of the bite.

I did have Fibro symptoms early on but they improved with diet changes as well as avoidance of chemicals.

My symptoms were brought on by heavy metals and fungal issues....Lyme is somewhere in the mix and its being treated so that it does not get out of hand as my immune system is quite overwhelmed right now.

Many people who have been exposed to Lyme are asymptomatic but those who are having symptoms of chronic illness should be tested....especially since Lyme does mimick (or cause) Fibro, RA, Lupus, MS, CFS, etc.

Lyme has been identified in medical journals as a probable cause of multiple sclerosis, rheumatoid arthritis, lupus, fibromyalgia, Alzheimer
Fiddle-Faddle Community Regular
Many people who have been exposed to Lyme are asymptomatic but those who are having symptoms of chronic illness should be tested....especially since Lyme does mimick (or cause) Fibro, RA, Lupus, MS, CFS, etc.

Question: I suppose asymptomatic people don't get tested--but if they are asymptomatic, should they be treated? I know that sounds like a no-brainer, but Peter Duesberg has proven that AIDS deaths were caused not by the AIDS virus, but by AZT, which means that not all infections necessarily need to be treated. But do we know that people can remain symptom-free from Lyme but still be infected?

Sorry, I'm tired--I know I'm not being very clear here... :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
Question: I suppose asymptomatic people don't get tested--but if they are asymptomatic, should they be treated? I know that sounds like a no-brainer, but Peter Duesberg has proven that AIDS deaths were caused not by the AIDS virus, but by AZT, which means that not all infections necessarily need to be treated. But do we know that people can remain symptom-free from Lyme but still be infected?

Sorry, I'm tired--I know I'm not being very clear here... :rolleyes:

I dont believe an asymptomatic person needs treatment....if they are not sick it means that their immune system is doing a good job of keeping it under control. Of course that can change over time....especially while a person is under stress or aquiring additional infections or toxins.

Personally, I dont think its necessary to treat in the absence of symptoms since some people *can* remain symptom-free while infected. Everything depends on the state of the immune system.

To me the biggest concern in not treating would be the possibility of a mother passing it on to her child....which is not uncommon and the majority of ASD kids test positive for Lyme.

But yeah....people who are not symptomatic have no reason to be tested. Not all of the moms are asymptomatic....many have autoimmune diseases, Fibro, etc. They just arent aware that they also have Lyme.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.