Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ignorant Relative.....


LoveBeingATwin

Recommended Posts

LoveBeingATwin Enthusiast

Hi Everyone!

I haven't checked in for a while but new right where to go to get advise. Last night my ignorant cousin said something to me and I almost fell out of my chair. We were all having dinner...brought my own noodles so I too could enjoy the spahetti dinner. We were eating and she said to me " I cant wait to get sick like you so I can lose weight". I was almost dumb founded at first. I told her first of all I am not "sick" , secondly I have an autoimmune disorder wich obviously like everyone knows a modification in your diet is the only way to go and thirdly, I have never eaten so healthy since being diagnosed that I feel really good and I actually am starting to lose weight from all of the bloating, malabsoption, etc.

She was like "oh". I said you to could lose weight if you wanted to. First you would obviously need to change your diet. I told her I get to treat myself also, but I don't eat near as much junk and I use to. I just thought it was kind of rude, hence the lack of knowledge she has, that she would say I was sick. I have known people that have been sick, my friend with breast cancer, and I told her she should never wish upon herself or anyone for that matter for a sickness, just to lose weight. Let me tell you I piped right up after her comment to inform her of what is "really" wrong with me. I was not rude, yet I new I had to stick up for myself. At the end she was like, "ya, I guess that didn't sound right". I told her she needed to look up Celiac Disease so she new what was going on with me.

Just thought I would share with all of you because I know it has happened to you. Take care.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

I get that from my husband! Gain a few pounds, just eat a pizza and there goes the weight. Nice huh!

Family sucks sometimes! Eventually they wake up.

Glad to hear you explained life and included the little -stop eating the junk food and eat healthier and you too can drop some pounds. Perfect!

kbtoyssni Contributor

Nice job explaining why she doesn't want to be sick like you. I think people don't realize that this more than "oh, I got the flu and couldn't eat for three days and lost five pounds." It might be because most people didn't see how sick we were for so long. I used to stay in when I was very sick and tried to put on a happy face when I was just a little sick. The trade-off for losing weight by eating gluten is cancer, depression, brain fog, Alzheimer's, etc. That's not worth the weight lost, imo.

melmak5 Contributor

I second the "you did a great job responding/explaining"

I think it is really telling about our society (I am making a broad-sweeping generalization here) that "thin" is so valuable that sickness and thin is preferable to healthy and fat. (even if there is a misunderstanding about the illness)

I cannot tell you how many people have come up to me and said "you don't LOOK sick" or complimented me on loosing weight or said "well, at least you are loosing weight, you cannot be mad at that"

I was not as classy as you and would respond with an extended fist: "why yes, it is FANTASTIC having to go to the bathroom, with urgency, 5-8x a day, I just LOVE this weight loss plan of eat and it feels like someone is punching me in the gut. Want to try?"

bakingbarb Enthusiast

Very intresting how people respond. I think some people just don't get it. Wonder what else they just don't get. Actully my other half forgets all the time. I am not hurt by it, he is so good to me and I know he doesn't do to be mean. I mentioned that last night to him and his buddy says "you don't know men very well do you." He said they forget stuff literaly all the the time.

My ex husbands mother stayed with us once and I took her to get her hair cut. The girl doing the hair cut says something like, she has a terrible hair cut what do you expect me to do with this. She had been just able to grow her hair to barely neck lenght after cancer treatment. :angry: People choose to be ignorant but men I just don't know about them! LOL

Centa Newbie
I told her first of all I am not "sick" , secondly I have an autoimmune disorder wich obviously like everyone knows a modification in your diet is the only way to go and thirdly, I have never eaten so healthy

This is a hotbutton item for me, too. I've been called "disabled", too, and had my stories of recuperation waved away...creepy: they refused to acknowledge my return to wellbeing. What, they preferred me sickly?? Don't like that attitude....

That hairdresser was pretty insensitive, bakingbarb...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.