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Could It Still Be Celiac

esmee

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esmee Newbie
esmee
Posted

Hi everyone,

I have been reading here for some time, but never posted before.

So here goes, and I am sorry if this is a long post :(

Since 2001 I have thyroid troubles (hashimoto

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darlindeb25 Collaborator
darlindeb25
Posted
;) hi esmee--i cant say you are barking up the wrong tree and going gluten free cant hurt you--living without these grains will not cause you damage and it may be the answer you are looking for---you dont have to be full blown celiac to have gluten intolerances--i am not a doctor diagnosed celiac, although my sister is and that increases my odds so much more, also my dad and gluten-free gave me back my life--i will never go back :D deb
llj012564 Newbie
llj012564
Posted

I agree with Deb , the diet wont hurt you but you have to be strict or you wont know if it is helping you. You may also want to do the genetic testing if you think that you have to know 100% . For me my blood test was positive and the diet made such a difference I didnt see a need for the other tests. Just an added note .... when I started the diet I went very basic only fresh to start then added things one at a time to see how I reacted to them. I had to do this because I knew I had trouble with dairy and thought maybe there would be other things that bothered me so I started slow with only fresh foods. I discovered I ate really unhealthy b4 <_< Its much better now B) Good luck

tarnalberry Community Regular
tarnalberry
Posted

While the chances are lower with the negative blood tests, they're still not zero. And only taking two biopsies ... well... that test isn't going to tell you much other than you don't have a raging case of celiac that's destroyed your entire collection of intestinal villi. <_<

The symptoms certainly could be consistent with celiac, but I'm sure there are other things as well. You might consider trying to go gluten-free for two or three months and see if you feel better. If you're uncertain, you could do a gluten challenge (eat some shredded wheat, or some other simple wheat product, not bread (which has yeast and other potential issues)) and see if that causes symptoms again. Of course, it's a very personal decision. Good luck!

celiac3270 Collaborator
celiac3270
Posted

Whether or not it's celiac, it can't hurt to try the diet. Numerous here don't know for sure that they have celiac disease, but the diet cleared up their symptoms and that's enough. Try it for a couple of months and see what happens...if you get better with the diet, then regardless of whether its celiac disease or a wheat allergy or whatever, you've discovered what is causing these symptoms----well, what FOODS and INGREDIENTS are causing the symptoms, if not the specific allergy or intolerance

Carriefaith Enthusiast
Carriefaith
Posted

Even if you don't have celiac disease you may be gluten intolerant or wheat intolerant. You can get a blood test that checks for wheat intolerance. I think the diet is worth a try. Also have you been checked for crohn's disease?

esmee Newbie
esmee
Posted
  • Author

Hi,

Thanks for your replies!

After 5 days of being gluten-free I messed up again in a restaurant, and with Christmas coming up I have decided to give it a rest for now, but to give it a serious try in january. It would be so much easier if I had a positive test, now it is just guessing!

So, for now I am back on pasta and bread, but I will go gluten-free in january and see what happens.

Thanks,

Esmee

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