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New To This Forum & I Need Personal Advice

Squeak

By Squeak
in Coping with Celiac Disease

Recommended Posts

Squeak Newbie
Squeak
Posted

Hello I am new to this forum. My nightmare pretty much started about 3 years ago. :( I still haven't found out forsure if I actually have Celiac but I know the gluten-free diet has really helped. I still have another issue though and was wondering if anyone else does.....I've tried everything and I am ready to try anything else! I am still having problems going to the washroom :unsure: Is there anything that I can try that someone else has had success with. Please help! I've tried fibre with lots of water, flax meal, omega 3 oil, magnesium, prune juice etc. the list goes on!

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wowzer Community Regular
wowzer
Posted

I know everyone has to find what works for them. Both of my children had problems when they were little. For my daughter apricots were the key. For my son my pediatrician said a mixture of blueberries, watermelon, cantelope. I know too much watermelon will do it for me. Plums worked better for my son than prunes. For me my morning coffee usually does the trick!!! Good Luck

Idiote Savante Goddess Rookie
Idiote Savante Goddess
Posted

Celery or celery juice (you can buy it bottled at the greengrocer's, but read the label in case it's got some gluten in it -- unlikely, but these days, you never know).

Ridgewalker Contributor
Ridgewalker
Posted

Fresh green grapes often help my kids out.

Also, a nurse once gave me this tip, and it worked really well. Mix prune juice in WARM 7-up. The mixture needs to be at least room-temp, or a little warmer. I don't know why it has to be warm, but something about it works much better than if it's drunk cold.

Ursa Major Collaborator
Ursa Major
Posted

You may want to eliminate dairy as well, it is known to cause constipation. Many of us are casein intolerant as well as gluten intolerant (and lots are soy intolerant as well), and wouldn't get really better until eliminating dairy.

Shotzy1313 Apprentice
Shotzy1313
Posted
Hello I am new to this forum. My nightmare pretty much started about 3 years ago. :( I still haven't found out forsure if I actually have Celiac but I know the gluten-free diet has really helped. I still have another issue though and was wondering if anyone else does.....I've tried everything and I am ready to try anything else! I am still having problems going to the washroom :unsure: Is there anything that I can try that someone else has had success with. Please help! I've tried fibre with lots of water, flax meal, omega 3 oil, magnesium, prune juice etc. the list goes on!

Drink alot of beer this makes me go to the bathroom nonstop some nights! Try redbridge for gluten free beer.

J/k about above comment. :) Try drinking more water? Could be dehydrated.

kevsmom Contributor
kevsmom
Posted

Welcome, Squeak! I would try the suggestions listed (except for the beer :rolleyes: ), and if they don't work, search the forum for other suggestions that people have posted. Everyone's system is different.

Cindy

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hathor Contributor
hathor
Posted

I second the notion of going casein free. Many people, including me, bind up for days with the mere hint of the stuff. (Elmer's Glue started out with a mixture based on casein. Hence the cow on the bottle. That should tell you something :rolleyes: )

Some people react to soy (also a source for glue) or other foods. Have you tried a food diary to see if your problems occur more following certain foods? I've heard more than one person who can't eat white potatoes without getting constipation, for instance.

Absent some other food intolerance:

Do you exercise?

How much magnesium have you tried? I have to take quite a bit.

How much insoluble fiber do you get in a typical day? A fiber supplement might not do much if you are really deficient in your usual diet.

The more veggies I eat, the better things work for me. I could eat a whole box of prunes and have nothing happen. I suppose people vary.

I recently read someone online who had success with a combo of Vitamin C & magnesium.

When I still have problems and it has been days, I use senna tea. But I don't think this is something one should use every day.

How long have you been gluten-free? It can take months for one's system to get working properly. It may take longer the longer one has had a problem. You may respond quicker than I have, for instance. I've had this problem my entire life (I'm 54 now).

BTW your comment about still not knowing for sure if you have celiac raised the issue in my mind -- are you contemplating testing? If so, you should know that a gluten-free diet invalidates the results of blood and biopsy testing. You can do Enterolab testing up to a year after going gluten-free.

bakingbarb Enthusiast
bakingbarb
Posted

Seems that what everyone is suggesting is mainly vegetable in form, but fruit works wonders. Ya know that old saying an apple a day keeps the dr away! We go to an orchard and pick up apples that taste so much better then in the store so we want to eat them. Oh and someone suggsted water, yes lots of that.

It seems to me that the wheat and grains we gave up are fibers that help in that dept. so you have to work to replace that.

Quite honestly there isn't really any better advice unless maybe you are blocked and need some initial help. Then make sure you eat your extra fruits and veggies.

My Grandmother would feed you dried fruit, apples or an orange and have you go for a walk!

Oh and walking after eating dried fruit works rather quickly, just don't get too far from your bathroom. You might be in for a surprise on this one! ;)

kevsmom Contributor
kevsmom
Posted

When I still have problems and it has been days, I use senna tea. But I don't think this is something one should use every day.

I remember my father's mother drinking senna pod tea every day (Over 40 years ago). She insisted she could not go to the bathroom without it. She was never tested or diagnosed as having Celiac.

My father had an iliostomy because of ulcerative colitis 20 plus years ago...he also was never tested or diagnosed for Celiac.

Gee...I wonder where my brother and I got Celiac from?

Cindy

southern doll Newbie
southern doll
Posted
Hello I am new to this forum. My nightmare pretty much started about 3 years ago. :( I still haven't found out forsure if I actually have Celiac but I know the gluten-free diet has really helped. I still have another issue though and was wondering if anyone else does.....I've tried everything and I am ready to try anything else! I am still having problems going to the washroom :unsure: Is there anything that I can try that someone else has had success with. Please help! I've tried fibre with lots of water, flax meal, omega 3 oil, magnesium, prune juice etc. the list goes on!
hello, i am new to this forum to. i have had all kinds of problems most of my life, as for not going to the bathroom i have tried just about everything and what works for me is miralax. you canget it over the counter now , although i have a prescription from my doctor. i mix it in with my hot coffee every morning and it works great for me and thats a mircle! southern doll
Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Just keep in mind that any pharmaceutical product is a substitute for what we OUGHT to be getting in the foods we eat. If you need fiber, eat it!

Which makes me think that it might be a good idea if you post a day or two's worth of what you typically do eat, as that might very possibly be the whole problem. Also, what meds are you taking?

DownWithGluten Explorer
DownWithGluten
Posted
Hello I am new to this forum. My nightmare pretty much started about 3 years ago. :( I still haven't found out forsure if I actually have Celiac but I know the gluten-free diet has really helped. I still have another issue though and was wondering if anyone else does.....I've tried everything and I am ready to try anything else! I am still having problems going to the washroom :unsure: Is there anything that I can try that someone else has had success with. Please help! I've tried fibre with lots of water, flax meal, omega 3 oil, magnesium, prune juice etc. the list goes on!

hmm...how long ago did you start gluten-free? I too just did the diet w/o knowing if I had Celiac for sure. Immediately it removed a lot of the problems, but in the first month - I had really bad "C", and tried prune juice and other odd things. Not sure what happened. Maybe the influx of rice products (which stops you up, right?) and other things. Anyway, Triphila finally seemed to help. I take that on and off. Ever since that first month, the problem doesn't seem to be around. Well, okay, one time it was back, but I might have been "glutened." Anyway - good luck.

gfpaperdoll Rookie
gfpaperdoll
Posted

I second comment about giving up dairy...

rogihome Newbie
rogihome
Posted
Hello I am new to this forum. My nightmare pretty much started about 3 years ago. :( I still haven't found out forsure if I actually have Celiac but I know the gluten-free diet has really helped. I still have another issue though and was wondering if anyone else does.....I've tried everything and I am ready to try anything else! I am still having problems going to the washroom :unsure: Is there anything that I can try that someone else has had success with. Please help! I've tried fibre with lots of water, flax meal, omega 3 oil, magnesium, prune juice etc. the list goes on!
Squeak Newbie
Squeak
Posted
  • Author

Wow! Thanks everyone who has replied and has given me great advice! I've been pretty much gluten-free now for 2 years. I did go for a blood test but it was after I had started the diet and of course it came back negative. I also had a biopsy but I only ate gluten for 2 weeks before the test and it came back negative. The specialist then recomended that I eat gluten for 6 months and go back for the blood test. Ya like I am going to put myself through hell again! :o

To answer most of all your concerns. Yes I am fairly active, I go to the gym and I also play hockey. I eat pretty healthy too. I guess I could up the fruit for sure!

I don't take any meds other than the pill :unsure:

I took 250mg of magnesium x2 daily with the flax seed.

I don't think that dairy is my issue, but I will definately keep that in mind and see what happens.

I guess I just find it so hard to adjust to this. I use to be so normal before the nightmare started 3 years ago.

Its nice to come to this forum and finally chat to others that are going through the same thing. Thanks again everyone! I'll keep you posted on the outcome! :)

FootballFanatic Contributor
FootballFanatic
Posted

I second schotzy. DRINK MORE WATER! Add lots of fruits, bananas can be constipating....but juicy fruits are great, especially made into a smoothie.

I have constipation also, but I just tell myself when it gets painful that it is better than having unpredictable diarrhea....(no offense to those of you who do...)

Best of luck, I'll let you know if I find a cure!

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