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How Long Before You See Results From gluten-free Diet?

Kara'sMom

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Kara'sMom Explorer
Kara'sMom
Posted

My 9 yr old DD went from 60lbs to a steady 54 and hasnt' gained weight in months. This was the only sign of something wrong. She pretty much stopped eating a few months ago b/c she said she always felt like she was going to throw up..which she never did. She was diagnosed with acid reflux late August. She's been on Prilosec since then and when I took her back a month and a half later to her Dr...and she STILL hadnt' gained any weight...her Dr. said...time to take action...she's still 54lbs. So with a positive blood test and waiting for biopsy results...shes been gluten-free for two days.

I was wondering when you saw results in your child of feeling better and gaining weight? So far on the gluten-free diet...Kara is hungry constantly! And with the prices of the food....GEESH....I gotta win the lottery just to buy snack bars!!!!!!!!!!!

Thanks!

Mary

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wowzer Community Regular
wowzer
Posted

Hi, I think if your daughter is hungry all of the time, that is a good sign. That was one of the things that I noticed when I first went gluten free. I was feeling pretty good after about 2 weeks. Everyone is different. I noticed some improvements in the first couple of days. Since it is a different way of eating, I sometimes don't know what to eat. It sounds like she is on the mend, so I'm sure she will begin to gain her weight back. Good Luck

jamibrit Newbie
jamibrit
Posted

My 3 yo son lost 4 pounds- went from 29 to 25 lbs and gained them back after being gluten free for 2 weeks. He too is hungry all the time it seems. This is all very new to me so I don't know for sure if its a good sign but it seems to be.

Kara'sMom Explorer
Kara'sMom
Posted
  • Author

I am so new to this, too. Today is Kara's 3rd day gluten-free. Her first school day. She woke up not wanting to go to school...then when I had to read the lunch menu to my 6 yr old...she bursts out crying. Oh how I wanted to cry with her. I packed her a good lunch...but let's face it...it's not the pizza they're having today at school. My stomach is in knots thinking about her and what she's going through.

Do any of you give your kids Trix yogurt? I'm nervous about everything when it doesn't flat out say GLUTEN FREE.

Thanks.

jamibrit Newbie
jamibrit
Posted

I bought the shopping guide advertised on here and it says trix yogurt is fine (all the yoplait kids yogurts are ok). I also read on here that trix cereal is ok too, so I bought a box of it for my son to have at school when the kids are eating sugary snacks on someones birthday. Going to the grocery store is a daunting task these days, but the guide is actually very helpful.

shan Contributor
shan
Posted

sorry to say this, but my daughter had a reaction both to the trix and to pebbles cereals :(

jamibrit Newbie
jamibrit
Posted

oh no! ugh this is so frustrating.

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gfpaperdoll Rookie
gfpaperdoll
Posted

Kara's mom, I made this for my grandkids when they were gluten-free (long story, my son's fault they are not now gluten-free)

Take a white corn tortilla & butter one side put a slice of cheese on the other side, top with another corn tortilla, toast both sides in a skillet, just takes a bit, put precooked pizza toppings on top of the tortilla, bake in oven till heated thru, cut into wedges, wrap in foil, put in lunch... or let them have it for breakfast...

ShayBraMom Apprentice
ShayBraMom
Posted

I know the food is carzy expensive! but go here, that is her on CVeliac.com- they have a Shoppingguide about more then 20.000 products off the shelf in our supermakrets, that are naturally glutenfree or point them out with out us having to read uip on it. This should help cut your costs down, I'll buy me one too! https://www.celiac.com/catalog/product_info...products_id=802

good luck!!!!

My 9 yr old DD went from 60lbs to a steady 54 and hasnt' gained weight in months. This was the only sign of something wrong. She pretty much stopped eating a few months ago b/c she said she always felt like she was going to throw up..which she never did. She was diagnosed with acid reflux late August. She's been on Prilosec since then and when I took her back a month and a half later to her Dr...and she STILL hadnt' gained any weight...her Dr. said...time to take action...she's still 54lbs. So with a positive blood test and waiting for biopsy results...shes been gluten-free for two days.

I was wondering when you saw results in your child of feeling better and gaining weight? So far on the gluten-free diet...Kara is hungry constantly! And with the prices of the food....GEESH....I gotta win the lottery just to buy snack bars!!!!!!!!!!!

Thanks!

Mary

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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