Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Totally Frustrated


Burns22

Recommended Posts

Burns22 Newbie

Does anyone else have a TON of other allergies, in addition to gluten? My skin test was positive for gluten, corn, peanuts, cashews, cinnamon, white grapes, and strawberries (soy is a possibility). Plus, I'm already vegan. Where does one start? It's maddening to me when I have a reaction, wondering if I am uncovering yet another new and exciting allergy, or if I've unwittingly eaten something that was contaminated. Any feedback would be appreciated!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

I know many have other allergies on here on top of the gluten intolerance. I haven't went as far as to get tested, but I am debating doing the blood test. I take Singulair, so can't do the scratch test.

mamaw Community Regular

count me in on the zillion other allergies besides gluten intolerant....

codetalker Contributor

Count me in as well. In addition to gluten, I now have intolerances to soy, beans/peas, corn, eggs, dairy, nuts, chicken, potatoes, olives, cinnamon, safflower and canola oil. It's not, where do you start? It's, where and when does it stop? Taken together, gluten, soy and corn eliminate almost all processed food.

I prefer a vegan diet but that is impossible now. Meat and fish are my best choices for protein.

It was interesting to see you list cinnamon. I just found out about that one and your post was the only one I've ever seen that mentioned it.

I just did try to reintroduce cashews. Olive oil does not seem to bother me and I found a new brand of cashews that roasts the cashews in olive oil. I struck out on that one.

If you have found any less common foods that you can tolerate, please list them. I think a lot of people here are looking for alternatives. I've started eating a lot of parsnips and okra, neither of which had been part of my diet previously. For some reason, I can eat sweet potatoes but not regular potatoes (white, red, etc.). Wouldn't you know, the local grocery stopped selling them and is selling yams now (to which I also react). You just can't win.

Burns22 Newbie

I don't know what I'd do without hemp protein powder. I get the plain variety because flavored ones have cinnamon (allergic to). I don't want to jinx it, but I don't seem to have any adverse reaction to hemp powder, plus it makes me feel like I might still be able to maintain my vegan diet despite all these allergies. Thanks for all the great feedback.

hathor Contributor

People generally overestimate the need for protein and underestimate the amount and quality of protein in plant products. I'm vegan with multiple food sensitivities, but I don't find it necessary to use a supplement for protein or add in animal products. (Well I did eat fish on a river cruise last summer; that was a question of getting enough calories. The ship's kitchen staff was not at all accommodating to giving me enough nongluten plant foods to stave off starvation.)

Here is some information about protein -- what we need, where we can get it from, and what happens if we get too much. Getting too little is virtually impossible absent starvation or some strange all fruit or all junk food diet.

Open Original Shared Link

Here is the blog of someone whose food sensitivities & restrictions should make us reluctant to complain. Open Original Shared Link

Yet, he manages. He hangs out on the McDougall discussion board if you want to talk to him.

I find it easier to concentrate on what I can eat, rather than what I can't. There are lots of starches out there, lots of fruits & veggies, lots of legumes, nuts & seeds, lots of seasonings. Sometimes it seems better to make up my own recipes.

One thing you might like is the book "Food Allergy Survival Guide." All the recipes there are vegan and avoid all common allergens. If you want a wealth of vegan, gluten free recipes, check out this Yahoo group's files: Open Original Shared Link

I guess if you get desperate enough, you go to an elimination diet. First, though, I would try eliminating the most common problems and see if your symptoms clear up.

Open Original Shared Link

You also might look up one of those charts that show cross-reactivity likelihood. You know, if you are allergic to this, you could well react to these other things too.

Soy seems to be a common third problem, after gluten and casein, on this board. So, if nothing else, you might try eliminating it and see what happens. I did and my menopause symptoms improved somewhat and my face cleared up. But then I've talked to people who had their intestinal problems clear up after taking out soy.

I don't have the answer to the problem of knowing what is setting off symptoms. It is hard to keep everything constant, plus there is always the possibility of CC. I'm trying to sort out yeast now. What makes it difficult is that the yeast-free lists disagree with one another, most of them mix this up with mold allergies or anti-Candida diets which are different things, and I'm not even sure what, if anything, my yeast reaction IS. Plus I'm menopausal and a lot of what I'm experiencing could be THAT. Sigh. Oh well, we will get through all this.

BTW For bread, I like the mixes from Breads from Anna.

Flor Apprentice

My understanding is that the food allergy testing can produce many more positive results than a person actually has an allergic reaction to when that food is ingested. Anyone know more about this?

I also gather that food "allergies" are those that cause histamine reactions and produce things like rashes and respiratory problems. People who are having gut-related symptoms (diarrhea, bloating, gas, pain, etc) and experiencing intolerances to foods, but not necessarily allergic reactions.

I've been reading about leaky gut generally -- and whether the gut is damaged by eating gluten while celiac or antibiotic damage or viral damage or stress or other auto-immune or whatever, a leaky gut can let through a whole host of large molecules that are damaging to the gut and other organs and tissues. These foods include gluten, casein, soy, yeast-friendly foods (aspergilliis-contaminated or sugary or fermented, etc), nightshade vegetables (tomato, potato, eggplant, peppers), and high oxalate foods (see Open Original Shared Link. There are probably others, but I think it's often the leaky gut that makes all these foods problematic.

If you go gluten free and don't experience total recovery, it may be because your gut is having trouble healing because lots of other damaging molecules are being ingested into an already damaged gut.

For some of us, it's taken a very restricted diet for a time to allow the gut to heal, not that we have to live forever with multiple food allergies.

I experienced huge improvement going gluten free, but it was short-lived. I have also had to cut out soy, dairy, beef, pork, yeast/refined sugar foods, and nightshades and high oxalate foods. When I went gluten free a couple of years ago, I inadvertently increased my consumption of a lot of these other problematic foods and I think it delayed my gut healing.

Anyway, that's my two cents on all this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.