Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Handle This . . .

LynnR

By LynnR
in Coping with Celiac Disease

Recommended Posts

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Thank you all my Celiac cyberspace friends!

I printed out your posting and dad and I read though them. Thanx! You have all made it easier for us to understand and cope...

And perhaps someday when I meet a nice guy and can travel again to europe or some far off fun spot like I use to do, I can use all this helpful information all of you have given me, and I can have FUN again.

My rock star brother has let [stardumb, fame and b*tch bridezilla] get to his head. They have NO compassion for my illness and could careless about the me traveling to a third-world country. After speaking with him I understand the REAL reason, I no longer have a brother...

I will do exactly what - ajlauer and Maggie1956 suggested. plantime I found comfort in knowing you have a SIL and brother that would do the same thing. I don't feel so alone.

I will plan something else that weekend. After all ~ it's my birthday that weekend too! ;-D

Thanx again!

PS - ajlauer - The band is in the top single didgets on the record charts.

  • 3 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


westiepaws Apprentice
westiepaws
Posted

Hi Ms. Sillyak how did your brother manage to escape the celiac gene? Or is he just ignoring reality and not getting tested (like my brother)?

(Side note, I will be way grumpy if my brother gets celiac-related problems in his later years and expects moi to be his caregiver.....and he will be way grumpy when I refuse! And now back to our regularly scheduled celiac.com programming.....)

If I were you, I would either fly down just for the day and go to the wedding only, then fly back, or skip the whole freaking thing. It's bizarro that they chose your birthday, and way too risky.

If I knew your brother's band, I'd be sure to never buy any of their records so bridezilla has less money to spend. :lol:

Hugs,

westiepaws

Guest ajlauer
Guest ajlauer
Posted
If I knew your brother's band, I'd be sure to never buy any of their records so bridezilla has less money to spend. :lol:

:lol: I guess that would be why she won't tell us! I checked the charts (when sillyak posted that last post) and found one rock band in the single digits. Assuming that's the one... but with no FORMAL confirmation, I can't be sure!! The day after I did that, my son was watching (and rewatching) one of that band's music videos. It was driving me NUTS wondering if that was "THE band"!! I'm too curious. Far... far too curious!

Oh, and then I look at the band members and wonder which one is "the brother"!

ianm Apprentice
ianm
Posted

If your brother is a famous rock star, what in the world is he doing getting married to someone like that?

KaitiUSA Enthusiast
KaitiUSA
Posted
:lol: I guess that would be why she won't tell us! I checked the charts (when sillyak posted that last post) and found one rock band in the single digits. Assuming that's the one... but with no FORMAL confirmation, I can't be sure!! The day after I did that, my son was watching (and rewatching) one of that band's music videos. It was driving me NUTS wondering if that was "THE band"!! I'm too curious. Far... far too curious!

Oh, and then I look at the band members and wonder which one is "the brother"!

If you think u know what band it is research it and see if any of them are getting married soon...that may shed some light.

  • 3 months later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

HI all my CELIAC cyberspace friends.

My rock star brother has let [stardumb, fame and b*tch bridezilla] get to his head, but fame won over.

The PIXIIEDUST FAIRY came along out of nowhereland, just down the street from rock star never-never-land, and sprinkled pixiedust over him.

It seems the week long Mexican CanCun beach side wedding all expenses paid for her entire family, has been called off. Yes, you read right CALLED OFF! [giggle] oops that wasn't me. [giggle]

The band just left for another USA tour, they'll be back home for Xmas, and off again to Europe just after New Years. If you remeber the wedding is the first weekend in December.

Oops I can't contain myself but b*tch bridezilla's nose is out of joint, and has posponed it for a while.

Thank you, God is good!

-------

ianm - you got that part right. he's in a rock'n'roll band in an altered state of mind... [giggle]

-------

westiepaws - I wondered about the family and where it all came from too. I do know he has serious digestive problems.

Guest nini
Guest nini
Posted

That's almost funny about the wedding in Cancun being postponed/cancelled! But I agree with everyone else that said to just send a card and enjoy your week... The stress of it all would be too much for me!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    2. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    3. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
    4. Scott Adams
      - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    5. Florence Lillian
      - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) . I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,911
    • Most Online (within 30 mins)
      7,748
    AngieMcK24
    Newest Member
    AngieMcK24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      Fermented foods, Kefir, Kombucha?

      By Florence Lillian · Posted

      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.